savella and weight loss

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Regular Member

Date Joined Mar 2009
Total Posts : 178
   Posted 6/17/2010 6:02 PM (GMT -6)   
Gee I know I should not be complaining that I am losing weight. I should be happy about it. Well at first I was. Now 60 pounds later I am not so happy. I want my appetite back. I am limited as to what I can eat. I do not touch junk food, red meat or anything artificial. Fighting with my primary to see a dietician at this time. At this time I just want the comments from friends and family to stop. The "oh you look great but you have lost enough now, time to stop". I would stop losing if I could. It is seriously depressing the hell out of me. My psych doc accused me of having an eating disorder last week. Told me that cookies are not my enemy. Well they are if they have high fructose corn syrup and starch they are , both make me sick. I went from a size fourteen last year to size six this week. I am starting to hate savella. Sadly it works for my pain and works very well. But I may have to go off it. Or they may take it away. Which also is throwing me into a huge depression. I am sorry this post just seems like one huge whine fest. I just needed to come to a place where others can maybe understand or get what I am going through. The help from the pill seems to be a worse solution then the pain was.
fibromyalgia, bipolar, ptsd, depression, anxiety
cymbalta, abilify, triliptal, lorazapan, lyrica, flexoral, ibuprophine.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 34137
   Posted 6/17/2010 6:56 PM (GMT -6)   
I know, I was on zoloft many years ago and turned into a skeleton. It was horrible, but I was also under a lot of stress at the time which made me ill.

I am sorry that you might have to go off of Savella. Are there any foods with more calories that you can eat? It would be nice if your weight stabilized and you could stay on a med that is working so well for you with the pain.

I hope that you feel better soon. Maybe I should take Savella. Though I don't know, but, I sure would like to lose a few pounds. I don't eat a lot, but I don't think I make the right choices of what I eat. I cave too easily when it comes to sweets.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Mar 2009
Total Posts : 178
   Posted 6/17/2010 8:17 PM (GMT -6)   
thank you Karen for your comment. I take it hard though that after 25 views it seems I am trying to throw it in peoples faces that I am losing while others are trying to keep off the weight. This isn't the case at all. I am genuinley scared at how thin I am getting. I do not like being this thin, I like my curves.
fibromyalgia, bipolar, ptsd, depression, anxiety
cymbalta, abilify, triliptal, lorazapan, lyrica, flexoral, ibuprophine.

confused Okie
Regular Member

Date Joined Apr 2009
Total Posts : 164
   Posted 6/17/2010 11:58 PM (GMT -6)   
I took a med that helped my AS so much, lost weight on it because it made me sick. I couldn't eat anything except popcorn, lol. I haven't tried Savella, but I took Lyrica and gained like crazy. I was to scared to try another med for fibro. I'm sorry it is having such a bad effect on you. Sad when you find something that works only to cause a different problem. Can you drink some high calorie protien drinks with you meals to get some extra calories, not sure of those ingredients. Maybe do a search on how to stop weight loss. It would be good if you coould just stop the weight loss and continue the medication.
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 6/18/2010 1:42 AM (GMT -6)   
I'm sorry that the Savella is causing you to lose so much weight. I have been on Savella
almost a year and haven't experianced any side effects. It hasn't curbed my appetite at
all. I have lost ten pounds but they were ten pounds I was trying to lose and did it through
cutting back on the junk food.

Have you been checked for an over active thyroid? I feel bad that you have to give up
a med that has helped you with the pain. Wishing you the best.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 6/18/2010 5:26 PM (GMT -6)   
Savella makes me really nauseated and my taste for food is not the same anymore. I haven't lost any weight though. Wish I would, that would be nice, lol. I have so much to lose. I'm sure you're frustrated now though since it's not stopping. Have you tried ensure yet? It will give you all the nutrients and calories you need. Geriatric patients are given this when they don't eat.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum

Regular Member

Date Joined Mar 2009
Total Posts : 178
   Posted 6/19/2010 5:53 PM (GMT -6)   
can't touch ensure. It has artificial ingrediants, and not soy based or I would.
fibromyalgia, bipolar, ptsd, depression, anxiety
cymbalta, abilify, triliptal, lorazapan, lyrica, flexoral, ibuprophine.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 34137
   Posted 6/22/2010 12:31 PM (GMT -6)   
How old are you? I was really thin in my 20's. I started to fill out in my 30's. Now, is a different story, lol... But I was so skinny that I looked anerexic. So you wont always stay that way if you are young. But yes, try to get more calorie intake. Maybe drink milkshakes once in a while. But don't over do it with sweets, it is bad for your blood sugars. Maybe you should speak with a dietician. That might help you. Let them know your concerns and get on a healthy diet. It is hard when you feel too thin. I felt like a skeleton when I was young. But now I would give anything to be skinny again. I think I was at my best in my 30's. Had quit smoking and was walking a lot. Very healthy. Lifted light weights and did a lot of cardio. And muscle toning. I got fibeomyalgia in my 40's and couldn't do all the exercising that I use to do. Gained a lot of weight. And I don't look good heavy like some people do. I would talk to somebody and if you are getting the nutrients that you need, I wouldn't worry too much, but talk to somebody who can make sure that you are healthy. That is what is important.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Forum Moderator

