fibromyalgia....

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deb527
New Member


Date Joined Jul 2010
Total Posts : 4
   Posted 7/17/2010 4:14 PM (GMT -7)   
shakehead  
 
Hello to all,
 
I am new to this forum and i think its great to read other people's experiences and to realise that your not on your own!
I have fibromyalgia for the past five years and raynauds in my hands. I am 34 and feel very frustrated.
I have taken amitriptyline and this has worked well for me, but not anymore. I have tried Lyrica and Cymbalta and both totally disagreed with me, so not sure where to go from here. I find i do not go in to a deep sleep at night and i am in pain and exhausted every day. Im so frustrated!!
any advice, anybody??

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/17/2010 6:00 PM (GMT -7)   
Welcome Deb. :) I'm sort of a rookie here, but I think you're in the right place. The people here are very warm and welcoming. What you describe sounds like what so many others here are experiencing. I'm sure you'll get some feedback soon.

In the meantime, have you checked out the fibro 101 post at the top of this forum? It's good. :)

Sleep is a real bugaboo. I don't handle meds too well, so my weapon of choice for sleep is my trusty benadryl which I also use for chronic hives. 25 mg at night doesn't knock me out, but it helps me at least get a little closer to normal. When I can remember to do my deep breathing and meditation exercises, those help too. Also - a sleep routine makes a big difference - getting ready for bed at the same time, doing activities that wind you down instead of winding you up, etc. It is all very hard to do - but it all helps some. I still dream way too much, but it is better when I do all of the advice I just recommended. (I'm not perfect, I fall off the wagon with sleep routines!)

Hang in hon. :)

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 7/17/2010 6:14 PM (GMT -7)   
Deb, do you have a doctor you can really work with? That makes a huge difference. And what about support from family/friends?
Achey
This too shall pass...   
 
 
fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face)
    
 


sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 7/17/2010 6:37 PM (GMT -7)   
Hi Deb as Achey mentioned if you have a doctor that will work with you maybe ask him about a muscle relaxant to help you get a better sleep. I use valium right now but there are others like flexeril, cyclobenzaprine and many others. Also make sure you do some kind of exercise each day. Not anything to strenuous but maybe some stretching or walking at your own pace. It helps to keep you from stiffening up.
Welcome to our family and sorry you have to be here.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)


deb527
New Member


Date Joined Jul 2010
Total Posts : 4
   Posted 7/18/2010 2:57 AM (GMT -7)   
Thank you everybody..
Yes i have a doctor and a specalist who i see, but i get the feeling that its a case of trial and error. What works for one does not for another.
so at the moment its a case of try this and if that does not work try that!!
I was put on cymbalta on friday (30 mg) , took it in the morning like i was told, and within an hour of taking it i was disorientated, sleepy, had tremors all over and felt completely drugged and out of it. So much so i couldn't face taking it again on Saturday, i had lost all of Friday.. My family are very good but
I think its hard for anyone who does not have the condition to really understand. I'd give anything just to feel normal again!!
You are all so kind.
Deb 527

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 7/18/2010 7:25 AM (GMT -7)   
Hi deb, welcome to the family, I agree docs can be like meds, you never know which
one is really going to work for you. I have had my share of them but now have a great
rheumy. My body couldn't tolerate the Cymbalta...I felt dizzy and naseaus, I've been
on Savella for a year and it has helped. I'm never pain free, but findind something to
take the edge off sure helps. A muscle relaxer helps me when I'm flaring. I haven't
used it nightly for a sleep aid because I'm afraid of it losing it's effectiveness for flares.

I'm taking 5000 mcgs B-12 daily for fatigue and this has helped alot. Exercise helps
give me energy too. I walk daily. Taking one day at a time is the best way to go!

Glad you joined us!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

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