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New Member

Date Joined Jun 2010
Total Posts : 6
   Posted 6/3/2010 9:42 PM (GMT -6)   
just wanted to say I feel much better knowing I am not loosing my mind I have read some of the comments on here and I hear you I am sick of others thinking its all in my head my doctor is ok but he just gives me endep and painkillers and is happy to take my money for the visit I would like to know if anyone has found a doctor in perth w.a that has some knowledge of this horribale illness I have often felt like ending it all every day I wake up and I am in pain my family are ok if I ask them to help but then I feel guilty for not doing it catch 22 I think the pain seems to be getting worse and just daily routine things are getting harder

Forum Moderator

Date Joined Nov 2008
Total Posts : 5927
   Posted 6/3/2010 10:28 PM (GMT -6)   
I'm glad you found us. It does help, knowing you're not alone! And there is always someone who has it worse (at least, something worse) than you do, not that that's a good thing, but it helps put things in perspective. Take a deep breath, check out the Fibro 101 thread here, and good luck to you.
    Diagnosed: Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
Be yourself.  Everyone else is already taken.

Regular Member

Date Joined Mar 2010
Total Posts : 72
   Posted 6/3/2010 11:16 PM (GMT -6)   
Hi Debbie - I don't live in your area, but if I were you I would keep trying to find a doctor that understands this better. Don't give up. It took us awhile to find someone that understands it. Try going online and looking for specialists in this in your state. Or you could try (another) rheumatologist. Its hard, so I wish you the best of luck. There has to be somebody near you that gets it.


Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 6/4/2010 3:15 AM (GMT -6)   
Welcome to our fibro family Debbie! Coping with a chronic illness can make you feel alone,
coming here you are never alone...there are caring people here who do understand.
Reaching out to others is a good first step when you are feeling down. I'm glad you joined us!

Finding a good doctor is important. My rheumatoligist was referred to me by my general
practicioner. Is there a teaching hospital where you live in Australia that could refer a good

Learning to accept our illness takes some time and asking help from others without feeling
guilt is just important. We have to learn to give ourselves a break, we didn't ask for this
crazy fibro! Do what you can do to each day and only take one day at a time.

I've learned to start saying no to things that are over and beyond what I can do in a day.
My house might not always be the cleanest but some things are just more important.
You are important!!!
Be sure to checkout fibro 101, second thread, page one. sherrine has compiled a wonderful
resource for us fibromites.

Debbie, I do hope you are able to find a great doctor and are able to find good pain relief.
Glad, you joined our family. Post often, we care!!!

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Regular Member

Date Joined Aug 2005
Total Posts : 384
   Posted 6/4/2010 3:17 AM (GMT -6)   
SO sorry you are in so much pain right now, I understand. I hope that better days are ahead for you.
I struggle with FM,Raynauds Syndrome,gastroparesis, IBS and depression. I trust in God with all things. Been a tough journey and it's not getting any easier but thanks to God and my family I am not alone.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17059
   Posted 6/4/2010 5:49 AM (GMT -6)   
Hi, Debbie, and welcome!  I so glad you found us and joined our family.  We have wonderful members that love to help one another and, as a bonus, we really do care about each other, too.
I'm sorry you are having to deal with this illness.  It's not fun.  You do need a doctor that believes in fibromyalgia.  I see a board certified Internist but many see a rheumatologist for their fibro. 
Fibro is a weird illness.  The doctors don't know what causes it so that's one big problem.  Another big problem is that what works for one patient doesn't necessarily work for another.  So this means that you have to become a very active participant in your illness.  You will have to try things and see if they work for you.  That's what we all have and are doing here.
I have my pain under control now.  I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements, and vitamin D 3 to help with my pain and fatigue.  I also do gentle stretching exercises and I have daily gentle exercise...walking.  I also swim.  When I started out walking, I could only go four houses down in my development and had to come back.  But I kept it up and went a little further each day and now I start out my day with a mile walk with my dog and go from there.  The exercise really does lessen the pain, once your muscles get accustomed to it (if you have been sedentary).  This also helps with your fatigue, too.
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good info about fibro in there and you will learn a lot.  There are links about malic acid/magnesium supplements and vitamin D 3 and how these work in your body.
A positive attitude helps a lot with this illness.  If we dwell on how we feel, we will feel worse.  I keep busy and focus on other things that bring me happiness.  I enjoy walking, gardening, genealogy, etc. and when doing these things, the pain fades in the background.
You want to be in control of your life...not fibromyalgia being in control of your life.  You can have a full and enjoyable life in spite of this illness.  I know because I have had a good life so far.  Look forward to each new day with anticipation because it might be a really good one.  Fibro waxes and wanes.  If it's not a good day, that's still fine because you can handle one day.  One day at a time.  Meanwhile, try different things and find what will help you control your pain.  We are here to help you so don't hesitate to ask questions.  
I'm glad you are here and I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

New Member

Date Joined Jun 2010
Total Posts : 6
   Posted 6/7/2010 3:05 AM (GMT -6)   
thank you to all the kind words from other fibro sufferes it does help that someone else understands how you feel I have found a pain clinic dr will in vic park perth western australia going to make an appointment to see if he can help it is a very complex illness and so much more than just pain and fatiuge but with sites like this on I am sure I can deal with it thank you all again
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