Visit to Pain Clinic a Bust!

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Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 6/18/2010 11:36 AM (GMT -7)   
Not sure if you guys remember me but I posted a while ago about how I was finding it hard to find someone to prescribe hydrocodone for my fibro, that along with Zanaflex is the only thing that seems to help. 
 
I only took, at the most, one a day, when I got home from work and it helped me function.  Believe me - I am not looking for drugs to get high, just want to be able to live a hal-way normal life and go to work every day so I can survive.
 
My Primary went on early maternity leave and her "successor" would not continue with her prescription so I have been to 2 rheumatologists, the ER and a new primary care.  The second rheumotologist suggested accupuncture but I just can't afford it.  My husband was in a car accident back in March and hasn't worked so we are struggling to pay our ortgage and for the meds we both need.
 
This particular rheumotologist that sent me for accupuncture is very nice.  He originally prescribed Tramadol but I can't take that as it makes me so dizzy, I can't stand up.  He could not or would not prescribe the hydrocodone.  He even said that he could tell that i was not someone who would abuse drugs.  He also cautioned me against taking Lyrica or Savella as they are forms of Gabopentin, which I had a problem with about 10 years ago.  I became suisidal after about a week and a half of taking it.
 
So I suggested a pain clinic.  He thought it was a great idea and told me - in sort of a roundabout way - that they would be able to prescribe the hydrocodone for me as he couldn't.
 
Well, the long awaited appt was last Monday.  I had kept a pain diary for 2 weeks, had typed up a couple of pages telling about the oset and history of my fibro.  The nurse spent quite a while with me and asked me what had worked for me in the past.  So I told her, a combo of hydrocodone and Zanaflex.  And I told her about my issue with gabopentin. Well, then the doctor comes in, he was so cavalier about my condition!  He said, what's with this suicide thing?  I was so shocked that he was so rude!  He then suggest I try Lyrica, and I told him my reasons for not wanting to try it.  I also have a severe panic disorder and I do not want to add anything to my mix of meds that will give me any other side effects.  I am funtioning and working now and can't afford to mess that up.  The hydrocodone doesn't give me any lasting side effects and doesn't interfere with my other meds.
 
Well, he did up my Zanaflex to 2 before bedtime, so that was great and has helped but he said he would not prescribe hydrocodone and prescribed Lidocaine patches.  He told me to "put them where they hurt" - Honey, I hurt EVERYWHERE!  Does he have a wet suit made of lidocaine?  He then proceeded to tell me that sometimes Fibro goes away!  Really?  You are a pain doctor and this is what you've seen in your practice?
 
He wants me to come back in a month to see how I'm doing.  I already paid this guy 40 bucks to insult me.  Not to mention that he and the nurse were giving each other little looks during the whole time.
 
I called the rheumotologist the next day, told him what ahppened and asked him if he would prescribe for me and he said, "I can't.  Unfortunately, you'll have to play the game with this other doctor.  Go back and tell him that what he gave you doesn't work and then maybe he'll prescribe."
 
Frankly, I do not want to go back to this insulting and unfeeling man, pay him 40 more dollars and still not get what I need to make me feel better.
 
I can barely move and NOTHING is helping.  I have a feeling that he wouldn't give me the scrip because of the suicide issue I told him about.  This happened 10 years ago, I was on a medication that can cause suicidal thoughts and they went away when I went of the med.  I do not see this as a problem.
 
Really, what is the issue, WHY can't I find anyone to help me?  I am SO tired and sick and tired.  I am now starting to look like a drug seeker.  I have never done any illicit drugs in my 52 years.  I barely took an aspirin until I was 28 years old.  Why is the medical community making it so hard for me to get help?
 
I feel like Elaine on Seinfeld when her chart was marked "diffiduclt" and every doctor she went to had access to it.
 
Sorry, just needed to vent.  Thanks for listening!
 
 
 

kathydownunder
Regular Member


Date Joined May 2009
Total Posts : 447
   Posted 6/18/2010 12:14 PM (GMT -7)   
Hi,
You need to go back and keep going back he will listen to you but you need to keep on with him.
Eventually he will see you need the drugs. It was your first visit when he gets to know you he will feel secure in what drugs you take.
Don't ask for the drug straight up, ask him what he thinks will work, work with him. If he suggests a drug you can' take tel him why you cn't take it. I am seeeing a new Doctor and I am taining him as I think of it in giving me the drugs I need for me to get by on.
For me sleep is my big issue I don't sleep more hen a couple of hours night and never sleep during the day. So WE are tring a combernation of drugs to see what works. On my first visit he didn't give me anything I needed. But now he just loks at me and asks what I need.

