New to savella!

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luckie01
New Member


Date Joined Jun 2010
Total Posts : 1
   Posted 6/4/2010 10:35 PM (GMT -7)   
Hi, everyone. I am just trying savella for the first time today. The only negative thing I had read about it is diarhea (spelling?). If that is the only thing I have to worry about, that is wonderful!!! I stay constipated because of my pain medicine, and I am sorry to say it but I would welcome diarrhea!!!! I havle all the classic symptoms, and I hope it helps all of them, but the brainfog is the one I can not wait for!!!!! I haven't worked in 3 years because of pain, not just from fibro, but from trauma disc ruptures, sciatica, and so forth. I was laid off, and did not realize I would not be able to go back to work, until I started back to school. I never realized how much I was out, or how much I had to move in my seat each day, until a professor asked me why I could not be still :(  It brought me to reality real quick. I felt like a little kid :(  I am now with the savella on 4 meds for the pain and well being of myself. Including savella, I am on a muscle relaxer, an anti inflamatory, and pain med.
 
I cannot wait for this to do what it does!!!!!  I have read some bad, but mostly good!!!! I have not been myself in 8 years, and I haven't smiled in over 4, so I am ready!!!!
 
Thanks for listening!!!

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 6/5/2010 7:55 AM (GMT -7)   
Hi luckie, welcome to our family. You will find caring fibromites here who really understand.

Hoping the Savella works for you. I have been taking it since last July and have found it
to be helpful. My rhuemy started me off with 2 sample triation packs so I gradually worked
myself up to 50mgs 2x daily. I was lucky not to have any bad side affects. It took me a
couple of months to start noticing any change, but I think it took that long because I did
a slow gradual increase in dosage. My rhuemy started me out slow because I did not do
well on the Cymbalta. We all tolerate meds so differantly. I also take a muscle relaxer when
I'm flaring and take hot showers, long soaks in a hot bath and use a bed buddy.

Be sure to check out fibro 101, second thread, page one. Sherrine has compiled a great
resource of wonderful info for us.

Keeping active has helped me, I'm a walker and believe it has helped alot with the pain.
I believe you will smile again:) Glad you have joined us. Keep posting...we care!!!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


SillyMe2
Regular Member


Date Joined May 2010
Total Posts : 110
   Posted 6/5/2010 8:18 AM (GMT -7)   
I've been on Savella since Jan 2010 and it does take some adjustment time for some. I've never heard anyone saying they got Diarrhea from it though? Constipation YES!!

For me Savella worked out really well but DID find that one of my meds didn't like it too well and it was a Statin for Cholesterol. I was on Simvastatin and after months of an internal heat feeling they figured out it was that med and switched me to Crestor. MUCH better and I can actually feel a chill again. lol It took a good month to month and a half until I was able to drop the daily use of a pain reliever and muscle relaxant to only have to use them for periodic break through.

After that first month and a half I noticed that Electrical pain was now a Thud instead of a Sharp OMG pain. I could stretch w/o muscle spasms. I could sleep w/o Limbs or Body jerking me awake although I DO have to take a sleep aide every night. Hope it works for you can you can get past the first month or two.

Please DO look up the side effects though because there is one that is very important to watch and that's your BP and Swelling. I don't have a problem with that..
DX: Fibro, PA (Psoriatic Arthritis), Psoriasis, Rosacea.
Savella, Lisinopril, Crestor, Vit D, Prilosec, Ambien.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40581
   Posted 6/5/2010 8:30 AM (GMT -7)   
Hi Luckie01,

Welcome to the HealingWell Fibromyalgia forum. I am so happy that you have joined us.

I wish you the best of luck with the Savella. My sister just started taking it and she says it works well so far. So hopefully it will for you too.

Please do check out the thread called fibro101. There is a wealth of information there. Many good tips on coping and a lot of explanations about things from our personal experiences.

With this being said, I hope that you have a nice day. Free of pain and fatigue. Keep us posted on how you are doing.

Take care my friend.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/5/2010 2:13 PM (GMT -7)   
Hi there Luckie01,

I am also currently taking Savella as well and have been doing pretty good on it. It has taken away that really bad pain I used to have. I was pretty bad off for a year and a half. I was mostly stuck in bed or on my sofa(on better days), and didn't have much of a life. I could barely move most days and would wake up in pain so bad, I would bust out crying. I couldn't cook, clean, or do anything a mother or wife should do. My husband had to do everything. Now, I am moving around again. I cook, clean and do most of what a mother and wife should do, plus climb stairs in my home everyday. I still have to pace myself and some days are better than others, but the Savella has really helped. I am not yet on the highest dose because I had to titrate up real slow. I am very sensitive to medications, but I should be starting the higher dose soon. There were several side effects that I had that I want you to be aware of. One was a fast heart rate the first few days I began the medication. I had to take a klonopin the first day to bring my heartrate back down. After that, I'd take magnesium with my dose of Savella and it never went up like that again. I also had nausea the first two weeks and still get it sometimes if I don't eat enough. You may want to eat before you take it. If you are on anti-depressants or Tramadol, you have to know that in rare cases, the two taken together can cause serotonin syndrome. Look up the side effects so that you can be aware of them. I take Savella and Tramadol together and I am okay. My doctor didn't think there was anything to worry about, but I like to make people aware, just in case. Oh, and I am taking less pain medicine now. I'm hoping that I can get off pain meds completely soon, but if that doesn't happen, I am okay with it because I have somewhat of my life back. Good luck with it and keep us posted!


Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 6/5/2010 4:11 PM (GMT -7)   
If you check serotonin syndrome and savella you will find the drug in the list. It may be dose-related, like some of the other things I take that bring on muscle twitches. I have a problem with tramadol if I take too much or take it with Zofran.
Alcie
 
 


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 6/5/2010 4:55 PM (GMT -7)   
Savella can raise blood pressure so if yours is borderline or high, you may want to check it frequently the first few weeks and after any dose increases.

MinnyMouse
Regular Member


Date Joined Jun 2010
Total Posts : 197
   Posted 6/6/2010 7:18 AM (GMT -7)   
Started the Saveilla two weeks ago with little side effects, however, the minuted my doctor put me on it he also put me on Hight Fibre. ( I take benefibre 3x a day ) the powder is tastless and thin, you can mix in foor or drink and can't taste it. This is to keep the consipation and diarrea in check.
Diagnosis:  Fibremyalgia, Degenerative Disc Disease, Lupus, Osteoarthritis, Anemia, Issues caused by being severely double jointed.
 
Current Issues:   Chronic Fatique, pain in joints (really just whole body) some memory loss, low vit.D, Nitrate, Protien and Ketones in my last urinalisis, white cell count WAY elevated with no sign of infection. General Swelling
 
Meds:  Vicadin, Meloxicam,Omepraxole(high dose previced)Cipro,2000iu Vit. D daily, 50,000iu weekly, Ambian, Savella, Voltaren Gel, and Pennsaid Drops.
 
 
Surgery:    1977 - dropped a loaded gun and blew a hole in my leg. 4 surgery's to put it back together,Gallbladder, historectomy, 2008 lower back- Laminectomy with fusion and instrumentation, Jan.2010 total knee replacement with complications(my tibia split)
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/6/2010 4:48 PM (GMT -7)   
MinnyMouse,

I wish my rheumy would have told me about constipation because I am experiencing that right now. I may have to go a pick me up some benefibre. Thanks for posting this.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum

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