Yuck I wonder what else is going to go wrong

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SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 7/9/2010 12:06 PM (GMT -7)   
Ever had one of those days where everything seems to go wrong? Yesterday was one of them for me. I run late to my doctor appointment, because the bus is late, only to find out I thought my appointment was at 1pm and it was actually at 2pm so I wound up being early for what I thought was late. Gets better, the doctor runs behind and I don't get put into a room til 3:40pm. And if that isnt enough, after all the exams, I find out my cancer is back and I get to start chemotherapy, pill form that very day. So after the appointment I rush down to the pharmacy to get the chemo and steriods before it closes, to find out it was closed til 5pm. So I'm waiting a half hour and then I get a call on my cell saying Oh, you need to do bloodwork, we got to check your white cell count over in the children's hospital (the nearest lab). So I wait for the pharmacy, run to the lab and back out to the bus. Not only do I just miss the bus, I look at the time and see it is almost 6pm, and my last bus to my city is at 6:30 and it takes at least an hour and half to get to that bus by bus. By then I just started crying, cuz now I'm stranded in a big city. So I called my church and someone was able to come and get me, and help me pick up my son from child care. I only put him in childcare that day with a friend because of the lovely weather, it hit 100 degrees Ferheit sp? I didn't want to drag him around with that heat. So then I make it to the 2nd to last bus to where the minister's wife is going to meet me, and I miss my last bus by 2 minutes. The next bus is an hour away, so I call her back and tell her and she tells me she will just come and get me where I am. Then I get back with  a crying kid to greet me of course. Ty for letting me vent.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 7/9/2010 12:22 PM (GMT -7)   
Hi Desiree,

I wrote to you on the depression forum, but from my standpoint, you need a lot of support right now. I am so happy that the lady from the church was able to pick you up. You had a lot of trying situations and I could just imagine how you felt when you had to digest the cancer dx. I am so sorry. But I am happy that you are able to treat with a pill instead of the chemicals interveinously. sp...

Know that we are all thinking of you. And that we all care about you. I know that this is difficult. But thank God that day is over and you can face another one with a better outcome.

Keep on keeping on as Jeannie would say. You are a strong woman and you have all of us here cheering for you and wishing you well.

Take care Desiree.

Gentle hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1371
   Posted 7/9/2010 1:54 PM (GMT -7)   
Hi Desiree,
 
Just the running around, the heat, missing buses, waiting for rides (from very sweet ppl!!), trying to get to the lab and pharmacy, and a very tired little guy would have been more than enough to deal w/. I am so sorry to hear that the cancer has returned. Hopefully, the pill form of chemo will be easier for you to handle. And this time it will knock it out of the park.
 
I have read some of your posts here and other HW forums. You seem to have a very good sense of humor and tremendous spirit. I know they have been put to the test already, but I pray they will help you thru this coming battle. You have been thru a lot and you are a survivor. We are w/ you in spirit and prayers.
 
I hope you were able to take care of your things today. Pls try your best to rest tonight, and yes, I know you have a lot on your plate.
 
God bless.  Alice.

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 7/9/2010 2:10 PM (GMT -7)   
Sounds like a really, really rough day. I'm so glad you were able to get someone from your church to help you. Thank God for church families. It's too bad our fibro family is so spread out, or I'm sure you could have called on one of us too. We can't be there physically, but we can be there with you in spirit.

Sending up prayers for you that tomorrow will be an easier day and that the new chemo will completely obliterate the cancer.

((((Hugs)))) - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
 
 
 
 
 
 


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 7/9/2010 2:11 PM (GMT -7)   
Hi Desiree, Sending you gentle hugs and will keep you in my prayers. You are a
strong woman with a survivor spirit. Wishing you the best and hoping this new med
works well. Take time to relax when you can!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Missmissy
Regular Member


Date Joined Oct 2006
Total Posts : 237
   Posted 7/9/2010 2:22 PM (GMT -7)   
Desiree~Your day yesterday was horrific!! Thank goodness it's over! The one thought I had when I read your post is that you are incredibly strong and resourceful. You did what you had to do, and you made it work. I applaud your guts and please know that even though you don't know me or many others here on this board, we really do care. God bless you!
Crohn's Disease, Fibromyalgia, Psoriatic Arthritis
1200 mg. Asacol 3 times daily for Crohn's, 12.5 mg. Savella per day along with Tramadol for pain for the Fibro, and right now, not much for the PA.
I'm not going to take this lying down.


sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 7/9/2010 3:12 PM (GMT -7)   
Dear Desiree, I just wanted you to know that you can add my prayers to the list. I am so sorry the cancer has come back again.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)


steppingstone
Regular Member


Date Joined Apr 2010
Total Posts : 372
   Posted 7/9/2010 11:19 PM (GMT -7)   
Desiree, I am sorry to hear that your cancer is back, and that you had such a trying day.  I hope that today goes better for you.  You are in my prayers.