Kathy
Fibromyalgia, chronic fatigue, migraine, IBS, menopause

Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 6/18/2010 12:29 PM (GMT -7)   
Thanks Kathy - I appreciate the encouragement. It's just frustrating that I have to "play a game" as suggested by my other doctor. It shuoldn't be like that. I have taken hydro in the past, it worked for me, my doctor prescribed 2 a day for me and I only took one so my scrip lastest at least 2 months. But you're right, he doesn't know me, but I don't know him either! What if I don't like him (I hate to say that I already don't after he was so rude to me). I guess I'll give him another try. Thanks for the advice!

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 6/18/2010 1:34 PM (GMT -7)   
I wouldn't go back to someone who doesn't believe in fibro and has no idea of how to treat it. I'm not going back to my pain doc that said he never heard of muscle spasms and apnea from gabapentin, even though I did find it in reputable sites.

I don't think Savella is a "form" of gabapentin. The molecules don't appear to have anything in common. Lyrica though, is related to gabapentin. I'm not a chemist, so maybe someone can post what the two get metabolized into.

The blinded studies (using fake puncture sites) I read in a couple of journals said that acupuncture doesn't work. I suspect that for some patients there is a benefit, but it may be placebo. After getting stuck with needles that were supposed to be acupuncture size for neuro studies, I'm not going with that!

Pain docs are a dime a dozen. Some call themselves rehab, some are anesthesiologists, neurologists, physical medicine, spine and orthopedic doctors, physiatrists, rheumatologists .... I didn't get any help from ortho and neuro guys. My podiatrist figured out my foot pain was from my spine. The rheumatologist was the best, but there are very few of them because it's a poorly paying specialty requiring two residencies.
Alcie
 
 


Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 6/18/2010 1:43 PM (GMT -7)   
Thanks Alcie - I'm just not sure anymore - this has been going on since mid-March and as I said, I'm just tired. My psychiatrist told me that I can't take Savella because of the other meds I'm on for my panic disorder so even if it isn't gabopentin, I still can't take it. The best doctor was my Primary and she should be back after her maternity leave in September but I have a feeling (a very strong feeling) that her partners in the [practice will not want her prescribing narcotics anymore. They cut off anyone she had prescribed for, cold turkey. Luckily, I was not that kind of physically dependent on them so I jsut had paina nd not withdrawal. I appreciate your feedback!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 6/18/2010 2:38 PM (GMT -7)   
Suz, rheumatologists should be able to prescribe what is needed.  I think the problem is there is a moderate interaction between Hydrocodone and Zanaflex.  That's probably why no one wants to prescribe these for you. 
 
 
I wish I had a answer as to how to help but taking these two together might not be a good idea, even though they worked for you.  There are other things they will probably try that might help you.
 
As far as your pain doctor goes, I don't think I'd waste more money on him...especially since he told you that fibro goes away.  If someone's "fibro" went away, they most likely didn't have fibro to begin with.  You will notice, in the link below from the Mayo Clinic fibromyalgia clinic, that there is NO mention that fibro ever goes away.  This is a good article, by the way.
 
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40593
   Posted 6/18/2010 3:14 PM (GMT -7)   
I have run into a situation too. My doctor is retiring. I have to call the medical records department on Monday and get hooked up with a different doctor. I don't think he is going to prescribe the norco that I am use to taking. My doctor gave me two refills on it, but that is only going to take me through three months. I don't know if I should start tapering off now so that I don't have to go cold turkey. I am just thinking this from a comment that my doctor made about would I take neurontin? So right there tells me that he probably wont prescribe the norco. At least I have three months to get ready for this. My doctor also made the comment that me and the new doc might not see eye to eye on things. So I really think I am in trouble. But a friend of mine started taking savella and it is working for her, but she still gets methadone. She has a doctor that is kind of far away though. So wish me luck in three months. I am scared that they will make me go off of my meds cold turkey too.

I am so sorry for what you are going through right now. Luckily you were only taking one a day, that is easier to go off of because that is a low dose. My heart goes out to you as I am going to be going through the same thing. I am going to try not to worry about it though. That only makes my pain worse.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 6/18/2010 3:56 PM (GMT -7)   
Suzboop,
I'm so mad after reading what you're going through! That's just plain wrong. What kind of person calls himself a pain doctor and then won't even listen to his patients about THEIR pain? Is there anyone else you could go to?
'
  Achey 
 
