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Witchesblew
Regular Member


Date Joined Jul 2010
Total Posts : 105
   Posted 7/16/2010 11:40 PM (GMT -7)   
hello all .. thought I would finally sign up to be able to post on here since I have ben reading and lurking for a  while. In November of last year I had a complete hysterectomy at the age of 38, and in january found out I had a severe infection that landed me in the hospital for 5 days. It was after the healing that i realised i had joints and muscles that felt like they werre turning to stone. Then my skind started feeling like i was burned all over. Then add on the whole painful to walk on feet that feels like they are bruised and stomach problems and I cant do it anymore!  I have been diagnosed with Fibro, in march 2010, at least that is the best answer they can come up with. I have gone through  Cymbalta, Savella, Lyrica, and none of them worked. neurontin didnt do much either.... all they all had in common was making me gain 35 pounds. skull
I am going to a pain management specialist in the next week or two, the neuro did a nerve study and said i have severe carpal tuinnel in both hands. The Rheumatologist says I have an abnormal antibody often found in Scleroderma or Lupus but all other tests come up negative for either disease. My regular doctor just keeps trying to psh the newest meds on me...oh and tells me to exercise more which just makes me more miserable....it is a vicious cycle.  I do take amitryptiline at night  to hopefully help me sleep, but if I am in a flare, its off to the ER for dilautid, valium, and toradol, and ativan.
Sorry for rattling on, just at the end of my rope and have been stuck in an ongoing flare, which seems more like day to day life now. I have checked out fibro 101 and have a great hubby that is always by my side, but I felt that I need to meet others in my position. I have been off work since Feb and am still waiting to see if SSi will accept me, right now i make it on disability.
I am lost , confused, sad, and sick of being tired and in pain!

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 7/17/2010 12:12 AM (GMT -7)   
Hi 1 feisty lady, welcome to the fibro family! We do understand the craziness of fibro :)
I am so sorry you are hurting. Finding a med that helps is trial and error for most of us.
We all tolerate meds so differantly. I take Savella and have been on it a year. It took
almost 2 months before it kicked in. My dosage is 50 mg 2x daily and I take a muscle
relaxer for flares ...Flexeril ( cyclobenzaprine) I also have an autoimmune disease,MCTD
and have been on low dose oral chemo for a year.

It is normal to go through a grieving process when you are diagnosed with a chronic
illness. You go through the differant stages of grief...disbelief, anger and sadness.
Pain can affect us emotionally too. Eventually you do accept the illness and do what
you can do to help yourself. The people here are very caring and understanding and
you will find a lot of support here. We are here for one another and that does help!

Exercise is so important for helping muscles and relieving stress. I'm a walker, and
it does help. If you don't exercise you will hurt all the more. Use heat whenever
possible... most of us own the microwave rice heating pads (bedbuddies). Take long
hot showers or soak in the tub. I'm always pushing relaxation therapy...deep breathing
and meditation.

I'm so glad you joined us. Post often with any questions or concerns...We do care!
Hoping your flare ends soon and that you are able to find a med combo that helps!
I know how frustrating it all is, but believe me there will be good days too:)

Hugs, Robin

 


Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Post Edited (crazykitty) : 7/17/2010 3:18:30 AM (GMT-6)


Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 7/17/2010 4:59 AM (GMT -7)   
I understand how you feel. It is so frustrating. I haven't been back to the dr. about my fibro. in almost 2 years cause all they want to do is push exercise and new drugs. It is hard to see that things will get better when you are in the middle of a flare. I try and do some toning exercises when I can just so my muscle tone won't waster away. It hurts but I try to think that it is helping. I wish I had the answer to it all, I question it everyday. I just try and stay posittive, love my family and love my God. Talking about it helps too. Keep posting all you need to. Let your husband take care of you.

I hope today is better.
Fibromyalgia,arthritis,raynauds syndrome,gastroparesis,IBS,depression,severe costochondritis, generalized anxiety disorder
 
God and Family is my life.


KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 7/17/2010 6:04 AM (GMT -7)   
I think you will like it here and many of us can relate to the cycle of doctors, wanting answers.

