Sorta OT - Fibro Song

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Regular Member

Date Joined Jun 2009
Total Posts : 286
   Posted 5/22/2010 4:51 PM (GMT -6)   
Ok, so.....I am gonna write a poem about living with Fibromyalgia/CFS. Then Dan, my fiance, (and a music composition major) is gonna turn it into a song. I need your input. Anyone have any advice? Anyone have anything I should make sure to include? Things you would say?

Anything would be greatly appreciated!

"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."


Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.
Rx: Celebrex, Buspar, Savella, Lyrica, Neurontin, Requip, Nexium, Symbicort, Compazine, Lunesta.
Supplements: Vitamin B Complex, Vitamin D, Vitamin C, Iron, Malic Acid/Magnesium

Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 5/22/2010 7:26 PM (GMT -6)   
Well dont forget to include the fog, the pain, the depression, the weight gain from the lyrica, the pain meds, the hot baths, the drs not believing you, others looking at you funny when you say you have fibro, staying at home, losing your friends, isolation, the great forum here at healing well. Did I leave anything out???

Good luck and God bless.

Co-Moderator Chronic Pain and Fibromyalgia Forums
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

Regular Member

Date Joined Aug 2005
Total Posts : 384
   Posted 5/23/2010 6:32 AM (GMT -6)   
Linda, I think you covered it.
I struggle with FM,Raynauds Syndrome,gastroparesis, IBS and depression. I trust in God with all things. Been a tough journey and it's not getting any easier but thanks to God and my family I am not alone.

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 5/23/2010 10:03 AM (GMT -6)   
I would also make sure to keep humor in your song laced with just a touch of sorrowful undertones.

Gravitation is not responsible for people falling in love.
Albert Einstein

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

Regular Member

Date Joined Jul 2009
Total Posts : 236
   Posted 5/23/2010 9:01 PM (GMT -6)   
Good luck on this project.. sounds fun..
have you ever heard the song by Rob Johnson... her Dimonds.. its about his wife who has Lups.. it fits very very well for Fibro also check it out .
have fun. yeah
Spirit ~
Fibro, Chronic Fatigue ,Anxiety ,( arthritis,, hands, feet, knees, back , neck )  , disk disease in neck with bulging disk , adhesions , Migraines, High blood pressure ,Gerd, IBS , Sever sleep apnea
Med's ,,,  fentanyl patch, Perc, Soma, anxiety meds, Ect.

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