I'm a little scared...

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@rianna
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 6/8/2010 6:11 AM (GMT -7)   
I've seen that some of us has RA and I was wondering if you guys and gals have any experiences to tell me on how yours developed.  My right hand has been hurting a pain I can't really describe and things like handshakes and opening doors hurt.  It wasn't too terribly noticeable until last year around this time when both hands started to hurt pretty bad and frequent.  Little things have been getting hard to do like opening jars and pop bottles and now they hurt with the weather.  Around christmas last year I noticed that my feet were starting to hurt the same way.  In the foot and mostly the balls of my feet and toes.  Figured out that the right foot (ball of my foot and up) hurts when the temp changes suddenly and doesn't do it gradually and the left when storms are coming.  Funny thing is when the storm gets here my foot is fine.  My wrists were next  in the timeline I can't quite pinpoint and then in the last few months my ankles have been hurting.  So I made an appointment with the rheumy and its not until this august.  Oh the thing that made me resort to the rheumy is my physical therapist and one co-worker said that its possible I have RA.  Can anyone help?


Other occupations: heartburn fighter, migraine massage therapist, fibromyalgia trainer, sinus plummer, allergic vet, weather girl and jar of pickles loosener.

Translation: I have heartburn, IBS(undiagnosed), fibromyalgia, migraine-like headaches, sinus issues, allergies to cigarette smoke, perfume and animals, sensitive to weather-body heat issues and possible RA in hands, wrists and feet.
 
Scotland the Brave!

Post Edited (@rianna) : 6/8/2010 7:40:28 AM (GMT-6)


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 6/8/2010 6:38 AM (GMT -7)   
They can do a blood test to tell if you have ra. I sure hope that you don't. It is a hard one to live with. It effects a lot of things in your life and on top of fibro. It is miserable.

I got tested for it because I am getting nodules on my fingers at the first knuckle, but I guess it si osteo. They don't hurt, but are annoying. Thankfully there is no pain there. So far.

I hope that you are feeling well today. It is a nice sunny day here today and not suppose to be too hot. My kind of weather. 70's.

Take caer my friend. Keep posting and let us know what is going on.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


@rianna
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 6/8/2010 7:10 AM (GMT -7)   
Thank you so much for posting, Karen!  You have no idea how good it feels when I get a post back because where I'm at in the world I don't know anyone with fibro.  But at least thru online I know I'm not alone and have found hundreds of fibromites.  Though I wish there wasn't so many.  I would never wish this on anyone.  I recently tried to get another co-worker to understand what its like to have fibro and why its my life and makes my relief so angry in the mornings that he acts childish and uses his sucking up skills to get out of duties because of me.  I have tried to explain to that guy that I do my best and sometimes can't always get all of my stuff done on my shift.  So with this other guy I wrote him a list of "I can't" and told him to read the spoon theory.  Naturally he just read the list.  We still have to discuss what he thought that I CAN do, but I am nervous and angry at the same time because a healthy person can't tell a person with a chronic illness that they CAN do stuff that they've already explained they can't.  Like right now I'm in the middle of a flare up that was caused by me wearing my harness boots like the bikers wear on their harleys last night because my husband and I went to a movie and I wanted to feel pretty.  I knew I couldn't be too pissed (that's my way of getting across that I'm more than angry) that I wore them because I did choose to wear them.  However that's the stuff I was trying to get across to him that I can't do.  Not without consequences and not without difficulty.  There's something I can't do and refuse to do.  Other things I will do them because I have to, but its not without challenge.  Sorry I had to vent that for a second.  I wish I had the answers to help treat and soothe my pains and stiffness, but I'm still understanding what it means to live with a chronic condition.  I was raised in a family where my father has a slight handicap.  He wasn't born with full arms or hands.  He has a finger on each hand.  He wasn't raised to think that he was a freak or that he couldn't do nearly everything that a normal person could.  So its hard for me to wrap my head around what fibro will mean for my future.  I haven't even gotten to start a family.
Other occupations: heartburn fighter, migraine massage therapist, fibromyalgia trainer, sinus plummer, allergic vet, weather girl and jar of pickles loosener.

Translation: I have heartburn, IBS(undiagnosed), fibromyalgia, migraine-like headaches, sinus issues, allergies to cigarette smoke, perfume and animals, sensitive to weather-body heat issues and possible RA in hands, wrists and feet.
 
Scotland the Brave!


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 6/8/2010 7:18 AM (GMT -7)   
My RA is part of my MCTD, not all people test positive for Rheumatoid factor. One main
differance between OA and RA is OA is wear and tear of a joint and RA is inflamation in
the lining of the joint. I have both forms.

Karen was right aout you can get nodules at the dip joint(closet to finger tip)with OA, RA
doesn't typically affect that joint. With OA you can sometimes hear crunching or crackling,
sounds of your joints...my ankles, wrists and knees do this.

RA causes my hands to become red, puffy, joints will be swollen and warm to the touch.
All the joints that are affected will do this. Over the weekend my hands and knees were
bothered.

