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SurvivingSomer
New Member


Date Joined Jun 2010
Total Posts : 5
   Posted 6/25/2010 7:17 PM (GMT -7)   
My name is Somer. I'm 34 yrs. old. I survived breast cancer at the age of 28. Since then, I've steadily lived with aches and pains that have continued to worsen. I was diagnosed with fibro. more than a year ago. I have recently also been diagnosed with Hashimoto's Thyroid Disease. I find myself exhausted daily and in pain. My pain is so random. I typically have pain in my upper shoulder/back area. I also have this weird thing I wanted to know about. My skin hurts. It feels like I have a fever, but I don't. Anyone have that? Also, what are you doing to manage yours? I've tried Lyrica and Cymbalta with no results. I take pain meds on bad days, but hate taking them. Have you found a diet or exercise routine that works? I have a 7 yr old daughter and I teach 2nd grade. It's hard for me to teach with the pain and exhaustion, but I muscle through. Then, when I get home, I'm dead tired. Just looking for some answers to help me manage this. I wish my husband understood more as well. He's lived with my illnesses for 6 years now. I'm sure he's tired of it!

Thanks...

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 6/25/2010 7:47 PM (GMT -7)   
Welcome to our fibro family Somer. You are indeed a survivor and one strong woman
to battle breast cancer. When it comes to fibro meds you will find that we all tend to take
a variety of differant drugs, We all tollerate things so differantly.

I tried Cymbalta but it wasn't the med for me. Savella has been helpful, I've been on it
for almost a year and I take Flexeril (cyclobenzaprine) for flares.

Exercise is a must for me, I walk daily. If you don't exercise you will hurt all the more.
Relaxation therapy is something I do on a daily basis...deep breathing exercises and
meditation. Stress adds to pain so I try to keep the stress level as low as possible.

Heat is a fibromites friend, many of us use bedbuddies( microwave rice bags). Long
hot showers or soaks in a hot bath help.

Many of us were found to have a vitamin D deficiency, I was tested and was very low
and was prescribed a high dosage until my levels were up. Being deficient can cause
more achiness.

Be sure to check out fibro 101 second thread, page one. You will find a wealth of great
info for the fibromite. You will find the "spoon theory" there, perhaps letting your
husband read it might be helpful. It is hard for others to truly understand because they
don't feel our pain, fatigue and deal with the fog, that is why this forum is so great.
We do understand! I'm glad you have joined us and hope you continue to post. We care!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 6/26/2010 12:17 AM (GMT -7)   
Welcome Somer.

So glad you beat the cancer, that is wonderful.

I have heard of others having the skin sensitivity. I have tried Lyrica and it didn't help. Flexeril has helped me in the past but knocks me out.

I have just recently started doing some exercises. I learned the hard way not to start out doing too much too soon, sprain my knee. Start out slow for sure.

I suffer with depression also. Bought my husband a book about depression. He read most of it. It did help him understand more about what I was going through.

I hope that you are able to get some relief. Rest when you can.
Fibromyalgia,arthritis,raynauds syndrome,gastroparesis,IBS,depression,severe costochondritis
 
God and Family is my life.


sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 6/26/2010 8:48 AM (GMT -7)   
Hi Somer and welcome to the boards. I am so sorry you have had to deal with so much at such a young age. I have had fibro for a very long time and with the help of my doctor I did manage to continue working till I was 50, but then the fatigue finally got to be too much and nothing was getting done here at home. I would come home from work and that would be all I could get through in the day.
As far as skin sensitivity I feel that mostly when I am laying down. Sometimes I wonder if the story from the princess and the pea, might have had fibro. lol It can be very annoying at times.
I have been keeping myself busy here at home with cleaning up the mess that has accumulated over time. I do it at my own pace and take breaks when I need them.
Again welcome to the boards
Shirley

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 6/26/2010 8:50 AM (GMT -7)   
Welcome Somer.  You certainly are a strong woman to have survived breast cancer, that's awesome!  I myself have been living with Fibro. for over ten years now (I am 37).  I at this point am not on any meds except for some Advil and I do take supplements.  When I can I do exercise but for me that can make things worse.  Have you tried any supplements?  I take fish oil on a daily basis which is good for inflammation and I do think it does help.  I am also on a liquid Calcium/Magnesium, sublingual B12, D3 and I take a probiotic everyday.  For me this combo seems to work fairly well.  The link at the top of the forums on the fibro information has alot of great suggestions.  I am glad you found this forum as I think it will really help.  There is so much support here.  I too have had issues with my hubby understanding all of this.  But it seems as time goes by that gets better.  Keep us posted on yourself and soft hugs to you!
 
 

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 6/26/2010 9:07 AM (GMT -7)   
Malic acid is my course of treatment along with prozac, calcium with vitamin D.

Malic acid (3200 mg per day, 1600 in am & pm) is necessary for completion of the Krebs Cycle in the mitochondria of our cells where energy is produced by the conversion of glucose to ATP. Without the malic acid we have a build up of by-products that lead to muscle pain and fatigue.

