OMG am I glad I found you!

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Dotkom
Regular Member


Date Joined Jul 2010
Total Posts : 24
   Posted 7/21/2010 6:11 AM (GMT -7)   
Hi Pain Gang,
 
I'm SO happy to be here.  I belonged to Fibrohugs for years but their server blew up or some such thing.  They're gone now & a few of the members chat a bit on FaceBook but it's not the same or nearly as informative.  This is more like it.  Anyway, I'm Dot,  a fibro veteran.  Lately I've been in more pain & much, much, much more exhausted than usual.  In fact, I'm not generally bothered by the fatigue like so many others are.  But I've been so tired the last few days my eyes get crossed, literally.  I don't think I should be driving.  It's bad.  But I wonder if it might be partly due the endless heat & humidity.  Has anyone else noticed this weather making things worse? 

Fibro( immediately following total hyst for endo)/Myofascial Pain Syndrome/ Partially disabled, walk w/ cane since TKR/Osteoarthritis. 


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 7/21/2010 6:29 AM (GMT -7)   
Hi Dot, Welcome to our fibro family! This is a wonderful forum, everyone is caring and
understanding. I'm so glad that you joined us!

Yeah the heat does play a number on my fibro too...so does the cold, and rain. Any extreme weather change can cause me to flare. Our bodies are super sensitive.

Sherrine, one of our wonderful mods put together a wonderful resource of great info
on fibro for us. Be sure to check out fibro 101, second thread, page one.

What are you taking for fibro? I'm on Savella and use Flexeril for flares.

Dot you will meet lots of friendly fibromites here. Keep posting with any questions or
concerns you have. We care!!!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 7/21/2010 6:29 AM (GMT -7)   
Hi Dot and welcome to our Fibro family! Glad you found us, but sorry you need us...as a veteran, you know how nasty Fibro can be.

Not sure where you live (I'm in Calgary, AB Canada) but yes, weather sure does affect things. In Calgary, we have issues with the barometric pressure changing so drastically all the time, and it's horrid for those who suffer from migraines, as well as other issues like Fibro. Calgary is a very dry city, so that adds to things as well.

I'm sorry you've been experiencing so much fatigue lately. I hope that you're able to rest when you need to, or at least as much as possible. Glad you're here and I look forward to other posts from you in the near future. Welcome!

Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 7/21/2010 7:57 AM (GMT -7)   
Welcome Dot.  I'm glad you found us too.  The support and information here is just incredible.  I too am so thankful that I found this forum.  It's really like a big family here.  Hope you are feeling better.  Soft hugs.

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/21/2010 8:16 AM (GMT -7)   
Hi Dot,

Welcome. :) I'm fairly new here myself. Everyone is very friendly here, I'm sure you'll fit right in.

I couldn't agree more about facebook. I tried to get into it to keep in touch with old forum friends (different forum than you named) but facebook is not for me at all. I like places like this where people can hold in depth conversations, rather than just quick sentences, or phrases.

Anyway, is it possible that you're short on some vitamin, mineral or other supplement that might be contributing to your new fatigue? I don't know which thing affects it for me, but when I skip my (very basic) supplements for a couple days, I just about fall down from fatigue. Fibro 101 lists some important things - like vit d and magnesium etc. Maybe you should scrutinize what you're getting? Also - do you eat regularly enough? If I don't have snacks between meals I have trouble with energy and feeling ill.

Glad to have you here.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 7/21/2010 9:01 AM (GMT -7)   
Welcome, Dot!  I'm so glad you found us and joined in.  We do have a great group of people here that love to help one another and we really do care about each other, too.
 
I do get more tired in the summer.  I live in Florida so we really have heat and humidity.  I "burn out" quickly when outside.  The heat and humidity wears me down much quicker.  I also find it hard to get a good breath when the humidity is high.  I usually stay inside or in water outside.  That makes the heat bearable. 
 
Be sure to check out Fibro 101....the first thread on the forum.  There are links to good info about fibro and you just might find info that you didn't know!
 
I'm happy you are here and I hope to hear more from you soon.  By the way, HealingWell is doing great!  We should reach one million posts probably this weekend!  I do think you will like it here.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 7/21/2010 10:34 AM (GMT -7)   
Hi Dot just wanted to add my welcome to the family. We really do have great people here and they are always helpful with any problems you have. I do know what it is like to be tired all the time. I was able to handle being tired and working up until last year when it just got so bad that I was using 3 alarms to wake up and then was barely up probably 15 minutes before I had to be to work. Good thing it was a short drive. lol I finally had to give in to it. Just couldnt do it anymore.
I hope you feel better soon
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 7/21/2010 1:19 PM (GMT -7)   
Hi Dot, Welcome to the gang!
I have to laugh with your chosen nic, only because I play online games at gaming sites, and my nic is DotCom on the game sites LOL. I could see the torture we could cause together at a game site, a DotKom and a DotCom LoL! I usually hang around safe harbor games dot net or ren games online dot com. Well, we all are a lively and lovely bunch, so glad you joined our insanity...errr group. Welcome to the gang!
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis, Anxiety
Medications:  Tri Nessa, Percocet, Metformin, Prednisone, Cingulair, Albuterol, Pro-Air, Morphine, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops, Percocet, Immuran, Alvesco, Allerga, Gabapentin, Visteral  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl Undergoing Chemotherapy Taking Lorazepam (Ativan) For MRIs and Anxiety, Surpressed Immune Sytem


mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 7/21/2010 7:30 PM (GMT -7)   
yeah  Hey Dot,
 I'm pretty new here as well, but this is such a great supportive group. I belonged to a few others, but people weren't as responsive. I have noticed a difference with the heat. I am in Indiana, and between the heat and humidity..it has drained me. This is the latest I have been up in about 3 weeks. I do notice though more and more that It comes like waves with me..a couple weeks and cant sleep and its irritating..then i will have a couple weeks of pure exhaustion and i cant sleep enough. Mine I think, also has to do with vitamins, and such. Hopefully someone will come along with more info. Welcome, and i look forward to exchanging advice, and venting. Heather turn
Mama6


Ntish
Regular Member


Date Joined Jul 2010
Total Posts : 36
   Posted 7/22/2010 5:12 PM (GMT -7)   

Hey Dot,

I agreee that the high heat and humidity have a lot to do with how poorly I feel.  I also feel really bad if I get into a really how shower or bath. 

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