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Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 7/21/2010 2:30 PM (GMT -7)   
HELLO MY DEAR FAMILY AND FRIENDS.
 
I HOPE YOU DON'T MIND IF I TYPE ALL IN CAPITALS.  I AM HAVING A BIT OF A TROUBLE TYPING LATELY.  I AM MISSPELLING WORDS AND GETTING THE CAPITALS ALL WRONG.  THIS IS JUST EASIER FOR ME, SO PLEASE PARDON ME.
 
WELL I HAD MY PORT PUT IN ON MONDAY AND I WENT INTO THE HOSPTIAL AT 11 AND DIDNT GET INTO THE OPERATION UNTIL AFTER 4.  I WAS TOLD HE HAD SOME PROBLEMS WITH THE CASES BEFORE ME, SO WHEN I SAW HIM BEFORE MY SURGERY I SAID, DONT WORRY DOC, THIS WILL BE THE EASIER CASE YET.  HE TOLD ME AFTER THE SURGERY THAT HE APPRECIATED ME SAYING THAT AND THAT IS WAS IN FACT, THE EASIEST CASE OF THE DAY.  SO ALL WENT SMOOTHLY.  I WAS VERY HAPPY.
 
TUESDAY I WENT TO CHEMO AND THEY ACCESSED THE PORT WITH NO PROBLEMS AND I WENT THROUGH CHEMO SMOOTHLY --NO REACTION THANK GOD, BUT I HAD A WICKED HEADACHE, BUT I DO BELIEVE THAT IS FROM THE STERIODS THAT I HAVE TO TAKE THE DAY BEFORE AND THE DAY OF CHEMO.  I STILL GET THE SHARP STOMACH PAINS TOO BUT NO NAUSEA SO FAR TO SPEAK OF SO THAT IS GOOD TOO.  BUT I SLEEP AN AWFUL LOT.  SEEMS LIKE THE CHEMO REALLY KNOCKS THE HECK OUT OF ME.  MY LOWER LEGS REALLY HURT, BUT THE PERCOCET HELPS SOMEWHAT.
 
I GOT A PHONE CALL FROM MY GRANDDAUGHTER, SIX YEARS OLD.  SHE SCREAMED, GRANDMA, GRANDMA, I LOST MY FIRST TOOTH!!  THEN A FIVE MINUTE CONVERSATION about HOW IT CAME OUT AND HOW VERY EXCITED SHE WAS.  SO I HAD TO WAKE UP LONG ENOUGH TO MAKE HER A TOOTH FAIRY PILLOW ON MY SEWING MACHINE.  I PUT AN EMBROIDERED FAIRY AND HER NAME ON IT AND A LITTLE SNAPPED POCKET ON IT FOR THE TOOTH.  THEN I PUT SOME RIBBONS ON IT.  IT IS BEIGE AND BERRY COLOR.  IT TOOK ALL THE STRENGTH I HAD, BUT YOUR FIRST TOOTH ONLY COMES OUT ONCE!!! HAD TO DO IT!!!
 
SO FOR NOW I AM DOING WELL.  JUST WANTED TO UPDATE YOU ALL AND LET YOU KNOW HOW I AM.  I AM SO BLESSED TO HAVE YOU IN MY LIFE WITH ALL YOUR PRAYERS.  THANK YOU SO VERY MUCH FOR THEM.  I COULDNT BE HAPPIER FOR ALL OF YOU TO BE WITH ME ON THIS JOURNEY.  THANKS FOR BEING SO INTERESTED TOO.  THAT MEANS A LOT TO ME AS WELL.
 
GOD BLESS ALL OF YOU AND KEEP IN TOUCH.  I MEAN IT, I LOVE TO HEAR FROM ALL OF YOU.
 
LINDALOO

Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 7/21/2010 3:14 PM (GMT -7)   
Glad to hear they got your port in and it went well.  I know you're glad to have it overwith.  I so admire you.  You are going through all this with such a great attitude.  Please keep us updated.  I am keeping you in my prayers.
 
