Why do Doctors do this?

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caligirl2001
Regular Member


Date Joined Jan 2010
Total Posts : 197
   Posted 7/12/2010 12:56 AM (GMT -7)   
I like my primary doctor. I really do. But Friday, he really frustrated me. I'm used to pain. Aren't we all? Friday's visit yielded a diagnosis of costochodritis. But here was what frosted my cookies: A year ago, I developed some serious pain around my left scapula. He thought it might be coming from my neck, but the MRI showed that my discs are bulging slightly to the right, not the left, so they just shrugged it off and said "Oh, well, since all your pain is on the opposite side, there really isn't much we can do." So I live with extreme pain, and often numbness on my left side and arm, and really do very little with my left arm because it aggravates the pain when I do use it. In January, my doctor gave me some vicodin to have on hand for the pain. I am extremely conservative with my use of pain medication because I do not want it to lose it's effectiveness, and I don't really like the way it makes me feel anyways. I use it only when the pain becomes unbearable. Several times over the past 6 months, he asked me at my check ups if I needed a refill, and I always told him no, I still had plenty left.

So when I went on Friday, I asked him for a refill, since I had finally taken the last one. He says to me, " We don't like to give out vicodin for fibromyalgia pain because first you take one, then you take two, and then you don't know whether it is fibromyalgia pain or withdrawl from the medication." Hello? Was he really saying this to me? I told him, " I don't need it for the fibro pain. The fibro pain is nothing compared to the pain I have every day from whatever is wrong with my back and shoulder. Might I remind you that it has taken me 6 months to go through the 30 you gave me last time? I think it is safe to say that I am not going through any kind of medication withdrawls." To which he says " When did we last order that for you? Oh, it was January. Ok, I guess we can re-fill that for you."

rolleyes
Fibromyalgia, High BP, Migraines, anxiety
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin


Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 7/12/2010 1:02 AM (GMT -7)   
My primary dr. gave me 20 vicodin to help with my costo. and I am using them very conservatively. I don't understand why we have to be in pain like this and dr.'s don't want to treat the pain.
Fibromyalgia,arthritis,raynauds syndrome,gastroparesis,IBS,depression,severe costochondritis
 
God and Family is my life.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40595
   Posted 7/12/2010 8:00 AM (GMT -7)   
I take norco for the pain, which is a ten mg vicodin. I have to see a new doc this month. Just hoping that he will continue to give them to me. They do help. I still have pain, but not like before. I see this doc on the 21st and will see how this will go. I am so afraid that he wont prescribe them. Then I have to go doctor shopping. I will let you all know what happens. There is a fibro doc I can see, but she is an hour away. Though it would be worth it if I can only see her once every three months or so. I travel over there for my pshciatriatist and psychologist. But it is so far of a drive.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


caligirl2001
Regular Member


Date Joined Jan 2010
Total Posts : 197
   Posted 7/12/2010 9:37 AM (GMT -7)   
Sheila, I know. The only thing I can assume is that most of them have never been in chronic pain, and do not understand how draining it can be. When I went in last week, I was literally feeling nauseated and barely eating because I was in so much pain. He gave me Celebrex and told me to take one a day for 2 weeks for it. I felt like someone had kicked me in the ribs. It's a little better now. Not as sore to the touch any more.

Karen, I can't take Norco, Oddly, they don't help me nearly as much as a weaker 5/500 vicodin? and norco make me itch like crazy! But what you say is right. Still in pain, but it reduces it to a manageable level. I hope that he renews the RX for you. I wish there was a way for all doctors to experience chronic pain for a few weeks so they could empathize with their patients. I wouldn't wish it on anyone permanently, but maybe they would be more willing to treat our pain if they really could understand what we go through every day.

Oddly enough, it was the PA I saw at my neuro's office that seemed to be the most empathetic towards my pain. She talked about putting me on tramadol, as something I would be allowed to take once a day to regularly control my pain. She said I should not have to be in pain and it is not right for me to have to just live with it. I see her again on Aug 12 for a follow up on my migraines and Topamax, so I will be talking to her then about my experience and what happened and see if she will take over managing my back and nerve pain. My neuro wanted me in physical therapy and a nerve study for it anyway, so it is really their domain to treat issues with nerve problems and pain anyway.