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 7/10/2010 12:53 AM (GMT -7)   
It seems you guys are my family actually, so in a way I'm telling my family from afar hehe. I'm actually shocked my biological mother is trying to be more there for me, now. And I believe it is only because I am taking care of her mother, who has dementia. I am very strong, and learned to find humour in like everything. I even ticked off my cancer doctor, because of being funny. She told me I could hire someone for two days a week to aid me to help my grandma. I will enjoy the break well as best as I can. Hopefully this chemo is better than last chemo. I bled internal, vomited blood, lost blood in stools just from the chemo. And get this--they put me on the same chemotherapy! I became a frequent flyer for the ER for Iv fluids since I kept getting dehydrated. Hmm that just gave me an idea, I will ask my doctor. We have a program at the hospital called shapes. It does bloodwork, and iv therapy. I wonder if he can enroll me in it just to keep hydrated. Beets living in an er, and better cuz I did it one time, and they give you this nice room with a tv and phone and more things. They even have wireless internet available. Oh guess I should stop rambling and do the Koffee Klatch now LOL
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/10/2010 5:24 AM (GMT -7)   
Dear Smurfy, Wow I am so sorry to hear you are going through such a rough time. What a horrible day! I just wanted you to know that you will be in my thoughts and prayers. Please keep us all posted on you situation, we care!
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


AKMamaBear
Regular Member


Date Joined Jul 2010
Total Posts : 35
   Posted 7/10/2010 9:46 AM (GMT -7)   
Dear Smurfy,

The next time I think I'm having a bad day, PLEASE, feel free to slap me silly. TWICE. In fact, three times, if you think it's necessary. :)

Gentle thoughts from my heart to yours,
AK MamaBear
Breathe in, breathe out...repeat
 
 
Fibromyalgia, collagenous colitis, osteorthritis, peripheral neuropathy, moderate spinal stenosis (C3-C6) carpal tunnel, sleep apnea
 
Current Medications: Premarin 0.625mg, Oxycodone 10mg, Hydrocodine 10-325mg, Topamax 75mg, Tricor 145mg
 
Other: Omega 3 Fish Oil, Cinnamon, Calcium/Magnesium, Vitamin D, Glucosamine Hydrochloride


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/10/2010 10:44 AM (GMT -7)   
Desiree you must have the best sense of humor of anyone. You had the absolute worst day imaginable, and look at what you just posted now -- there is humor in your words! You are one tough cookie - one strong woman - and one force to reckon with. You should call on whatever and whoever you need to help you with your fight. You deserve help. I know we don't know each other - but I'm wising you all the strength and humor that can be found!

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 7/10/2010 11:44 AM (GMT -7)   
Ok who wants to go grocery shopping for me? Better yet, take the six year old swimming? I'm just really tired today, and my legs are swollen. I got a feeling the word flare up is a coming around the corner for me. And I just went through one a couple weeks ago. Oh, my uncle came by and he rotatilled the ground and planted my tomatoe plants (all 5). It is nice my uncle decided to help out of the blue. And my bipolar sister decided to actually check on me today. Nice to know I'm cared about, because they are always not paying attention to me. I guess my recent crying fit to my mom payed off. Today I plan on figuring out how to get to the back yard and throwing the six year old in the soft pool, laundry and grocery shopping. I wonder if I can fit a nap in between, cuz I am tired just thinkin about it. And my friends dog is snoozing on me and makes me miss my lil one being smaller lol.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


sonny boy
Regular Member


Date Joined Jul 2010
Total Posts : 31
   Posted 7/13/2010 11:36 AM (GMT -7)   
yeah  yes .but you made it. GOD bless you turn     sonny boy tongue

Lana Bear
Regular Member


Date Joined Jul 2010
Total Posts : 25
   Posted 7/13/2010 6:44 PM (GMT -7)   
If I could, I would do your grocery shopping for you....lol It seems that you are a strong and positive lady. My thoughts and prayers are with you.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 7/13/2010 7:48 PM (GMT -7)   
Desiree,

Hold on! You have lots of people here caring about you. I know how hard it is when family doesn't come through for you...but at least some of them are now. It's true, very often the squeady wheel - you know. Keep writing! Hope you can rest and tomorrow is a better day.

Achey
   Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
This too shall pass....


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 7/14/2010 5:33 AM (GMT -7)   
Desiree

I am sorry about the rotten day you had. But the others are right, you have a wonderful sense of humor and a good attitude. I'm sorry your cancer has returned. You hang in there and God bless you. You are on my prayer list.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


livenlaugh
Regular Member


Date Joined Dec 2009
Total Posts : 387
   Posted 7/14/2010 6:22 AM (GMT -7)   
Smurfy~ I hope that everything gets better for you. I will be thinking of you. If you need someone to talk to, you can email me. Rest and take care of yourself!
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