 

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 7/21/2010 3:48 PM (GMT -7)   
Dear Linda,
Im so glad that the port operation went smoothly and I have to admire you for being so patient during the wait and maintaining your sense of humor. It shows what a strong person you are.
The being tired is probably because your body is in a great fight right now and sleeping is your way of helping it.
The fairy pillow sounds wonderful and you are right they only lose their first tooth once. Thanks for letting us know how you are doing and as always you are in my prayers.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)


KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 7/21/2010 3:56 PM (GMT -7)   
Thank you for the update and I will keep you in my prayers....((hugs))

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/21/2010 5:30 PM (GMT -7)   
I may not know you yet, Lindaloo, but I can tell from reading this post of yours that you're one heck of a person. You made your surgeon feel at ease ... and you wanted to be sure your granddaughter got her tooth fairy pillow. Who does those sorts of things? Great people, that's who. Keep getting well. You've got a lot on your side. Will be praying for you. *hugs*

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 7/21/2010 6:54 PM (GMT -7)   
Linda, I am glad that the port went in well and without a hitch, and that you did not get terribly sick from the chemo. I hope it stays that way.
gentle hugs,
Sue

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 7/22/2010 5:18 AM (GMT -7)   
Linda, I'm so glad the procedure went well, and I'm so happy that you aren't battling nausea. I know that can sometimes be difficult to deal with.

What a blessing that you were able to make the pillow for your granddaughter. What an adorable idea; I'm sure it is something she will treasure. :-)

Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
 
 
 
 
 
 


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 7/22/2010 5:52 AM (GMT -7)   
Thank you for all your responses. You don't know what it all means to me.

Last night I took a shower and most of the rest of my hair came out. I think I clogged the shower up. Oh no!! Thought I tried to get it all out. Oh well. Well, now I am into the scarves my dear daughters bought me, so I am prepared. Ordered a sleep cap last night too, so my head doesn't get cold at night too. Wish me luck folks!!

My headaches are better and I am sleeping very well so that is good.

I love you all and thank you so much for your responses. God bless all of you and I will continue to update you as soon as things change as they do


Love you all.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 7/22/2010 8:33 AM (GMT -7)   
Linda, I am praying for you. The tooth fairy pillow sounds adorable. Also, to cheer you up (maybe), my neighbor lost her hair during chemo and when it grew back it was RED! Keep your spirits up. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1371
   Posted 7/22/2010 11:48 AM (GMT -7)   
Hi Linda,
 
So glad to hear from you. You are amazing, and I mean that sincerely. You are going thru so much and yet your thoughts are for others, your dr, your DGD, us.
 
Your posts mean a lot to all of us, too. We see a woman who is facing very serious circumstances and deals w/ it w/ much grace, faith, humor and love.
 
Rest as much as your body needs, this is also part of the healing process.
 
My prayers are w/ you and your family.
 
God bless.  Alice.

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 7/22/2010 4:42 PM (GMT -7)   
I also don't "know" you yet but am sure I will in the not so distant future. The toothfairy pillow sounds adorable. Isn't it amazing that we find inner strength to do those important things?

Sleep as much as your body needs, it is a must.
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 7/22/2010 5:01 PM (GMT -7)   
Wow, Linda, you are an inspiration! Grace under fire.... lots of healing thoughts and prayers are coming your way. What are your scarves like?
Achey
This too shall pass...   
 
 
.......fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed
    
 


Southernlady
Veteran Member


Date Joined Jun 2008
Total Posts : 844
   Posted 7/22/2010 5:59 PM (GMT -7)   
Linda, I'm so glad everything went well.  You are indeed an inspiration to all of us.  We all think we are having troubles until we look around and see someone in a lot more trouble than ourself. 
 
May God keep watch over you and may you come out stronger than before.  I think each trial we face makes us stronger.  Keep up the faith and he will keep watching over you.
 
God Bless!
Shannon
Of all the things that I have lost, I miss my mind the most!!!!


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 7/23/2010 5:10 PM (GMT -7)   
Well, I shaved my head tonight. My DH helped me by using the clippers and the attachment. It looks better. I don't look so much like my grandmother now and I don't look so sickly. I feel better. I thought it would be more depressing but it's not, so I'm happy about that.

Just thought I would share that all with you.

God bless and have a good night.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/23/2010 5:33 PM (GMT -7)   
Hi Lindaloo,

I'm glad your hubby could help you with that and that you feel better about it now. Sounds like it was a good idea.

There is a little boy's story that I've been keeping up with for a long time now. He is beating the worst kind of brain cancer around. He's not just beating it - he's kicking its backside all over the place. :D He has the most outrageously good attitude - a lot like what I hear in you. :) I think that's what does it. So you kick this thing like that little boy is kicking his. You can do it.

