Savella making me so nauseated

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CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 6/21/2010 9:22 AM (GMT -7)   
I don't understand why all of a sudden I am getting nauseated again. For the first two weeks, I was nauseated but then it went away. Now, it's back again and worse than before. I stay nauseated for hours. I tried taking it before bed, but the nausea wakes me up. Plus, it seems to not be working as well for my pain. It was working so good, and now this after two months? I am getting really frustrated. I called and talked to the nurse and asked about cymbalta. What do you guys think? Is cymbalta better than Lyrica? I am worried about trying Lyrica with all of the side effects it has. I am very sensitive to medication and usually get most of the side effects. Just very frustrated right now.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

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sotiredoffibro
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Date Joined May 2010
Total Posts : 1556
   Posted 6/21/2010 9:43 AM (GMT -7)   
Hi cajun, just wanted you to know I tried cymbalta once but for me it made my exhaustion worse than what it already was. Like you I am super sensitive to medications. However we are all diifferent in what we can take and what we cant so you might want to try the cymbalta. I have never taken savella so dont know how I would react but it sure doesn't sound like fun.
Hope you feel better soon.
Shirley

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 6/21/2010 9:54 AM (GMT -7)   
So sorry that you are feeling nauseas on the Savella. I always take mine with food
and never had a problem with it. I tried Cymbalta before I was on Savella, it made me
so dizzy and really sick to my stomach...only tolerated for three days, You know what
they say though...we all tolerate meds differantly. Hope you can find something that
works well for you!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 6/21/2010 10:17 AM (GMT -7)   
Thanks for the replies. Taking it with food at first, did help but now it doesn't anymore. I always make sure to eat before I take it. I have no clue what's going on. I haven't done anything different.

sotiredoffibro- Ugh! I cannot take being even more tired than I already am. I have RA too, so that by itself makes me so tired.

Anyone taking Lyrica? Please tell me your experience with it.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


MsBunky
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Date Joined Jan 2010
Total Posts : 1097
   Posted 6/21/2010 11:45 AM (GMT -7)   
Hi CajunGrl,

I'm sorry you've having problems with nausea and the Savella. I haven't tried it before...I started with Lyrica and then switched to Cymbalta. I had a lot of problems with the Lyrica...severe weight gain (about 30 lbs in 2 months and gaining, blurry vision (and I work in front of a computer), dizziness and ocular migraines.

My doctor took me off that and prescribed the Cymbalta instead. She warned me I might experience severe nausea for a few days and she was right. For three days, I was so sick....no vomiting thankfully as I can no longer physically vomit due to a surgery I've had, but I couldn't move without feeling horrid. On the morning of day 4, imagine my surprise when I woke up and felt just fine! The nausea was completely gone. I had good results with the Cymbalta for pain relief from the Fibro and then it slowing started not working well, so my doctor prescribed another drug for me that would work with the Cymbalta, and it did. I have definitely had improvement in my overall pain levels, so that's good news. We still don't have any answers regarding what's causing the pelvic pain, but we keep trying things. Finally, I'm now just waiting to see a surgeon about my hip

I would say "try the Cymbalta and see what happens". I've had no brain zaps while on it, so that's a plus too.

Good luck...hope it all works out for you.

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/21/2010 12:04 PM (GMT -7)   
Msbunky,

Thank you for replying. I can take the nausea for a few days, but not every single time I take it. I'm glad it worked for you. What medicine was added with Cymbalta that helped you? Did you gain weight on cymbalta? I already have alot of weight to lose as it is. Oh...and I definitely do not need the headaches that come with the Lyrica. I already get migraines every month. They are really severe to where I have to lay down for the rest of the day. I get nauseated and cannot move. I wonder if the cymbalta would ease the headaches since it is an anti-depressant?
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 6/21/2010 12:08 PM (GMT -7)   
Hi Cajungirl,

I am sorry that the savella did not work for you. That is really too bad. But different meds work differently with different people. I just said "different" three times. lol...

I am like you. A medication will work fine for a couple of months, then I get the side effects. I am very sensitive to antidepressants in that way. But it is so disappointing when that happens.

I hope that the cymbalta works for you. Don't give up hope, there will be something that will help you. It may just take time to find it.

I hope that you are having a better day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/21/2010 12:12 PM (GMT -7)   
LOL Karen! You are funny:) I feel horrible having to come back here and say that the Savella failed after I was doing so good. At the beginning, it was awesome and I had my life back for a while. Oh well, I guess that's life.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 6/21/2010 12:20 PM (GMT -7)   
I know what you mean, I have been disappointed so many times with medications and the side effects. And like you say, when they worked for a couple of months so well. Then poof, here we go again.

I hope that your day gets better hon.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 6/21/2010 12:39 PM (GMT -7)   
Cajungirl - I hope the 50k vit D is not a daily dose. The toxic dose is 10k daily. I presume that was a very temporary thing.

MS Bunky - tramacet is something to watch for side effects. Tramadol causes serotonin syndrome when taken with some of your other meds. The first symptom is muscle twitches or spasms, particularly in the legs.

I'm glad to see posts about Cymbalta and Savella. Since I'm sensitive to just about everything, I think I'll avoid these. I too have had the stomach surgery and can't vomit. I've been reading the forums hoping to come up with something to replace the gabapentin which helped with the pain but gave me serotonin side effects. Coming off that one cold turkey was pretty bad, but it's done now. I just can't sleep with the pain even with diazepam or temazepam or Elavil.
Alcie
 
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/21/2010 12:52 PM (GMT -7)   
Alcie,

the 50,000IU is once a week. i should have put that. I only have to take it for three months, then I start 1200mg a day.