Date Joined Apr 2005
Total Posts : 15070
   Posted 6/22/2010 8:14 PM (GMT -6)   
Why don't you try drinking Ensure Plus or something along those lines.  There are products out there that are healthy and help to put on weight.  They have been around for years.  It's wonderful that the Savella is helping you so much with the pain and I'm glad you lost the weight.  That makes you healthier all the way around.  So, since you want to stop this downward trend, find some products that will help you. 
As far as how many views there are, many of those views are from people that aren't members.  They are lurking and reading posts and they can't respond since they haven't joined the forum yet.  So, don't bother looking at that.  Your questions and comments are valid and I hope you get the help you are looking for! 
Be sure to let us know what you do.  You can also google "how to put on weight" and you might get some good ideas that will work for you, too.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Mar 2009
Total Posts : 178
   Posted 6/27/2010 5:16 PM (GMT -6)   
I can not drink ensure. It has milk in it. and additives. I do not touch additives they trigger my fibro. I am 34. I went away for a funeral and lost more weight while out of town. Gee just what I needed.
fibromyalgia, bipolar, ptsd, depression, anxiety
cymbalta, abilify, triliptal, lorazapan, lyrica, flexoral, ibuprophine.

New Member

Date Joined Jul 2010
Total Posts : 10
   Posted 7/28/2010 6:49 PM (GMT -6)   
Hi moonmatrix,

I just saw this post and wanted to comment. I'm new to the forum, so sorry I'm late to the discussion.

Wondered how you are doing another couple of months down the road, and 2anted to let you know, I am having a similar problem and I empathize with how difficult it can be. As a former anorexic, long recovered, I know that getting too thin is a bad emotional trigger for me. I get obsessive. I just do. I also know the weight at which I'm physically healthy, and I know that when I get too think, or don't eat properly, I don't feel as well. I started methotrexate about 6 months ago and I have lost nearly 30 pounds. I am not so thin that people would comment on it, or think I had a problem, but thin enough that I feel uncomfortable and unhealthy. The methotrexate killed my appetite and left me with gi problems, even after switching to injectible, that are making it difficult for me to maintain a healthy weight and it is quite upsetting. The drug also dramatically improved my RA symptoms, so I'm not anxious to jump to an even more unknown biologic when this is working.

Hope you have found a solution.

Judy in CA
Regular Member

Date Joined Sep 2011
Total Posts : 29
   Posted 9/13/2011 6:46 PM (GMT -6)   
finding this old post
I've got 60 pounds to lose.
lost 40 from C-Diff and 20 gained 7 months after stopping smoking
gained on Savella the first times during these 7 months..........
now on it 4th time and so narcosis and don't want to eat but and not eating at all and still gaining weight
there is no constant with any of these drugs.
Are you guys still on this forum? and how are you doing now. your posts were in 2010.
thanks Judy

New Member

Date Joined Jan 2013
Total Posts : 1
   Posted 1/18/2013 4:11 PM (GMT -6)   
Hello! I'm new to this site.  I've been reading all the post and I can relate to half of them. I've been on Savella since October 2012, I was so happy to finally take something that worked for my fibro., now "not so happy" I'm in a flare-up (STRESS) and it's not working so great" I'm losing weight and tired of the comments from friends and co-workers as well. 
Have been on every med for fibo. now this weight lost. Ugh!!!! confused

Regular Member

Date Joined Jan 2013
Total Posts : 34
   Posted 1/18/2013 8:01 PM (GMT -6)   
Hi I'm really sorry to hear how much weight you've lost, as someone suggested maybe you should check your thyroid for overactivity.

I Have been on Savella for about five months now and it has done the complete opposite to me. I have gained so much weight on it its disgusting! I must agree that it is a great help for the pain.

I hope you found a solution to your problem and that you're doing well...please stop by and update us.

New Member

Date Joined Mar 2013
Total Posts : 2
   Posted 6/16/2013 12:05 AM (GMT -6)   
Yes, I can see that too much weight loss can be bad for someone as well as gaining, but I have also experienced the opposite effect. Having been over weight for the last 14 yrs of my life I had finally made it down to 165 lbs from a high of 225 lbs. So, just losing this weight has been beneficial to help me feel better by just not have all that extra weight bearing on my joints and muscle. However, since I started taking the Savella in Feb '13 , I have gained almost 20lbs despite no difference in my type or quantity of food intake is very frustrating. I have even been getting more physical activity. Still gained the weight. Any suggestions? I'm actually thinking of dropping the Savella, since I haven't really felt much difference in pain relief. So, I can't justify the adverse events plus cost vs. the benefits. Its good to hear that someone is getting some realistic benefits from the medication.