There is also a book I heard about written by a man, a doctor actually, who kicked brain cancer and has kept it gone for 16 years. I'll look up that link to the interview I heard with him - and find out the name of the book. It was all sorts of common foods that help fight cancer. He said it works with your medical treatment - not in place of it. I'll dig it up for you.

*hugs*

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/23/2010 5:36 PM (GMT -7)   
Ah - found it faster than I expected:

Quote: "Dr. David Servan-Schreiber faced this question himself when his brain cancer recurred. He went to the medical literature to find the evidence on ways to strengthen the immune system and prevent cancer.

Guest: David Servan-Schreiber, MD, PhD, is a neuroscientist and clinical professor of psychiatry at the University of Pittsburgh School of Medicine. He co-founded the Center for Integrative Medicine there. He is also a founding member of Doctors Without Borders. His newly revised book is Anti-Cancer: A New Way of Life."

I think you can hear his whole interview at this link:
http://www.peoplespharmacy.com/2010/02/06/757-anti-cancer/
www.peoplespharmacy.com/2010/02/06/757-anti-cancer/

I hope this might be useful!

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 8/1/2010 6:11 AM (GMT -7)   
I am doing well more than a week after the recent chemo treatment. I had "noodle legs" for about a week which is supposed to happen with the chemo drug, taxol. It feels like your legs are wobbly when you stand on them. LOL just what I needed!

My head is a little sensitive surprisingly enough. I wear a sleep cap almost all the time. It is so light and comfortable that I prefer it. I can't go bald (without some sort of cover) because my house is too cool with the airconditioner at the moment. But I am comfortable with the sleep hat. Being a seamstress, I will take it as a pattern and make another one for myself soon when I am up to it.

Hubby watches me like a hawk and makes sure I have everything I need. He is really a sweetie, I must say.

I think of you all every day and pray for all my friends on healing well. You all have been so kind and supportive to me. I appreciate all your love and prayers. It has meant the world to me. And I read and re read everything you write to me. I love to hear from you all. It helps me to go what I am going through.

God bless and have a very low pain day.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/1/2010 7:52 AM (GMT -7)   
Linda, you are an inspiration. Your attitiude is admirable! It is wonderful that you
have a great supportive hubby. Know we all are praying for you. Sending gentle
hugs and healing vibes.
 
Hugs, Robin wink

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/1/2010 8:18 AM (GMT -7)   
This all sounds very positive. Thanks for letting us know how you are doing. Your husband sounds like such a dear! Tell him we'd like to clone him. :)

I'm so glad to hear you're a seamstress - I was thinking how nice it would be if you had more hats and scarves and whatnot available to you. I bet there are some lovely things you could make. I'm only a novice sewer - but when you're feeling better it would be so nice to hear about what you sew. I admire that skill you have!

Prayers and wishes will keep coming. You're in our thoughts here every day.
*hugs*

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 8/1/2010 8:53 AM (GMT -7)   
Oh, me too . . . I love to look at and feel fabric and imagine what could be made from it - (but that's as far as it goes. No patience to actually carry through.) It's great that you have that ability, esp. now when you're going through something so tough. Best wishes -

Debbie (Achey)
This too shall pass...

.....fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/1/2010 9:01 AM (GMT -7)   
Hi Lindaloo it is wonderful to hear that you are feeling better right now. Im glad that shaving your head has made you feel better about yourself too. I told my oldest son who has dreadlocks that hang all the way down his back that if I end up having chemo and losing all my hair he has to shave his for moral support being as we both have these huge ears that stick way out. lol I wasnt really serious but it made him laugh. I continue to pray for you and hopefully soon this will all be behind you.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/1/2010 9:30 AM (GMT -7)   
Lindaloo, you really are amazing!  As other have said, your attitude is wonderful and this will help you in the long run.  I sure wish you never had to go through this but the courage you have shown, to put this out on the Internet to help others, is wonderful. 
 
I'm glad you are doing better and you will be surprised how quickly your hair will grow back after this is all over.  You are doing wonderfully well when it comes to dealing with this.  I'll be so happy when this course of healing is over for you.  Feel better.  You are in my prayers.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 8/1/2010 1:53 PM (GMT -7)   
Sending you hugs and blessings.
-----------------------------------------------------------------------

Fibro Acid Reflux Bicuspid Aortic Valve Disease



meds:

aleve flexeril as needed ambien to help sleep

vitamin d and iron



prevacid





__________________________________________________



Don't think about what you used to be able to do............
Think about you DID do today !
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