High SED rate anyone?

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damouthy1
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Date Joined Sep 2009
Total Posts : 663
   Posted 7/2/2010 12:12 PM (GMT -7)   
Hi all,
 
I don't know if any of you remember, but last week I started getting these hard lumps on my shin bones. Since then they have spread to the sides and back of my calves. I am also having alot of swelling (in my joints and other areas too). My pain has also increased and spread to other areas I usually don't have pain. Like my lower back for example. Actually, pretty much everything hurts right now. So, I went to the doctor's yesterday and they did a SED rate. I just got a call from them and it is high, it's 42.
 
They want me to come back today to draw more blood to check for RA, lupus and a few other things that I can't remember. I was tested for all of these things several months back and they came out normal. Of course my SED rate was normal then too. My sis (Antbuggey) was just diagnosed with RA this week, so needless to say, I'm kinda freaking out a little. Anyone know if fibro can cause a high SED rate? I tried looking it up, but I couldn't find anything so I'm guessing not. But I thought I would check with you all just in case. I hope everyone has a wonderful and safe 4th! Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 7/2/2010 12:19 PM (GMT -7)   
See if they will run the HLA-B27 test, if you don't have RA or something it could be spondy with the low back pain. Hope they get it right so you can get treatment.
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 7/2/2010 1:17 PM (GMT -7)   
I had a high SED rate during the 2nd summer after I was diagnosed with fibro. I had swollen feet, ankles and fingers along with it. They never did figure out what the high SED rate was from. I only had it during that one summer. Some kind of inflammation, I guess. Hope they get yours figured out. Take care.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, nabumetone, hydrocodone, c-pap machine.


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/3/2010 4:47 AM (GMT -7)   
Thank you for the replies, I do appreciate them. What is spondy? I don't think I have ever heard of it. I am hoping that I get some answers the first part of next week. I just know I hurt more and I am awful swollen and lumpy...Thanks again for responding and I hope you guys have a wonderful 4th. Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 7/3/2010 6:15 AM (GMT -7)   
Search for spondylitis, it is arthritis of the spine. It does spread to other joints and none of the joints are safe from it. It presents mostly in the low spine for men, but can present in a much different manner for females. You can also search HLA-B27 and you will get alot of info. Not saying you do, but drs hardly ever run this test and it could save you alot of time and suffering.
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4643
   Posted 7/3/2010 7:38 AM (GMT -7)   
High sed rate is not a fibro symptom, but points to lots of other problems. It does not mean though, that you can't have more than 1 thing!
Alcie
 
 


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 7/3/2010 8:08 PM (GMT -7)   
My sed rate was really high when I first got sick. I was eventually diagnosed with Lyme Disease and my sed rate went back to normal after treatment with antibiotics.

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/4/2010 8:41 AM (GMT -7)   
Thanks Okie, Alcie and Dagger. I am so glad I have everyone here to talk to so I don't freak out over this. This is the first time I have taken steroids and I feel like I am a crazy woman! My patience level is gone! So the one thing I am hoping is that whatever is wrong won't need to treated with steroids all the time (yeah right, wishful thinking?) Anyway, thank you all for responding. Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 7/4/2010 3:22 PM (GMT -7)   
My sed rates were rated high about 31 years ago. I was 25 when I was diagnosed with RA. Most of it I could live with as I've
had it since I was 7. Now with the fibro, lipoma tumors, and the trashed knee I'm having a few issues. Especially, with idiot
drs who don't or won't listen.

If you don't want to take man made steroids check into Yucca Root which is a natural steriod the Indians used.

confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 7/4/2010 5:08 PM (GMT -7)   
Most arthritics can be treated with NSAIDs or DMARDs or at least TNFs. Steroids are great for flares, but should not be taken continuously unless last resort for quality of life. Some people do get the anxious and "crazy" feeling and they can interfere with sleep, so take them early in the day as possible with food. If they do work, then hopefully another anti inflammatory medication will, it is just a matter of finding the right one or combination for you. I hope you get some answwers and some relief soon.
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 7/5/2010 4:49 AM (GMT -7)   
I am currently on prednisone 12.5 mg daily, down from 15mg and am slowly weaning off of them for polymyalgia rheumatica. I know what you mean about feeling very agitated after taking them. It does get better, at least it did for me, but it might take 2-3 wks. Like Okie suggested, take them early in the morning and always with food, they can be hard on the stomach. I'm also taking methotrexate, which my rheumy must think is the lesser of two evils, to help me to get off the steroids sooner.

