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Dotkom
Regular Member


Date Joined Jul 2010
Total Posts : 24
   Posted 7/21/2010 12:35 PM (GMT -7)   
I had a very interesting conversation yesterday.  As we rode the elevator together a chiropractor who lives in my building asked me how I was.  I said OK, but he persisted & asked again.  He said, 'Yes, but how do you feeel?'  I was a bit emabrassed & realized I must have looked as bad as I felt.  So I said, 'Well, I've got a rip roaring case of fibromyalgia & it's whipping my butt today!'  To my surprise he seemed to enjoy my response.  He even got off on my floor to walk & talk with me.  He asked a few basic questions, reassured me that fibro is real & not in my head (gee, thanks) and then said that he does a fibromyalgia protocol.  It's some oxygen therapy.  Hmm.  Then he said that he'd like to do a case study on me.  That's funny b/c I've always said to my husband, mostly jokingly, that I'm not normal & that science should 'study' me.   Maybe all my hurting could help someone one day.  Well, my days come, apparently.  However I found myself shrinking away from his proposal.  He's very passionate about his work & sounds quite knowlegable.  I don't question his medical prowess.  But I couldn't ever be comfortable with someone I know in a neighbor setting suddenly becoming my doctor.  I hadn't thought about it before, but I guess there are lines we don't like to cross.  I mean I tried to picture myself riding the elevator with a man who knows exactly how much I weigh.  Yikes!  He wants to do this all free of charge too.  It sounds like a wonderful gift.  But I know that I'd wind up agreeing to things I normally would object to b/c of feeling obligated.  I prefer the professional relationship sometimes, you know what I mean?  If I pay for a service I am then free to complain if the service is lousy.  But if it's given freely, then voicing a concern would be rude, bad manners.  So here I am with an offer that, who knows, might be the cure for fibro, but I'm going to decline.  What would you do? 

Conditions: Fibro( immediately following total hyst for endo)/Myofascial Pain Syndrome/Costochondritis/ Partially disabled, walk w/ cane since TKR/Osteoarthritis. 
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 7/21/2010 12:51 PM (GMT -7)   
I know I personally wouldn't do it.  First of all, chiropractics hurt me.  I gave it a good shot over about 1 1/2 years and I only got worse. 
 
Next, I sure would wonder why he has to drum up business.  If he were truly good, he'd be far too busy to try to get a neighbor in his office. 
 
Lastly, it sounds like you would be a guinea pig.  I did look up oxygen therapy for fibromyalgia and found this.
 
 
This is fairly new and there is some risk.  Just the fact that he had to approach you would sure make me wonder.  Now you have some thinking to do, don't you!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Dotkom
Regular Member


Date Joined Jul 2010
Total Posts : 24
   Posted 7/21/2010 1:01 PM (GMT -7)   
Oh, Sherrine, thank you for that reply.  btw, I love your name.  I guess subconciously I was picking up lots of things.  My body language was pretty clear.  But I was caught off guard & couldn't think deeply about his offer until later.  I was not comfortable at all.  You're right.  I'd be his guinea pig.  And I'd have very little recourse if I wasn't paying.  He mentioned too much too soon as if he were trying to wow me with his know how.  He kept saying, 'This is real cutting edge stuff.'  I dont' doubt that some of it may be worth while....someday.  But I don't want to be part of anyone's experiments.  I kept saying to hubby, 'What's he get out this?'   He also mentioned vibrational therapy.  That just sounds scary, doesn't it?  One thing he urged me to look into was mangosteen.  I have a friend who swears by it.  I may read up on that, but it will go no further than that.  Thanks, Sherrine, for putting more of this odd convo into perspective. 

Conditions: Fibro( immediately following total hyst for endo)/Myofascial Pain Syndrome/Costochondritis/ Partially disabled, walk w/ cane since TKR/Osteoarthritis. 
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 7/21/2010 1:26 PM (GMT -7)   
Dot, check out vitamin D3 and also malic acid/magnesium supplements.  I take both and they have really helped me with pain and fatigue.  I wrote about them and put the links in Fibro 101. 
 
I live in Florida but was very deficient in vitamin D.  That's because I wear sunscreen.  They are finding that vitamin D deficiency is a large problem now.  I take 5,200 IU of vitamin D3 a day.
 