    Diagnosed: Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 6/18/2010 4:01 PM (GMT -7)   
It is just a game, not a fun one. I have other stuff besides fibro, I went to pain clinic and it was a few months before he gave me hydrocodone. I had to do alot of drug tests also, and still do. It is this bad because fibro and some other diseases and disorders are invisible. There are many people who go just looking for a high or to sell the drugs they get. It isn't right that we are treated this way, but I can understand why. These drs pay alot of money for their education and in some states they are watched quite closely. If they were easy, they could lose thier license. I had a primary that gave me pain med for 5 yrs before she went out for her own health problems and it took a year to find drs to help and send me to the right places. You really don't want an easy one, they may give you more than needed and then you would be left in the cold when they get caught. Ask if he has any other methods of pain control, I had to go through more PT and steroid injections before I got anything else. Try to be patient and keep a diary for the whole month you are waiting. Try to think of how long you have already waited and give him his month. He is a pain specialist, so he is there to help with pain. He just needs to make sure you are a real pain patient, think of all the others he gets that aren't and put yourself in his place. Sorry, but it is a process.
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 6/18/2010 4:35 PM (GMT -7)   
I'm sorry for your pain and the ordeal with the doctor. I just wish people would treat one another with compassion and understanding. With the world we are living in, there are ones that take advantage and it affects us all.

Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 6/19/2010 7:52 AM (GMT -7)   
Thank you all for your understanding - who knows better than you do what this merry-go-round is like?  I do understand the doctor's side but they obviously don't undertand mine.  I just can't afford to go to another doctor.  My copays are too high and I can't do PT because that would be 40 dollars a visit.  I know money isn't eveything but it would sure help me now, to be able to get the care that I deserve.
 
Karen - I wish you luck - it's a pretty scary feeling but at least you can prepare yourself (not that it will help your pain) - can your doctor recommend someone that you can see eye-to-eye with? 
 
Sherrine - thanks for the articles - I'll check them out.
 
Thanks all!

confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 6/19/2010 6:38 PM (GMT -7)   
I just went back and read the post about the hydrocodone and zanaflex, I take both of these. The zanaflex only at night (will take one if i'm really bad and would rather go to sleep). I didn't know there were interactions between them. I'll go look at that.....
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


deb in indiana
Regular Member


Date Joined Aug 2005
Total Posts : 387
   Posted 6/19/2010 7:43 PM (GMT -7)   
I take them both togther also by the same doctor
DEb

Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 6/20/2010 7:01 AM (GMT -7)   
It looks like the interaction is drowsiness and since I only take both of them at night - I think it should be fine. I think I read the articel correctly....

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40593
   Posted 6/20/2010 8:53 AM (GMT -7)   
Suzboop,

Thank you for your compassion. I might try a fibro specialist, but she is 50 miles away. I have a friend that sees her and she is on methadone, though I wouldn't want to take that, but at least she would probably let me keep my norco. The thing is that the fatigue is harder for me to handle than the pain, so as long as I can stay on my adderall, I am fine, but I have a different doctor that prescribes that, my psychiatrist. I dont think that he would prescribe norco though, but he might. He might even be able to suggest a doctor.

Either way I am going to prepare myself for the withdrawal symptoms, don't want to go through that in a hard way. Thanks again.

Hugs, Karen


  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 6/20/2010 9:09 AM (GMT -7)   
You read the article correctly.  They both cause drowsiness so you would have to be so careful driving and such.  But, if you take them at night they would probably help you sleep.  Why not mention that you take them at night.  Perhaps you would get a better response.
 
Karen, you are just guessing if the new doctor will honor the old doctor's scripts.  Most doctors do...at least that has been my experience.  Norco is an opioid med, though, and Neurontin isn't.  Norco is for muscular pain and that's what  you are having.  Neurontin is for nerve pain.  The jury is still out whether or not fibro is a nerve problem so the new doctor might just keep doing what has worked for you.  If he doesn't, I'd sure try to talk him into it.  If it isn't broken, why fix it?!!!  You have gotten relief for quite a while using this and you haven't been asking for higher doses, either.  I'd sure point this out if he wants to take you off Norco.  Also, do you have to go to that specific new doctor or can you make some calls and see who treats fibro patients?  Something to think about.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


upbeat
Regular Member


Date Joined May 2009
Total Posts : 240
   Posted 6/20/2010 1:08 PM (GMT -7)   
I had a similiar experience with a pain clinic. I was seeing a neurologist and she prescribed me hydrocodone, 20 of them would last me three months! She said that she couldn't continue to prescribe it and I needed to go to a pain clinic. The doctor told me at my first visit that they did not treat fibro with narcotics - I felt like saying "then what am I here for!" It took one or two more visits and some medication changes and then they started prescribing it.
 