Regular Member

Date Joined Jun 2013
Total Posts : 29
   Posted 6/18/2013 8:34 AM (GMT -6)   
Hi, I am sorry to hear about the weight loss. I am experiencing something similar on cymbalta and I struggle to eat as well.

I also eat no processed foods, little meat, very low dairy, and low gluten based products.

I eat a lot of fruit and veggies- not sure how your appetite feels about those- My appetite seems to be okay with eggs, fruits, soy milk, sometimes steamed veggies.

My husband is Indian so we eat a lot of indian foods- there is pre-packaged Indian food at Indian stores that are made with no preservatives. Indian food usually has a lot of fiber (beans, chick peas, lentils) and veggies (onion, tomato). Your appetite may not like spices though- mine sometimes doesn't.

Here is what I eat throughout the day (and doing so just in case any of it sparks your interest)
-Breakfast is either an egg or skinny oats (banana, oats, chocolate, nuts) or smoothie or cereal (there are a few that are low gluten that are very low in the processed foot front)

-Snacks- apples, oranges, banana, carrots, celery with peanut butter (US has some nonprocessed ones and I have a recipe to make my own), nuts, frozen berries blended with yogurt (either dairy based or there are yogurts that are made from almond milk, coconut milk, or soy milk), chocolate soy milk (unfortunately a bit processed)

lunch/dinner- smoothie (frozen berries, banana, almond milk, green tea sometimes, spinach), salad, indian food (rajma-bean dish, chana masala- chickpea dish, daal-lentils) and rice, fish+rice, occasional chicken with light seasoning with rice

You can try online recipe sites so see what peaks your interest and find simple recipes for things. I like They have categories to chose from so if you want vegetarian you can search through vegetarian recipes. Also, crockpot recipes are usually pretty simple and low maintenance.

Another good site is 100 days of real food ( which has some recipes you might like.

My husband found the best way to get me to eat is to put the food in front of me, sit down across from me, and start talking, and all of a sudden 1/2 of the food is off my plate because he distracted me and I ate without thinking.

I know your struggles and I hope this helps. Eating non-processed is very hard in a world filled with processed foods. Also, eating non-processed can take up more time which is hard with fibro. However, I am pretty happy with my routine. The stuff I eat/cook isn't too involved and works for me.

I hope you find something that works for you.


Post Edited (shay91087) : 6/18/2013 7:40:50 AM (GMT-6)

Veteran Member

Date Joined Apr 2008
Total Posts : 1811
   Posted 6/18/2013 9:15 AM (GMT -6)   
It sounds like you are quite sure the weight loss is from the meds, but is that for sure? Could there be any other factors? On another thread, someone mentioned losing lots of weight being related to celiac disease. I believe there are other conditions causing weight loss. You probably checked out other sources, but I'm just bringing this up in case you haven't.

When I had chronic diarrhea many years ago, I lost lots of weight--super skinny. I had to take Elavil (amitriptyline) for several years, and that caused me to gain weight. I wonder if your doctor would consider your taking something like that? Just a thought. I hope things are better soon.
"Let us always meet each other with a smile, for the smile is the beginning of love."
Mother Teresa

New Member

Date Joined Aug 2014
Total Posts : 2
   Posted 8/9/2014 8:01 PM (GMT -6)   
Has anyone heard about SevenPoint2? My friend sent me this link about a lady in the US with fibromyalgia who lost 5 lbs and had less pain and more energy after only a week.

Regular Member

Date Joined Aug 2014
Total Posts : 113
   Posted 8/11/2014 6:45 PM (GMT -6)   
2004 I weighed 158ish kgs had 42 inch waist.
now 65kgs 32 inch waist.

I have extremely slow bowels.
I also get thrush in my mouth throat.
if it gets too bad I feel it damages stomach lining and upper intestines.
this leads to food not being digested properly.
makes Small Intestine Bacterial overgrowth Syndrome.

supposedly there is a hydrogen breath test with lactolose.

I tried no corn products
no weet
no preservitives especially sulphur dioxide 200+

even thought allergy to meat protein through tick bite.
Doctor recons I sleep evacuate bowel.
I don't sleep

toilet seat closed
two washing baskets of washing on seat.

toilet door held shut with rubber ocky strap.
still shut every day

how many of us have really bad oral thrush continuing constantly?

Post Edited (Rickrick) : 8/11/2014 5:50:25 PM (GMT-6)

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