Many with fibro are deficient in malic acid and magnesium, too.  Malic acid is found in apples but you'd have to eat bushels a day to get what you need.  But, as I said, I've written all about this in Fibro 101.  You might want to check that out.
 
Also, keep moving.  If you sit or lay too long, you will be stiff as a board and in more pain.  Do stretching a lot during the day, too.  There are some good stretching exercises in Fibro 101 that really do work. 
 
These things have helped me a lot.  You want a gentle exercise that you can do every day.  I walk and swim for my exercise.  I walk my dog at least a mile every morning before breakfast and this has really helped me, too.  I sure don't feel like heading out the door because I'm hurting but, by the time I get back, I have more energy and the muscles have loosened.  I've enjoyed checking out the flowers, clouds, homes, front doors and just generally talking to God and I feel so much better when I get home.
 
I hope you start to feel better soon.  Nope, I have enough problems.  I don't want to be a test subject!  smhair
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 7/21/2010 1:28 PM (GMT -7)   
I'd seek more information before making a decision. For example he stated oxygen therapy. Not all chiropractors just do adjustments. Some are licensed in other things like medical massage, accupuncture, and even primary care. I've particapated in a double blind study for topamax, and I had the real pill. I went from having 16 to 20 migraines a month to 3 to 4 migraines every month. I decided to do that study because I wasn't responding to anything else. I wanted my migraines over with. I responded very well, with very little side effects. I figured that I could make a difference by trying this new medication study. If it didn't work, it didn't work. But if it did work, I get to improve my life as well as lives around me for the better. I get to make a difference, and actually do something worthwhile that just might save somebody's life. But that is just my thinking. But whatever the decision, make sure you know what all would happen before you make the decision.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis, Anxiety
Medications:  Tri Nessa, Percocet, Metformin, Prednisone, Cingulair, Albuterol, Pro-Air, Morphine, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops, Percocet, Immuran, Alvesco, Allerga, Gabapentin, Visteral  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl Undergoing Chemotherapy Taking Lorazepam (Ativan) For MRIs and Anxiety, Surpressed Immune Sytem


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/21/2010 5:38 PM (GMT -7)   
I'd be hesitant to do it. First, because I too have had a chiro hurt me so badly that I had to see a regular M.D. to fix it; secondly because he seemed predatory in his approach. If your gut ever says, "something was wrong with the way he approached me" trust it. Guts don't lie.

I must add - not all chiros are bad. I don't mean to offend the good ones out there.

bwfm
Regular Member


Date Joined Apr 2010
Total Posts : 442
   Posted 7/22/2010 12:31 AM (GMT -7)   
You should ask him about vibrational therapy. If it is what I think it is, it's the therapy that Olympic athletes get. In fact, when I went to get it, the doctor told me that it was the same kind of therapy Michael Phelps had when he went behind the curtains between meets at the Olympics. They are now using it for people who cannot exercise. I tried it for a while, but I had to quit going because it was a two-hour drive for me to have an hour of therapy and the drive exhausted me. I also couldn't keep up with the co-pay going 2-3 times a week. Also, it exacerbated my hip pain. Don't know if that was related to fibromyalgia because I have a fatty tumor on my sacral ala (wing) of the sacrum, and I think that is what it exacerbated. If this is what it is and he's giving it to you free, I'd take him up on it. One of the ladies who also went had MS and had been going to therapy for 2 years and was doing a LOT better than when she first started - she was in a wheelchair when she first started and now can walk with a cane.

IMHO it wouldn't hurt to check it out.

Dotkom
Regular Member


Date Joined Jul 2010
Total Posts : 24
   Posted 7/22/2010 8:56 AM (GMT -7)   
Well, let me state emphatically that I LOVE chiropractic care. Good chiro care saved my life! I should have said so in my original post. And I'd go in a heartbeat if he'd offered free adjustments. But he never said a word about that. I get the impression he wants to use his new toys. I dunno. Maybe if I ask him some probing questions & like the answers I'd consider it. But I'm leaning heavily against. Thanks for all your input.
Conditions: Fibro( immediately following total hyst for endo)/Myofascial Pain Syndrome/Costochondritis/ Partially disabled, walk w/ cane since TKR/Osteoarthritis. 
 
 

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