Exercise is good, even on my bad days when I get stiff & achey, I keep moving. I maybe moving a little slower than the average Joe. Every morning I soak in a hot tub no matter how I feel.

Welcome.....((hugs))

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 7/17/2010 6:47 AM (GMT -7)   
Hi and welcome to the Healing Well family. Im so sorry you are having a hard time right now. Hopefully you will find some relief from the pain soon. It never goes away but there are days where you will feel close to normal. I have had this disease for a long time but was only diagnosed 10 years ago. I have learned to take one day at a time. I try to keep moving and doing things that I can so that I dont stiffen up. I dont want to end up in bed all the time.
There is alot of wonderful support here and like Robin said dont be afraid to ask questions.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)


Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 7/17/2010 8:03 AM (GMT -7)   
I'm so glad you found us.  Welcome.  Everyone here can understand what you are going through with Fibro.  I am a year younger than you and got diagnosed over ten years ago.  When you add other health issues in with Fibro it can be a not so good recipe.  I myself haven't been on any of the new meds yet but am trying a few more supplements to see if I get any relief but it not I will be on my way to starting probably Lyrica.  I have discussed this with my Dr. the last few times I have seen her.  I am just very reluctant to try meds because I am very sensitive to them usually.  This forum is very helpful and the people are just great.  I have found alot of help and support here.  Keep us posted on how you are doing.  Soft hugs!

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 7/17/2010 10:48 AM (GMT -7)   
Hi 1fiestylady,
 
I read all the posts and then forgot your name, fibrofog... lol...  It never fails me.  That is one thing that is consistant in fibromyalgia.  I always forget. hahaha...
 
I am glad that you read fibro101.  It is so informative, isn't it?  and it is always nice to know that you aren't the only one suffering.  We all do.  But we do try to have fun doing it.  I am always in pain, but I can handle that better than the fatigue.  That is what really gets to me.  We have been having a lot of humid weather, and that is when I seem to suffer the most.  And in winter, we get a lot of snow.  Thinking of that right now cools the mind off.  lol...  But I sure do complain about it in the winter.  I am getting way off track here, fibromind. 
 
I hope that you are having a good weekend.  I am so glad that you have joined us.  One day at a time is my motto and that is where fibromyalgia has helped me, because I never know how I am going to feel tomorrow.
 
Take care, keep posting.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/17/2010 12:04 PM (GMT -7)   
WOW! What a roller coaster you've been on but I'm sure glad you decided to join in the family! We all have had more than our share of doctors over time and is sounds like you have too. Your doc is doing what most doctors do...pushing the latest and greatest that the sales representatives bring around. And they are always the most expensive too! Sometimes they work, other times not. Has your doctor given you anything serious to control the pain? Tramadol does work for some but for others of us it's like eating M&M's...lol I hate to see you end up in the ER when it gets so bad. Too many trips there for pain and they begin to think we are drug seekers. They should life in 'our' shoes for a while.

Hopefully the pain specialist will get you on the right track. If for some reason you don't get the type of treatment you like from the pain guy then ask for a referral to a different one...you are entitled! You're the one doing the hiring, not them. ;-)

Good luck and keep us updated!
Chutz
If you're going through hell, keep going.

Winston Churchill

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 7/17/2010 12:33 PM (GMT -7)   
Fiesty,
Welcome to the forum! Boy, when it rains, it pours! I hope things lighten up for you soon.
I always do better when I listen to my body. Yes, try to exercise but don't push it. Everytime I push that little voice (she who knows better) away, I regret it!
Achey
This too shall pass...   
 
 
fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face)
    
 


Witchesblew
Regular Member


Date Joined Jul 2010
Total Posts : 105
   Posted 7/17/2010 4:16 PM (GMT -7)   
Thanks all for the warm welcomes! Another joyous day here in HOT and Hot northern California... But i keep my a/c on and dont go out, wouldnt want to upset my fibro! Wanted to go walking today but think its a stretching and yoga day on wii....

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/17/2010 7:33 PM (GMT -7)   
Oops, I'm a little late, but just wanted to say Welcome to the forum. :) It really is lovely to connect with others who understand. I'm fairly new here too. Some of the members keep things light and lively, and of course there is serious talk, too. I hope you find this place a comfort.
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