I forgot about serotonin syndrome with Cymbalta. I am on Tramadol. I guess I will have to try Lyrica instead. i am really worried about this medicine.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/21/2010 1:29 PM (GMT -7)   
Well, the doctor wanted to switch me to Lyrica but I got to thinking and I think I am in a bad flare right now, so I will stay on the Savella for another week and see what happens. I am just too terrified of the side effects from Lyrica right now. Anyone know what else I can do for the nausea? Anything natural I can take?
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4646
   Posted 6/21/2010 3:00 PM (GMT -7)   
Cajungirl - Lyrica, like gabapentin can cause a reaction when combined with tramadol.

I found that even 2000 units of D a day was not enough, even on top of what I was already taking in calcium and vitamin pill. According the the report I read on Medscape, you need 100 units of D for every 1 ng you are low. For my 18, that meant I needed 4000 units a day to get up to 58, in the lower end of the new normal range. Of course that was at the end of winter. I only take half when I get out in the sun.

Some people say they get nausea relief from ginger. I can't take it because it has sulfite. But then I can't take much of anything. I would ask the doc for Zofran but DON'T TAKE THAT WITH TRAMADOL. Separate the doses by a few hours or you risk serotonin. I had that problem when I was getting radiation "therapy" for breast cancer.
Alcie
 
 


hisfaithful1
Regular Member


Date Joined May 2010
Total Posts : 167
   Posted 6/21/2010 4:22 PM (GMT -7)   
Savella did the same thing to me, it made me really nauseas. Now I'm taking tramadol and flexril. I'm doing better overall with this combination. I can take 2 flexrils a day, but I only take one at night because it does really relax me, and I'm scared it will make me sleepy all day. The only thing is its hard to wake up sometimes, makes me feel groggy. I'm a light weight also when it comes to medication.
 
This morning I didn't take a Tramodol right after I got up, I wanted to see how I would feel. I guess it was dumb, I felt awful, and it got worse as the morning went on. Zero energy and achy. about half an hour after I took one I stared feeling better. Now I don't know if it was cause I'm now dependant on this med. or it was just going back to how I felt before I was put on it.   eyes
I'm am thankful these 2 meds. help. I hope you can find something that you can tolerate too. Let us know.
 
Oh, and my husband takes Lyrica along with real strong pain meds. He had to cut the Lyrica in half because it made him nod off all day long. and he has gained about 20 pounds. He takes it for nerve pain. Of course as some of the others have said, meds. affect everyone different. I guess you don't know till you try. I pray you find relief soon.  
 
God bless,
 Debbie 

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/22/2010 4:31 PM (GMT -7)   
Debbie,

Thanks for posting. I'm still nauseated from yesterdays dose and I've actually only been taking one pill a day, which is not good. I just cannot take the nausea plus it seems to be making me real tired now too, when before, it gave me energy. It's all frustrating. My doctor prescribed me phenergen for the nausea. I guess I will have to take it.

I'm glad that you found two medicines to help. I'm sorry your husband has to deal with that terrible pain. Is the Lyrica helping his pain at all?
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 6/22/2010 5:53 PM (GMT -7)   
CajunGirl,

My doctor added Cesamet to my Cymbalta and it's been a good addition for me. The meds I'm on currently seem to be in the right balance for my needs and I'm generally able to keep my pain to a 3 or 4 on a daily basis. I know there's a ton of controversy over Cesamet (Nabilone) but it works for me (and I think I have less of a problem in Canada with getting this drug than others might in the States. My doctor has no fear in prescribing what works for me, whether it's an opiate or something else).

Alcie, thanks for the note re: the Tramacet and the other drugs I'm on. I am well aware of the potential negative interaction with the various meds I'm on, but my doctor and I have weighed the risks against the benefit and continue to do so. The sweating is the worst thing I've experienced (along with the twitching/tremors), but I can manage it. I get good pain relief with this combo, so it's worth it right now. My hubby keeps tabs on anything "weird" I might complain about, but so far, so good. Thanks for your information and concern though...I really appreciate it!

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 6/22/2010 5:57 PM (GMT -7)   
Cajun, I'm sorry you are having these problems.  I couldn't stand to be nauseous either.   Also, sometimes these meds will work at first and then stop working for you. 
 
Even though Savella and Lyrica are approved by the FDA for fibro, there are other things out there to help with pain and fatigue.  You just have to find the right combination.  If you really don't want to take Lyrica, then don't!  My doctor has suggested both of these and I'm not willing to take them.  That's when I started with some supplements and exercise and that has helped me.. along with over the counter pain killers. 
 
Just keep trying different things and you will hit upon what works best in your body.  Most have been doing that.  I know you will find the correct combination of meds and supplements to get control of your pain.  We're here for you.  Let us know what you end up doing.  We really do care about you.
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/23/2010 11:37 AM (GMT -7)   
MsBunky- It's great that you found something that works for you. You seem to be on top of being aware of any side effects the medicine may cause. I know exactly how you feel because I'm slowly getting to the point where I truly have enough.


Sherine- Thank you so much for your post. I do know that you all care. I'm hoping I find something that works soon. It was nice while the Savella worked. I got to get out and enjoy life for a bit and it happened just in time for me to move. I will keep you updated on what I decide.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum

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