I think it is more of a test than a game. If you are a drug seeker you are not going to show back up if you don't think they will give you what you want. A lot of times you won't even see the dr anymore, you will see a PA or NP. They are usually a lot nicer anyway! I hope it works out.
Fibro dx 2004, RLS, raynauds
Ultracet, Robaxin, Neurontin, Lidoderm patch, Vit D, CoQ10, Mag


confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 6/20/2010 2:37 PM (GMT -7)   
When my pcp gave me narcotics and she went out for health reasons, I could not find a dr that would give me anything. I didn't really shop around, but most of the drs here will not. I had to go off cold turkey and it was a little over a year before I got sent to the pain dr. Well, all those drs that told me I would be in pain until I quit the hydrocodone were wrong. The pain intensified and did not get any better, when I started the hydrocodone again it did not help as much as it had before. I don't ask for anything else, I get steroid injections in my spine and SI joints and just suffer through the rest. I figure what ever they give I would get tolerant of and need something stronger and then be really screwed if I had to change drs because they sure would give out strong stuff. The hydrocodone usually knocks it down 1 level, but going from 8 to seven doesn't really help. I might add I lost my job and it would have been nice if someone would have had enough compassion to help me before that happened. I am still not working and I would really like to at some point.
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40593
   Posted 6/20/2010 3:03 PM (GMT -7)   
You are right Sherrine, and that is what my husband says, I wont know until I see him. I was just taken off guard when I found out the the doctor was retiring, I didn't ask any questions, such as if this other doctor even believes in fibromyalgia. But I will take this one day at a time, but I am still going to try to cut back on my meds just incase.

I have to take this one day at a time, just like I tell everybody else to. I call tomorrow to get our records transfered to the new doctor. So one thing at a time and no anxiety. Anticipatory anxiety can really mess a person up.

Thanks,

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 6/21/2010 7:08 AM (GMT -7)   
Karen, maybe you can make an earlier appt long before you run out of meds and see what this new dr is like. Ask the new one if he/she will continue your current treatment and if not what the plan would be. My recent pcp is returning to the service and I haven't been since he left, I know someone took his place, but not sure who. I don't get any reg meds there, but will plan a visit soon as I may be looking for another dr also. I went there because of the other one closing up shop, wish I could find one that will stick around. I just heard on tv that drs were turning Medicare patients away, what a mess. I do have private ins right now, but that is still scary for those with Medicare.
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 6/21/2010 7:25 AM (GMT -7)   
I prefer to not take narcotics because it's too easy to get dependent on them. But even gabapentin has an awful withdrawal. I just got done with that after I realized the muscle spasms in my legs and abdomen were serotonin syndrome.

I've now looked up all my medications using: tramadol and ________ as a search phrase. It was the tramadol that was cousing the serotonin syndrome when combined with the gabapentin. Tramadol and just about anything, even more than two pills a day of itself can cause it in a sensitive person, like some of us fibromytes.

I'm also one of those on Medicare, and although I have a decent supplement, I've found the PCPs aren't accepting new patients because of the 21% pay cut being imposed.
Alcie
 
 


Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 6/21/2010 7:38 AM (GMT -7)   
Suz,
 
I'm really sorry that you are having to deal with the and go thru this. It's so wrong. If it were me, I would not even bother with this doctor anymore, sounds like he is arrogant and not taking you for face value.
I don't understand why your rhuemy won't get you some relief. If the combo of meds interacts, then why can't they try something else? If you need a muscle relaxer, there are others out there right?
I just am really starting to have a bad taste for pain mgmt doctors. Don't get me wrong, I know that there are several people on here that have good ones, and that is great, but it just seems like from hearing your story and mine not too long ago, some just dont' take Fibro for what it is. I hope that you hang in there and continue to search for a different doctor that finds you some relief soon!!!
 
Gentle Hugs,
 
Monica
 
 
Hopegirl... 
 
Taking it one day at a time.... 


Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 6/24/2010 10:43 AM (GMT -7)   
Thanks everyone - for your compassion and feedback.

I went to my psychiatrist today (I've been going to him for over 5 years and I totally trust him!) I told him about what's been happening and he asked me if I would try Cymbalta as he thinks it will help me. I was under the false impression that it would mess up my Lexapro but he says that it most likely will not. He wants me to start out with 30 mg at bedtime for 2 weeks and then if I'm tolerating it, then go up to 60 for 2 weeks and then he'll prescribe it for me. The only thing that I see wrong with this is that it will probably be another $50.00 copay per month so that's kind of scary. Hope it works for me! Also - he gave me a months worth of samples.

My sister takes it and if she take the 60 mg - she gets manic but the 30 is okay for her.

any advice?

Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 6/24/2010 11:45 AM (GMT -7)   
I am waiting to hear back from my dr. to see if he will give me pain meds. I saw him yesterday and asked for pain medicine and he put me on predisone for my costo. I don't undersstand why dr.'s wont give out pain medication.
Fibromyalgia,arthritis,raynauds syndrome,gastroparesis,IBS,depression,severe costochondritis
 
God and Family is my life.


Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 6/24/2010 11:59 AM (GMT -7)   
They are running scared because they are so closely monitored by the government. I think the government should be worrying about pushers standing outside of school yard instead of sticking their noses into the lives of people who REALLY need pain meds. It's really a sad state of affairs.
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