My sed rate was normal but 20% of PMR people can have normal blood tests. Hope you find out something soon!!!! Any inflammation in our bodies can really cause the pain levels to rise.
---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3, fibromyalgia, polymyalgia rheumatica


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/5/2010 9:04 AM (GMT -7)   
Thanks guys, I will try taking them in the morning. If they make me sleepy, I'll take a nap. I am hoping my tests will be back tomorrow so I can find out what is going on. I was tested for RA in March and it came back negative, my SED rate was normal too then so now that it is high maybe I will get a different result on the other test? All of this gets so confusing! All I know is that I hurt and I want it to stop.

Nana, you said you have lipoma tumors? What are they and where do you get them? These lumps all over my legs are horrible! One doc told me that one was a vericose vein until others started popping up (some are hard and some are more rubbery feeling) then he said they were rheumatoid nodules. I see my regular doc tomorrow (she was on vacation when I started getting these) she hasn't seen them yet. I know they have caused alot more pain in my legs although the bumps themselves don't really hurt. Wierd huh?

Anyway, thanks for the replies and suggestions, I really appreciate all you guys so much! I hope everyone had a great 4th and has a wonderful week ahead. Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 7/5/2010 10:57 AM (GMT -7)   
If you want a natural anti-inflammatory try Bromelain which is pineapple enzymes. I've used it off and on for years. Now I have
a problem with severe swelling in the baker's cysts in both knees so I will go back on it to control it. The herbal books all
recommend bromelain.

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/5/2010 3:33 PM (GMT -7)   
So sorry you're going through the wait and see nerves. I just hate waiting. I make up things in my head while waiting that end up being far worse than the actual real problem. Try to stay calm.

Someone mentioned sponylitis - I believe that is ankylosing spondylitis. If it does turn out to be that, don't freak out - a very famous man named Norman Cousins had that disease. He went on to found the center for mind body medicine at UCLA afterwards. His recovery was amazing. If you do have it - find his books - most libraries have them. His story inspired me so much - even though I don't have his disease - anything is possible!

Wishing the best for you.

confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 7/5/2010 6:14 PM (GMT -7)   
From what I have heard and read Cousins didn't have AS. He also believed he healed his self with laughter. AS is an autoimmune disease and no matter how much I would love to believe laughter or any mind over body control would heal it, it isn't realisitic. It would be like saying you could beat fibro if you read the comics every sunday. Undifferentiated spondylitis or spondyloarthropothy and AS have the same symptoms and treatment basically.
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/6/2010 7:27 AM (GMT -7)   
I'm sorry, Confused Okie, if my mention of Norman Cousins upset you for some reason. I just would like to respectfully say that there is a deep study behind the mind body connection. University of California at Los Angeles didn't think it was a bad idea. In fact, you can read more about it here:
The Cousins Center for Psychoneuroimmunology
http://www.semel.ucla.edu/cousins

I personally have felt the benefits in my illnesses from trying to practice exercises that work on the mind / body connection.

Another man I greatly respect is Dr. Herbert Benson, M.D., an American cardiologist and founder of the Mind/Body Medical Institute at Massachusetts General Hospital in Boston. He graduated from Wesleyan University and Harvard Medical School. He developed what is referred to as the relaxation response. You can read more about that here: http://www.massgeneral.org/bhi/ Dr. Benson's research has been very powerful for me in overcoming many issues with my health.

If mind/body health it isn't for you, that's okay. We're all different. I would never presume to tell you "you must do this." So please accept that this is something important to me, and don't feel pressured to follow my lead. We are all different. I mention it to others via this forum but they can do what they want with the info.
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