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GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 6/17/2010 10:15 AM (GMT -7)   
I went to a Fibro Seminar put on by a local hospital and the speaker was their Rheumy. 
 
It was good for people that are just diagnosed, people that have terrible doctors who don't explain, and here is a good one.......husbands who don't believe or understand.
 
I knew a lot of what he talked about but there was a good bit that I didn't know.  One thing was that Savella is the ONLY drug approved for fibro which I didn't know.
 
Fibro sufferers spend 4 times as much money on testing and drugs than the average person. 
 
A lot of what we talk about on here like not overdoing on good days and pay for 2 days. Sleep is important, tens unit is useful, gentle exercises and stretching, walkijng, swimming, and more aree all good.  Most times physical therapy makes pain worse (which I have said about my situation).
 
I am at the end of my time for now................
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR),  disc problems in neck, depression, anxiety & stress
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 6/17/2010 10:35 AM (GMT -7)   
I totally agree with what you were told...except the part about medication.  Lyrica was approved by the FDA in 2007.  It was the first drug approved for fibro.  Savella is the third drug approved...just last year.  Below is from the National Institute of Health site called Medline.
 
 
In 2007, the Food and Drug Administration approved Pregabalin (Lyrica) as the first drug for the treatment of fibromyalgia. In June 2008, a second drug, Cymbalta, which was previously approved for treating depression, was FDA approved for treating fibromyalgia as well. In 2009 the FDA approved milnacipran (Savella) for the treatment of fibromyalgia.
 
Sherrine

 


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 6/17/2010 10:40 AM (GMT -7)   
I'm glad you caught that. You are 100% correct!!!! Savella is the only drug that is ONLY approved for fibro......does that make more sense
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR),  disc problems in neck, depression, anxiety & stress
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 6/17/2010 10:46 AM (GMT -7)   
Yep!  That makse perfect sense!  I'm glad you have these seminars to go to.  It gives you validity to this illness.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40602
   Posted 6/17/2010 3:22 PM (GMT -7)   
Hi GSDGirl,

The seminar sounds cool. I am glad that you were able to go. How often are they going to have them? Or is that the only one? Maybe there will be a support group now, or do you already have one? Other than here... lol...

I bet it was very validating to hear a lot of the things that we discuss here. I am so happy that you went. I hope that you had a good day today. How is Blitz? Jasmine is doing great. We are going for walks daily. That really seems to be good for her. Just hope I can continue to keep her challenged.

Take care,

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 6/17/2010 6:17 PM (GMT -7)   
The seminar was one of a series (for lack of a better word) to educate people.  I know that they have done RA and osteo, not sure what else.  I don't know about a support group.
 
Today was a good day but busy.  Blitz is a brat but I love him.  we just came inside and he is having some crate time to give me a break.  Have you ever heard of Kongs?  and even the white (only white) shank bones?  I often put goodies in the kong and they have a great time getting their treats plus it keeps their mind busy, ........with the hollow bones sometimes I stuff some hot dog or rub cheese around the inside part, also keeps them busy.  There are are lots of challenging things for them.  We started a little agilitry type stuff and I will be going every Sunday afternoon.  It is fun and there are 2 other pups about the same age.
 
Hope you had a good day 
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR),  disc problems in neck, depression, anxiety & stress
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40602
   Posted 6/18/2010 6:28 AM (GMT -7)   
I wish we had agility things around here. Even a training group. I think there is something in a town about 20 miles away. I am going to check into that.

She has been pretty good. We let her sleep in bed with us last night and the night before. She is outgrowing her crate, I should have gotten the larger one. But she is doing really good so I guess things are okay. I will send you a photo of her soon. Want to get a good one. She is getting so big, but she was a runt, so I don't think she will go much over 75 pounds. Which is fine by me. Blitz is a beautiful dog, I thank you for the photo you sent.

Well, I have gotten this thread way off course. Sorry. Just love the dogs.

I hope taht you are having a good day today. Free of pain and fatigue. Keep us posted on how you are doing.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


kathydownunder
Regular Member


Date Joined May 2009
Total Posts : 447
   Posted 6/18/2010 12:43 PM (GMT -7)   
I love the talk about the pups.
We breed mini foxies our kids kept 3 of the pups from our last litter, and for such little dogs they run the house holds. Our daughter moved here to live so they can save to buy a house. Anyway their little dog Bella well she just adores hoping in a bubble bath. She loves people food but knows she has to sit down to receive any. And if you are sitting down she will ask to be cuddles then takes your finger in her moth and move it towards her as in hurry up and pat me. She is very cute. We live on 5 acres so she runs lose during the day then sleeps with them at night. My SIL tells me she gets pushy during the night and ends up sleeping with her head on their pillow.
She makes me smile all the time.
Kathy
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