I am 19 and was originally diagnosed with
Costochondritus at the age of 15, I suffered immensely with pain in my chest
for a very long time, I was proscribed sleeping pills and pain relief which I
took religiously for over a year, until one day I decided I was 16 and
completely dependent on my pills. So I stopped taking them, I still suffered tremendously
with pain but by this point it wasn’t just in my chest but my wrists, my arms, my neck,
my knees, my hips, my ankles, all over, riddled with clicks and pain, I was
then diagnosed with hypermobility, yet it still did not explain my pain! I was referred
to Oxford for a specialist I travelled up and was again diagnosed with
costochondritus & hypermobility, but this time Fibromyalgia was mentioned,
after several tests it was confirmed that I had all 3. Again I was offered
sleeping tablets as I couldn’t sleep because of the pain, strong pain relief
but refused the lot, my body couldn’t take the strength of all the tablets. I
was sent on my way with no follow up whatsoever, I went to my very unhelpful
local GP who offered me antidepressants, I tried them and felt lower than ever,
I asked about support groups and was told there was no point seeing as I was so
young, the groups would be full of 60+ sufferers, trying to establish the best
method of walking to the shops, making a cup of tea etc., things I could do!
I have never been told how to deal with my pain,
how to make life easier, how it would be if I had children, what to expect,
nothing, I take every day as it comes, and hope and pray the pain will go away,
I have had 2 months with no pain what so ever, it has been bliss! Until a week
ago, when my ankle/foot became inflamed and I have suffered terribly since, I
have tried crutches but the pain in my back from using these is too much to bear,
I am now hobbling with one crutch as support, in immense pain.
I can handle what is happening to me now, but the
future terrifies me, what is it like to have had Fibro for such a long time? How
do people cope? Has anyone been pregnant with Fibro?
I am a very bubbly young person, living in an
elderly person’s body, and I have no idea how to cope.
I also hate the fact that because I have an
'invisible illness' people think I am fine, overreacting, 'I am far too young
to have anything major wrong with me'. I try to explain to people but no one