As age sets in many people will get some OA because it is wear and tear. RA is differant
because it is autoimmune, in my case a part of an overlap in MCTD, which is rare.
Changes in temperatures do affect arthritis. I'm lucky that my RA doesn't flare often.
Taking Methotrexate for MCTD helps with keeping the autoimmune stuff in control.

When you see your doctor mention all your symptoms and if you do get swelling take
pictures to bring. Hoping you will get answers. Good luck to you . Keep us posted!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 6/8/2010 7:50 AM (GMT -7)   
Hi again, I just saw your new post. I'm sorry you are hurting. It is really difficult to
explain to others what we are dealing with because they cannot feel our pain. I told my
husband once that it is like having a total body sprain and being crushed. In time your
husband will see what you are able to do and what you can't. The biggest thing is you have
to give yourself a break and try to pace yourself so you are not constantly overdoing.

Fibro is difficult but in time you do learn to live with it. I still have an enjoyable life.
I do feel your pain, I think we have all been there. Sending gentle hugs!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


pksmdrag
Regular Member


Date Joined Mar 2010
Total Posts : 72
   Posted 6/8/2010 8:07 AM (GMT -7)   
I don't have fibro (my teenage daughter does) but I have RA. I was diagnosed with that about 2.5 years ago. I was hiking through the snowy woods in the winter with some friends and our dogs in snow boots. Well, the next day the back of my knees felt funny, like they had some fluid in them. I couldn't squat down. Then I started noticing swelling in my knuckles and my feet. I had to wear bigger shoes and loosen my shoes laces on my sneakers. Then my ankles and lower legs were swelling. Within a few days I was retaining 10 pounds of fluid. Blood work showed my sed rate, c-reactive protein, and aldolase levels were all elevated. After a couple of weeks I was diagnosed with PMR. Prednisone works wonders for that. Even with all of that I still had swelling in my knuckles and my sed rate and c-reactive protein were still elevated. Even though I don't have a rheumatoid factor I was diagnosed with seronegative RA. Anyway, I am on prednisone (down to 2.5 mg - started at 20 mg.), plaquenil, methotrexate, and Humira. Even with all of this I know my inflammation is up even though I don't see it. Not sure if I will have some med changes in the future. Also, when all of this happened it was extreme fatigue that I noticed first, but didn't see a doctor about. I am used to driving all over the country but found it nearly impossible to drive 15 minutes. Extreme fatigue. I know you are young and you wonder how you will fulfill all your dreams. Just take it one day at a time, give yourself credit for anything that you accomplish no matter how small, and keep those dreams alive. Do what you can to stay as h ealthy as you can. Good luck. Even if you get diagnosed with RA you will still have a good life. Keep us posted.

Kim

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 6/8/2010 10:34 AM (GMT -7)   
I have had my hands and feet hurt...hurt a lot!  I, too, thought I might be getting RA because RA is in my family.  Osteoarthritis is too.  So, I really didn't want to know and just kept on doing my best.
 
My hands got so bad that I couldn't open jars.  I bought a jar key and that helped.  I also had a rubber disk that I put on the top and that help me get lids off.  My daughter even bought me an electric appliance that removes lids because my hands were so bad.  My right hand, expecially, around the thumb and the bone at the "thumb side" of my wrist.  I could barely move my thumb and so holding a pen was next to impossible.  I started practicing writing with my left hand.  That bone on the wrist got hot and the muscles were inflammed.  Taking ibuprofen did help with this.  This went on for months and then started to go away.  I not longer have that problem.
 
My feet were bad, too.  I had the ball of my foot hurt and then the following year, the joints in a couple of toes.  My foot even swelled some.  My doctor though I might have gout and gave me medication but nothing worked.  My feet problems aways happened in the winter and then clear up when the weather got warmer.  BUT this year I didn't have the problem.  I really think it's the vitamin D3 I am taking but time will tell.
 
So the bottom line is, I have had a lot of what you are describing and it has all gone away.  I do think fibro plays into this.  My fingers still lock a little.  If I close my hand in a fist and then try to open it, my fingers will slightly lock and then pop when I get them straightened out.  I don't know why but it isn't high on my list of priorities!  turn
 
So, try to relax.  Your being frightened about it will just make things worse.  You will get to the bottom of this.  Who knows?  Maybe by the time August rolls around, they won't hurt!  Let us know what the doctor says, okay?  We really do care.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


@rianna
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 6/9/2010 12:06 AM (GMT -7)   
Crazykitty, my husband completely understands my limits. Sometimes before I know it cuz I don't always remember. My one co-worker is a duche and doesn't want to understand cuz he uses things like this to get out of doing his job. The one i'm trying to get to understand is a nice guy and is more understanding but this time he's having a hard understanding my can't list. It hurts but ultimately my husband is the only one I need to understand cuz he's my family. But I will keep everyones encouragement with me so I can hold my head up high.
Other occupations: heartburn fighter, migraine massage therapist, fibromyalgia trainer, sinus plummer, allergic vet, weather girl and jar of pickles loosener.

Translation: I have heartburn, IBS(undiagnosed), fibromyalgia, migraine-like headaches, sinus issues, allergies to cigarette smoke, perfume and animals, sensitive to weather-body heat issues and possible RA in hands, wrists and feet.
 
Scotland the Brave!

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