muscle fatigue is too much.

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dorri
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Date Joined Feb 2003
Total Posts : 1876
   Posted 6/27/2010 11:49 AM (GMT -7)   
I've been through a lot of stress this year, supposedly good stress but still. 
We will be grandparents for the first time,  with (twins) and a single within months of each other.
 
We bought a house and are in the process of finalizing the sale of our house. 
I can't function very good.  I 've been packing little by little but it's like someone took the life out of my muscles, they ache just a little, but they are so fatigued that it feels extremely abnormal.  I go to sleep exhausted and wake exhausted.  I think I'm having too many wake periods during the night because when I'm tired I feel very weepy the next day and hurt more as well.  I'm having a lot of weepy and painful days.
I often wondered if I have chronic fatigue instead of the diagnosed myalgia?.  How does one know the difference or are the two related in some of the symptoms?  Call it what you will, the one thing that is evident is the aching and muscle exhaustion. 
 


caligirl2001
Regular Member


Date Joined Jan 2010
Total Posts : 197
   Posted 6/27/2010 12:58 PM (GMT -7)   
Hi dorri,

How exciting that you are going to be a grandmother for the first time, and wow, 3 around the same time! My mom says that being a grandmother is the best, and she thinks that should have come first because it is so much more fun. :)

I'm sorry you are not feeling well though. It seems like you are dealing with a lot of things all at once. It is certainly possible to be misdiagnosed. There are a number of symptoms that are common to both. It could also be that because you are extra busy right now with everything going on in your life, you are just in a flare? Have you talked to your doctor about your extreme fatigue? I hope you feel better soon! Try to rest up a bit more and take care of you as much as you can. Is there any chance of getting some help with your packing?
Fibromyalgia, High BP, Migraines, anxiety
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 6/27/2010 1:00 PM (GMT -7)   
I HATE that feeling - I get it, too! It comes over me like a wave and, like you said, it's like someone took the life out of the muscles. No rhyme or reason why most of the time. The bad pain I can understand better, because usually it's when I've done too much. But this is different. I recently had my blood sugar tested because it sounded kind of like that, but that's not it. Some of the symptoms of Fibro and CF do overlap, but someone else will probably know more.
  Achey 
 
    Diagnosed: Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40578
   Posted 6/27/2010 1:07 PM (GMT -7)   
It is often believed that fibromyalgia and chronic fatigue are one of the same. I have read that in a couple of different places. But with fibromyalgia, you can have chronic fatigue with pain. I do. I take adderall for it. And it keeps me awake during the day. But with the muscle pain and fatigue. Try to do some gentle stretching throughout the day and keep well hydrated. I find that magnesium helps my muscles feel more normal.

I spent two years in bed with chronic fatigue until I finally found a psychiatrist that would prescribe something for my fatigue. I couldn't walk, I could barely stand up. All I did was sleep. I was in bed constantly unless I had to go to the bathroom or get something to eat. It was horrible. I hope that yours doesn't get like that. But I would be talking to the doctor about it and let them know that you can't possibly go on this way anymore. Hopefully they will give you something for energy.

Best wishes to you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 6/27/2010 3:25 PM (GMT -7)   
Thanks for the replies, my doctor has run a series of tests, and some more tests recently. I have to go to the doctor's tomorrow for the results. In the past nothing has shown up even though at times I was in a lot of pain during the tests. It's hard to understand why the tests don't show anything, but I know the pain is real, not imagined.
I do have one problem with anti inflammatory drugs because of the CD I suffer from, the doctor's are shying away giving me any outside of prednisone in fear that it will aggravate the crohn's. I found Tylenol does not help.


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 6/28/2010 5:40 AM (GMT -7)   
Hi dorri, Congrats on being a new grandma! I love being Grammy1

You certainally had some change this year and even good change is stressful. The
lack of sleep combined with the added new stressors can quickly zap you of energy.

The B vitamins are wonderful for stress and B-12 will help re-energize you. My rheumy
suggested that I take 5000 mcgs daily of B-12 for my fatigue and I have noticed an
improvement. When you have a lot of stress your muscles are not getting enough
blood flow because of all the extra adrenaline and cortisol that is being pumped into
your bloodstream. If you take some time for a walk you can de-stress yourself and
energize yourself at the same time. I do deep breathing exercises and meditation
daily to help with the stress.

Hope things will calm down soon and that your sleep will improve. Enjoy those
precious babies!

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 6/28/2010 9:41 AM (GMT -7)   
Thanks,,,hmm..do you think, maybe you are right.I've been flying in high gear for a couple of weeks now, so I know my cortisol levels are sky high. My muscles were already weak before this began, so each day I'm adding more stress on them. I was wondering the other day if I'm going to crash after things slow down. Hope not.


Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 6/28/2010 4:30 PM (GMT -7)   
I understand how you feel. I have been where you are. The best I can tell ya is try really hard to allow yourself some down time during the day. What is the dr. gonna do about your cortisol levels? When my daughters levels were high she was anxious, gained weight, did not sleep well and was very depressed.

I hope that you are able to enjoy the grandchildren without this terrible fatigue.
Fibromyalgia,arthritis,raynauds syndrome,gastroparesis,IBS,depression,severe costochondritis
 
God and Family is my life.


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 6/28/2010 4:55 PM (GMT -7)   
Thank you for understanding, I got my test results back and the doctor said they look okay so I asked him why I was hurting, weak and stiff. He said he thinks it's crohn's related and gave me some tramacet to try and see if it works without irritating the crohn's. He didn't mention that it could be FM pain, although he does have the report sent to him by a rheumatologist who diagnosed me with it? I wish there was a specific blood test that would confirm FM so the doctor wouldn't have to hee and haw about what it could be?


sonny boy
Regular Member


Date Joined Jul 2010
Total Posts : 31
   Posted 7/12/2010 6:53 PM (GMT -7)   
dorri What you are going through is tough.Ive had fribo for some 25 years i have pain all the time and yes im tired all the time.So bad i cant get out of bed some times.Get on a high fiber diet stay away from sugars and no matter what keep moving.God knows how bad it hurts and just trying to get the strenth to move is hard.but dont let this fibro whip you sonny boy

dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 7/12/2010 8:34 PM (GMT -7)   
Thanks, I cannot take high fiber because of crohn's disease but can take some of your other advice.  I've been moving everyday packing up our house for next weekend's moving day, and today I cried because I feel like I'm going to drop of exhaustion.  A nights sleep no longer recovers my fatigued muscles, they hurt and are stiff all the time with little to no relief.  I'm angry at myself because I can no longer do what I use to.     


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 7/12/2010 8:49 PM (GMT -7)   
dorri, anger is part of the grieving process of mourning the loss of good health, many
of us went through it. I think it is natural to be angry but eventually you do learn to
accept your dx. I find taking one day at a time helps. You will find what works for you
and find that you can still enjoy life. I am so sorry you are hurting and hope you
find relief soon. I do understand and wish you well!

Hugs, Robin


Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Post Edited (crazykitty) : 7/12/2010 10:19:36 PM (GMT-6)


Atmosphere
Regular Member


Date Joined Mar 2010
Total Posts : 220
   Posted 7/12/2010 10:15 PM (GMT -7)   
I have to agree with a lot that has been said..well what I was able to skim through given my poor concentration :/

Yes one definitely has to take it one day at a time with FMS. Despite the pain, the worst thing in the world is laying up in bed all day long. I did that for a whole year. In pain of course. Literally, I was sleeping beauty! I didn't barely eat at all. I still barely eat. I am also an IBD'r with a sensitive gut. Compulsive with reading food nutritional labels, oh yea thats me!


I am still in pain now. And sometimes never feel rested. But the Rheumy is trying to help out some. He wrote a RX for PT/Aqua Therapy. The Heated Pool works well for me.
So I am slightly motivated now that I am doing the PT...(i make my appointments late in the day!)

I guess that's it. I always take my Lyrica nightly. And there's the medicine for pain, sleep, spasms depending on how bad the body wants to hate me at any given moment. Speaking of sleep (*looking at clock, almost 1:30AM..)

Feel better Dor..

Post Edited (archiestyles) : 7/12/2010 11:23:04 PM (GMT-6)


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 7/13/2010 7:41 AM (GMT -7)   
Thanks all,
I really do appreciate the input especially since I know that you are all going through the same pain.
The one thing I'm learning is that pushing the muscles to extreme does not strengthen them or take away the pain and stiffness, it makes it worse!.
Isn't the general rule for those without FM for overworked excercised muscles is not to rest, but to do more exercise and the pain goes away?
Packing, I consider to be regular use of muscle activity, moving and bending a lot and doing some light lifting. It feels like I ran a marathon, or a truck ran me over. Everything hurts and sleeping it off does not bring relief.
I do get a monthly B-12 injection but I'm not able to take the B vitamin supplements as something in them triggers off the crohn's. I tried several brands and forms hoping that I would be able to take them, but my body reacts with more inflammation. I'm also drug sensitive to a lot and have to start at super small doses, or I fall asleep. It hits me like I took several.


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