I don't know what to think about this!!!

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Regular Member

Date Joined Mar 2010
Total Posts : 60
   Posted 5/24/2010 12:11 PM (GMT -6)   
I've posted that I got referred to the pain doc since the Rheumy didn't know where to turn.  Pain doc ordered MRI's on my neck and shoulder.  Got results from Pain doc on neck but NOT shoulder.  She ordered steroid injections on my neck to help with the bulging disk but also the pain in my shoulder as she was sure they were all related.  Saw my cardio doc.  Told him about pain doc and what she wanted to do.  Cardio doc flipped!  He was so angry!  Got MRI results on my shoulder.  I have a SLAP lesion that requires surgery!  No amount of steroid injections will cure this problem.  She would have known this had she taken the time to get the shoulder results also!
Now I'm angry!  This pain doc didn't do a complete follow thru before recommending a course of action.  Instead, she jumped right on the steroid injection bandwagon that would have cost me an absolute fortune!  Grrrr!  How could a doc be so irresponsible?  But this goes to show how we all can fall prey to everything a doc tells us.  After all, we go to them for answers and we believe they are doing their job and giving us the best advice and treatment.  Thankfully I really have a great Cardio doc who is interested in MY BEST INTEREST!
I think from now on I will make sure thorough follow up is done before I have treatment.  I have to be my best advocate for great healthcare!!!!!

Regular Member

Date Joined Aug 2005
Total Posts : 384
   Posted 5/24/2010 12:28 PM (GMT -6)   
We do need to be out best advocates. I can't believe that the dr. didn't review your results before talking about injections. Good thing you have a good cardio. dr. You take care of yourself. Sorry you are gonna need surgery.
I struggle with FM,Raynauds Syndrome,gastroparesis, IBS and depression. I trust in God with all things. Been a tough journey and it's not getting any easier but thanks to God and my family I am not alone.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 5/24/2010 12:35 PM (GMT -6)   
lostnomad, I'm glad that you finally know what needs to be done, but sorry that your pain
Doc jumped the gun and was going to proceed with an inappropriate action. It is easy to
see why patients question their doctors actions. I also have been put in situations where
innappropriate action was taken. Even the great tv Dr. House makes mistakes. It is very

At some point we need to put our trust into our doctors, but you are correct in saying
"I have to be my best advocate for great healthcare!!!!" I find I'm still reading up on
treatments and meds and asking my doc loads of questions just because of past situations
(differant doc). I have learned that a doctor can earn that title but he must also earn my trust.

Hoping your surgery is a sucess!!!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40386
   Posted 5/24/2010 12:52 PM (GMT -6)   
I had to have surgery on my left shoulder some years ago before I was dx with fibro.

My family doctor presumed it was a lypoma and wasn't going to do anything about it. But it was really irritating my nerves in my arm and shoulder and I went to a surgeon to have him look at the mri. He didn't know what to do but was worried about it pressing on nerves so he refered me to another surgeon. I can't remember what it is called at the moment, fibrofog... But he thought that it was a sarcoma and wanted to do surgery immediately. When he got in there he discovered a mass of healthy cells called hyperplasia. But he removed two inflamed lymphnodes while he was there. The little bit that he did moved the mass enough to where it isn't interfering with the nerves anymore, but it is wierd. I can itch on the back and have to scratch on the front. I never did find out why my lymph nodes were inflamed. But that goes to show when one doctor disagrees with another. It gets so scarey when you don't nkow what is going on.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Forum Moderator

Date Joined Nov 2008
Total Posts : 5923
   Posted 5/24/2010 8:05 PM (GMT -6)   
Too bad - another example of an irresponsible doctor! Good luck, when are you having your surgery?
    Diagnosed: Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
Be yourself.  Everyone else is already taken.

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