I know there are people out there who abuse opiate medications to get high and like the way they feel, and I know there are people who get physically addicted because of their personality, or because of something in their brain or whatever it is that triggers addiction to anything. What bothers me is that they treat everyone as an addict, or a drug seeker. I have been prescribed opiate medications repeatedly throughout my life from the time I was a teenager for a broken back, on through several surgeries, injuries and now this serious back/shoulder problem. Not once have I ever abused it, or even given it so much as a thought if I wasn't in serious pain. But to take 1 pill every 5 days and then have him lecture me on not being able to tell the difference between withdrawls and real pain? Give me a break!
Fibromyalgia, High BP, Migraines, anxiety
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 7/12/2010 10:17 AM (GMT -7)   
My doctor is very conservative when it comes to narcotics, too.  There has been too much abuse of them so now they have to be so careful.  BUT your doctor just needed to check out your chart before making those statements.  You obviously don't abuse them.  He was treating you like a child and that is offensive.
 
As far as your back pain goes, I know when my back bothers me it affects many parts of my body.  You carry yourself differently, sit differently, etc. so even though the disk problem is more on the right side, I sure don't know why he thinks it's not affecting the left side.  This is one of the reasons I use a massage therapist.  Muscle pain in my back end up causing numbness, hip and knee pain, etc.  The muscles pull your back out of alignment and cause more pain. 
 
I'm glad, though, that your doctor realized his mistake and gave the prescription to you.  Frosted cookies?  Now THAT sounds good to me!  smilewinkgrin
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 7/12/2010 12:28 PM (GMT -7)   
I think the jury is still out on the long term use of narcotics for fibro, so a lot of doctors are hesitant to prescribe them for it. IMO, there seems to be hesitation on the part of many doctors to prescribe narcotics for anything for some reason.

In this case, it sounds like your doctor didn't read your chart and refresh his memory about your case before he made a judgement.

I love my pcp, whom I've been seeing for about 20 years, but I had one really bad visit with him and almost didn't go back. I don't remember the specifics, but I left feeling really patronized. I decided to give him another chance and did go back, and now I'm glad I did. I decided he was having a bad day, and to just over-look it - once. If it became a pattern, I definitely would have switched to someone else.

I hope your future visits turn out better for you. It's no fun being talked down to or patronized.

Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
 
 
 
 
 
 


Missmissy
Regular Member


Date Joined Oct 2006
Total Posts : 237
   Posted 7/12/2010 2:11 PM (GMT -7)   
I, also, have used "controlled substance" pain meds. I rationed out 30 Vicodin over a 90 day period. Then the doctor switched me to Tramadol as it is not as strong, and it still helped keep the pain manageable. I was discontinued with the pain clinic as things are pretty much under control (as much as this pain can be). I just had a physical with my regular doc, and was told that if I still wanted my 10 mg. of Tramadol in the morning, and one at night, I would have to sign a contract with them, I would have to have 30 day follow ups, and I would have to commit to a support group for pain management. I felt like that is a slap in the face. I am only looking to be treated like an adult with pain issues. I have moderate to severe stenosis on top of the fibro and crohn's, and am in constant pain. I NEED relief, and when I ask for help, I am made to feel like an addict asking, no begging, for drugs. I refused the Tramadol and all the strings that went with it. I was then offered Elavil for night time so I could sleep better, and hopefully, help me manage pain threshold. I am an adult 54 year old human being, and I am sick of being patronized.

There. I feel better. Maybe I'll just go get some ibuprophen. Thanks for letting me get it out.
Crohn's Disease, Fibromyalgia, Psoriatic Arthritis
1200 mg. Asacol 3 times daily for Crohn's, 12.5 mg. Savella per day along with Tramadol for pain for the Fibro, and right now, not much for the PA.
I'm not going to take this lying down.


