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Mary41
Regular Member


Date Joined May 2010
Total Posts : 74
   Posted 5/21/2010 2:05 PM (GMT -7)   
Does anyone have extra sensitive skin with Fibro. I was in the sun this weekend and got a really bad sunburn too!! I usually dont burn that bad.

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 5/21/2010 4:17 PM (GMT -7)   
are you on any medications at all right now? Some do make you more sensitive to the sun. Fibro itself shouldn't make you more sensitive.

Mary, please don't take this the wrong way, but you seem to have a lot of questions about Fibro, and I guess you were diagnosed fairly recently. Have you read the Fibro 101 document here? I would strongly suggest you get to your nearest library and check out some books on Fibro to answer a lot of your questions. It's not that we can't or won't answer them here for you based on our experiences, but you might find it helpful to read some books and literature on the condition as well. It will help you get more information faster.

hope you feel better from your sunburn soon.
Conditions: Fibromyalgia, Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 5/21/2010 4:29 PM (GMT -7)   
Ugh yes! I've always sunburnt easily, it's part of being a redhead and pale. But itchy skin? Yes! I get it all the time! There is an actual name for it, but my poor fibro brain can't remember it at this moment. If you're not allergic, use aloe. It helps!

-Sarah
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

~*~*~*~*

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.
Rx: Celebrex, Buspar, Savella, Lyrica, Neurontin, Requip, Nexium, Symbicort, Compazine, Lunesta.
Supplements: Vitamin B Complex, Vitamin D, Vitamin C, Iron, Malic Acid/Magnesium


GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 5/21/2010 5:02 PM (GMT -7)   
I get itchy skin but I had/have a condition called porphyria (PCT) that affects the skin.  It is from the liver not functioning properly and bloodwork shows a high ferritin (iron) level.  I really never heard it associated with fibro. 
 
 Have you read fibro 101 nyet, if not you should as it is a wealth of information.
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR),  disc problems in neck, depression, anxiety & stress
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40567
   Posted 5/21/2010 5:17 PM (GMT -7)   
I have very sensitive skin. But I always have. You will find that fibro can make you sensitive to a lot of things, including smells and sounds. We had a thread on this a long time ago and found out that most of the people with fibro suffered from the same things.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 5/21/2010 6:09 PM (GMT -7)   
I got sent home for that on Thursday...I itched soooo bad. I used a new dr drug for the first time in a long time. The darvacet always
worked but the dr said NO and gave me ultram.....BAD. It was so horrible I itched all night a thru the next day. The dry mouth was
horrible. Stupid me called the dr and told him about the reaction and he gave a different one that cost 10 times more and with even
more horrible side effects. Vomit that looks like coffee grounds, numbness is limbs, slurred speech, vision problems, etc. and don't
forget "stay out of the sun". Personally, I think this is a joke as I already told him I push mow between 8-10 hours a week. I really
don't think this is possible. Put me back on the darvacet when needed as it is more of a plant base not synthetic crap made by man
that messes you up so much.

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 5/21/2010 6:21 PM (GMT -7)   
Nana, coffee ground puke is bad.  They say it is from bleeding in the stomach.  Did you tell your doc about it?  I hope he puts you back on the darvocet.  I really don't know why they push all these new drugs on us like we are guinnea pigs.  I refuse to take any of the new ones, only the tried and true oldies
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR),  disc problems in neck, depression, anxiety & stress
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 


sandspoker
Regular Member


Date Joined Apr 2007
Total Posts : 104
   Posted 5/21/2010 9:31 PM (GMT -7)   
I too have extremely sensitive skin - not sure if it is from Fibro or the Lupus but every little thing hurts me - tags on clothing can drive me crazy, even the little stub left over can cause pain.  Durning my massages, I have to get the guy to stop working my muscles because the muscle and the skin are both very sore!  I get him to lightly rub/tickle my back for a while.  He told me that there is proof that tickling or lightly rubbing can ease pain and I'm telling you, it works!!!
In general, I find that all of my senses are on overdrive.  Lights seem brighter (and scream kinda pain), things louder - it's like I'm on high alert!!!
As for sun - I avoid it at all costs... it just drains my energy too!

KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 5/22/2010 4:35 AM (GMT -7)   
I have really dry skin since all of this started so I would say yes.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40567
   Posted 5/22/2010 12:57 PM (GMT -7)   
Nana,

Please do talk to your doc about the coffee ground in your vomit. This could be something serious.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1371
   Posted 5/22/2010 6:17 PM (GMT -7)   
Nana,
 
My DH was in the ER a few months ago, hrs after leaving the hosp for heart procedure. While in the ER he was throwing up, the nurses barely looked, just gave him a new pan. His endocrinologist came into the room to ck his BGL (Type 1), I mentioned he was throwing up, looked very black. She checked it out and said 'It looks like coffee grounds, and he's very likely bleeding from the stomach'. He has had a previous problem w/ GERD. The dr got on this right away. I'm not trying to scare you, but pls call your dr right away, it is very serious.
 
God bless.  Alice.
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