Prozac is an SSRI (selective serotonin re-uptake inhibitor) which helps us to utilize our own serotonin in our brain without burning through it too quickly. Serotonin is necessary for mood regulation, circadian rhythms (sleep cycles), pain perception and a bunch of other things I can't remember. Lowered serotonin levels have been linked to increased pain, difficulty with sleep, depression and increased appetite for carbs. (Carbs help us produce more serotonin.)

Vitamin D and calcium is for my osteo and to (hopefully) help with neurotransmission of impulses to the muscles. Some of us have found some relief with this supplement and I figure "Any port in a storm!" so it was worth a try. Hope this helps.
~ Jeannie
Moderator for Fibromyalgia and Diabetes

Into each life a little rain must fall... followed by large hail and damaging winds!


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 6/26/2010 9:35 AM (GMT -7)   
Hi, Somer, and welcome!  I'm so glad you found us and joined in.  I, too, have the shoulder and neck pain all of the time.  Yes, many here have the tender skin, the feverish feelings too.  Check out Fibro 101...the second thread on the forum...and there is a list of symptoms for fibro and you will probably see yourself there!  We have a lot of crazy things that happen with this illness. 
 
I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements, and vitamin D3 to help with pain and fatigue.  There are links in Fibro 101 about the malic acid/magnesium and vitamin D3 supplements and how they work in the body. 
 
Gentle exercise is important, too.  If you sit or lay too much, you will be stiff as a board with fibro.  I walk and swim as my exercise.  I start my mornings by walking my dog for one mile or more.  I do a lot of walking throughout the day, too.  If you have access to a pool, water exercise or just lazily swimming helps.  The exercise does help with the pain for me and it gives me more energy.  There are some good gentle stretching exercises in Fibro 101 that really work and they can be done sitting down.  If you are working at your desk, these can be done pretty easily and will help keep you more flexible.  Gentle massages help me a lot, too.  You want a massage therapist that is trained to massage people with fibro.
 
There is good info about fibro in Fibro 101.  There is a link called Doctors Respond To New York Times Article.  Learned doctors try to explain what they think is going on with this illness so this might be good to print out and have your husband read.  You said he has lived with your illness for six years and that you're sure he's sick of it.  Well, not as sick of it as you are!  He hasn't lived IN pain so he is one lucky fellow!  I think you are doing a magnificent job.  I was a teacher many years ago and that's not easy.  With the grade you teach, you are leaning over desks, and the kids are mighty energetic at that age, too.  I taught 4th grade.  Plus you have a child at home and a home to take care of.  That is a lot and you should give yourself a gentle pat on the back!  Perhaps, you should teach a lesson to your husband.  Tell him you can beat his back and neck with a baseball bat at least once a day and then only allow him to sleep 3 hours a night.  Then you can see how he functions!   turn  
 
I'm happy you are here.  Don't hesitate to ask questions because we are here for you.  Hope to hear more from you soon.
 
Sherrine 


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 6/26/2010 10:38:38 AM (GMT-6)


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40595
   Posted 6/26/2010 12:32 PM (GMT -7)   
Hi Somer,

I also wanted to welcome you to the fibromyalgia forum. I am so happy that you have joined us, but sorry you are suffering with the fibro.

I take adderall for the fatigue. It is a prescription medication that is amphetamine. It really helps. If I weren't taking it I would be in bed. I was in bed for two years when I first got fibromyalgia. It was no fun. I listened to life going on outside without me.

You have been through a lot. You are a survivor though, so I agree, you should give yourself a gentle pat on the back. I am sorry that your husband does not quite understand how you are feeling. On fibro101, there is something called the "spoon theory". Copy that and let him read it. It might help.

I hope that you have a good day.

Take care,

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Southernlady
Veteran Member


Date Joined Jun 2008
Total Posts : 844
   Posted 6/26/2010 12:48 PM (GMT -7)   
Hello Somer and welcome to our fibro family.  I am so sad about your suffering at such a young age, but I'm glad you found a place to come to for hope and understanding.  You will meet wonderful friends here that share your pain and understand when you just need to talk.
 
I have taken Lyrica, Cymbalta and Flexeril, but currently I'm just on  Ibuprofen and vitamin D3.  I don't deal with pain as much as I do the fatique.  We all have different symptoms but actually share a lot of the same problems. Keep in touch.
 
God Bless!
Shannon
Of all the things that I have lost, I miss my mind the most!!!!


SurvivingSomer
New Member


Date Joined Jun 2010
Total Posts : 5
   Posted 6/28/2010 7:07 AM (GMT -7)   
Gosh! You ladies are AWESOME! I can't thank you enough for your help. I'm packing for the beach today. I live in Alabama. Our beaches are currently oily. We are going to PCBeach in FL. and hoping for some gorgeousness there! I'm also nervous about the salt air. Last year was tough. That humidity really made me hurt. I think I may finish each day with a gentle swim to help with the stiffness. I am sure I'll have more questions! I'll check out Fibro101 and see about the suggestions.

You are all incredible! Thanks again!
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