caligirl2001
Regular Member


Date Joined Jan 2010
Total Posts : 197
   Posted 7/12/2010 3:32 PM (GMT -7)   
Yes, Austen, I am hoping he was just having an off day. He was leaving early, and I was squeezed in at the last minute. So I am definitely willing to give him the benefit of the doubt. And for all I know, they may have just had one of their staff meetings where they were lectured on narcotics prescribing. Who knows, right? And I can respect the position that they are in. I just want respect for the position that I am in as well. I also like that there are, at least for me, little or no side effects from the vicodin. No weight gain, no wacky things with my system like some other things that they have tried on me, from effexor to cymbalta. What is better for my health? It would seem to me that maintaining a healthy weight, and taking an occasional pill when the pain gets to be too much is far better than stuffing a daily pill down my throat that does who knows what in the long term?
Fibromyalgia, High BP, Migraines, anxiety
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin


QTKaren
Veteran Member


Date Joined Apr 2008
Total Posts : 605
   Posted 7/12/2010 11:49 PM (GMT -7)   
I am lucky to have a doctor who is very much a believer of fibro. I was going to a large university hospital for bladder pain with a ueroligist(sp?)
and then I got in with a doctor who was supposed to be long term pain managment. The 1st visit went wonderfully,I was finally going to be on a long lasting med but when I went back for him to bump me up on the 15mg of morphine ,I was supposed to start low and then we were to titrate it. All the sudden he went off on me with you need to stop dwelling on my pain..get a job or take a walk. I was floored to say the least. So all the sudden he wouldnt treat me, the specialist didnt want to treat me anymore since she couldnt do anything but give me pain meds and she wanted to pass me off to him. I was left with a weeks worth of meds and I had called everyone I could and noone would take me since everyone was taking private ins. I had seen this old doctor when I was married before and he was the only doctor in the rurel country I had lived in. I called and the gal told me they werent taking medicaid at that time and I told her to please give him the message and let him decide. Well I spent all day wondering if he would call and then he did call me personally and said he would happy to take me back. He said all he could do was perscribe what I had been given as he wasnt a pain doc and couldnt change the meds I was given. I went back to him and had to sign a pain contract and I found out quickly how serious he was about that when I had been seeing him for 2 months and I had called 2 reschedule because I had a horrible case of the flu and he called and reamed me about missing an appointment saying I was out of complience and he should drop me. I talked him into keeping me and I found a ride there and made sure not to miss an appointment,basically if I was dying I still had to get there. He made me understand how much the DEA was watching everyone now a days and he had to keep his records immaculate. I now take 8 -10 mg of the norcos and 90 mg of the morphine. I know that sounds like alot but I am taking it for multiple of condisions like I fell down the stairs and broke my back,I have pain left over from 3 strokes and I was dx'd with fibro about 5 yrs ago and then a have very severe neuropathy from diabetes in my legs. It turned out he was able to change up my morphine after he had tried for several years to find me a pain doctor that would take mediciad. He had talked to a pain doctor and it was his recommending to up my meds. I feel very grateful to have him as my doctor and when he will retire in about 5 years he has set up another doctor in the practice to take over my care. It took alot of bull crud before I found him again. If they ever close his practice down it will be a sad thing for all the ppl he helps. I had remembered,he was always a person who was so compassionate specialy with the many retired persons in his practice. Believe it or not he even still does house calls!! I know how nice of him to have him treat the elderly so they could continue to live at home. I forgot to mention he does require urine tests to check to see if I am taking the proper amount and he screens for  other illegal drugs and I dont mind him doing it.
Hugs,
Karen


Karen
 
Mom of one gramma to 4 lover to One
 
 
Fibromyalgia,IBS,Stroke x3,endometriosis,Diabetes type 2,neuropathic pain,high blood pressure,severe nausea,atrophy,chronic pain,over 30 surgeries,torn hip joint,hypoglycymic
 
 
 
 

Post Edited (QTKaren) : 7/13/2010 1:03:29 AM (GMT-6)


caligirl2001
Regular Member


Date Joined Jan 2010
Total Posts : 197
   Posted 7/16/2010 2:09 PM (GMT -7)   
I just left a message for my doctor telling him that I don't want to take the celebrex. It was helping some with the pain, but my fingers were swelling up and so were my feet. Very uncomfortable, and the Celebrex is the only new medication I was taking. If it had been helping more with the pain, I might have considered trying to keep taking it a while longer. As a test I skipped taking the celebrex yesterday, and this morning, my fingers were right back to normal.
Fibromyalgia, High BP, Migraines, anxiety
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin

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