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RoseCrone
Regular Member


Date Joined Aug 2008
Total Posts : 71
   Posted 7/21/2010 4:11 PM (GMT -7)   
Just wondered if other fibromites have experienced this.  For the past 2 weeks about every other day, usually late afternoon, I have been getting excruciating stomach pains, above the belly button and below my sternum.  These are 10 on 0-10 pain scale.  Last about 20-30 minutes.  I literally cannot do anything when it happpens  except ride it out.  Had been thinking it's just stress, since my fibro has not manifested this way before and I know stress can really mess with the stomach.  I have ruled out all food causes.   No other consistent symptoms, although 2 out of about 10 times I had mild hearburn and a couple of times some nausea.  One time the pain radiated to my back as I tried to find a less painful position-fetal position was when I felt it radiate to my back.  One time it did happen around 9pm and one time in the morning, but otherwise pretty consistently between 3-5pm.
 
I cannot think of any time that these occurred on a particularly stressful day.  They come on suddenly pretty much without warning, but somehow I think they are stress related. 
 
I did go to my primary Monday who ordered blood tests, did an EKG, and sent me for x-rays and ultrasound yesterday, and also saw a GI surgeon right after the tests. All tests turned out negative.  Gallbladder is fine, no upper GI obstructions.  He says it could be an ulcer, possibly duodenal, so I have to to an upper GI series with small intestine barium  test.  Not until next week though.  In the meantime he prescribed Prilosec which doesn't make a lot of sense to me.  
So is this common to folks with fibro or just another separate issue?  I have had plenty of those (separate issues). cry
I'd appreciate anyone's experience with this type of issue.  I know we aren't docs on this site, but sometimes other's experiences help me ask the docs the right questions!
Thanks,
Rose

RoseCrone
__________________________
Fibromyalgia, TMJ , MPD, CFS, hypothyroid, bruxism, endometriosis, medically induced menopause (everything removed!), "clinical" depression and anxiety
__________________________
Ultram, Soma, Klonopin, Lyrica (on and off), P- Thyroid , Famvir, can't tolerate SSRIs or SNRIs and most AIMs.  Recently added Roxicet (Ultram tolerance and maxed on dosage).  Trying gabapentin as of 4/1/10.


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/21/2010 5:08 PM (GMT -7)   
Rose that is definitely no fun at all. I'm so sorry about this all. The symptom itself isn't necessarily fibromyalgia, as far as I know, but it does sound like it could fall under the heading of IBS. I have both, and many fibro sufferers do have both. My first reaction was gall bladder when I read your symptoms. It sure sounds like a gall bladder attack - but you said they've exhausted that avenue already. Hmm. I used to get wicked heartburn every late evening - and for a while they postulated that maybe I had GERD (I don't actually.) One doctor said that the acid levels in our stomachs get much higher later in the day, hence the night attacks. It could also fall under the category of an ulcer - something I also suspected I had for a long while - the symptoms can be like that.

I'm afraid I'm not helping you solve this - I'm sorry about that - but your doctor is looking at all the things that came to mind for me.

If it is gall bladder - it would be fat/grease that causes an attack.
Then again, fat and grease can trigger ibs - but more typically you'd be having diarrhead (not always though.)
If it was an ulcer, I'm thinking you'd be triggering it with anything even remotely acidic: fruit juices, lemonade, coffee & tea, vinegar/salad dressing, tomato sauce/tomatoes, etc.

Could you keep a food diary, just to help the diagnosis along?

Azgram
Regular Member


Date Joined May 2010
Total Posts : 58
   Posted 7/21/2010 5:28 PM (GMT -7)   
Rose, sorry you are going through this.  I started the same thing during May, along with constipation.  I had an egd & colonoscopy,  was diagnosed with gastritis, & had a polyp scraped out of my duodenum.  I have been on Prilosec for years, & they changed me to Nexium, which helps.  I still can't eat anything spicey or tomatoes.  Most of my pain is on the left & up high under my ribs, around to my back.  I get so bloated that I bought cheap men's jogging shorts for the loose waistband!  I'm finally doing better, & I hope you feel better soon.  It's miserable.  Azgram

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 7/21/2010 7:31 PM (GMT -7)   
I have had pains like this but it is usually brought on by a medicine that does not agree with me or something that I ate. Dont know how many times I went to the emergency room to have them tell me they couldnt find nothing wrong.Before I figured out what was causing it. I still get the pains every now and then but I know now alot of the things that cause it and I avoid them.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)


RoseCrone
Regular Member


Date Joined Aug 2008
Total Posts : 71
   Posted 7/21/2010 7:58 PM (GMT -7)   
Thanks for sharing...I really doubt an ulcer because I can eat things that are acidic and nothing happens (unless it's a 2-3 hour delayed reaction?).  Most of the time my stomach is empty when it happens, that seems it ought to help with diagnosis.  I rarely get heartburn and if I do it's very slight.  Maybe because I am on pain meds I really am getting bad hearburn and don't know it?
But, we shall see.   The test should show something.  Then again the sternum pains I was getting over a year ago stopped on their own and were never diagnosed as anything but muscle spasms by an ER doc.  That was embarrassing to go to the ER for muscle spasms.  Same thing happened with a mucsle in my left shoulder.  That one I did not ignore because it was too close to a heart attack symptom.  But it was a mucle spasm.  More embarrassment.  Even this time I fear embarrassment, but not enough to ignore it.
Does IBS cause pain in the upper abdomen?
Never thought of a polyp.  I wonder if that would have shown on an ultrasound or xray? 
Again, I appreciate everyone sharing and caring!!!
Rose
RoseCrone
__________________________
Fibromyalgia, TMJ , MPD, CFS, hypothyroid, bruxism, endometriosis, medically induced menopause (everything removed!), "clinical" depression and anxiety
__________________________
Ultram, Soma, Klonopin, Lyrica (on and off), P- Thyroid , Famvir, can't tolerate SSRIs or SNRIs and most AIMs.  Recently added Roxicet (Ultram tolerance and maxed on dosage).  Trying gabapentin as of 4/1/10.


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 825
   Posted 7/22/2010 10:45 AM (GMT -7)   
Last year I started getting heartburn and stomach pain everyday about the same time. This went on for about 2 weeks. I did think heart attack once or twice. Then I started with a rash all over my body. It turns out I was allergic to my blood pressure meds. The pain stopped when I stopped the pills. Could your pain be medication related?
Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 7/22/2010 11:19 AM (GMT -7)   
Hmmmm, a mystery! Not fun! My first reaction was appendix (mine didn't "present" where it was supposed to) but it sounds like you had lots of bloodwork and the white blood cell count would have been elevated if that was it.

I just went through this with my daughter - just posted about it - now she's getting her gallbladder out tomorrow. When the symptoms first started, a doctor prescribed Prilosec for her, too. It didn't do anything. The surgeon asked her about that today, so it must be a common tool they use to eliminate stomach, and maybe ulcer, problems. I sure hope you get it figured out without too much of the run-around. Sounds like some nasty pain!
Achey
This too shall pass...   
 
 
.......fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed
    
 


RoseCrone
Regular Member


Date Joined Aug 2008
Total Posts : 71
   Posted 7/23/2010 7:11 PM (GMT -7)   
I have been wondering about meds, I have heard that even if you have been taking a med for a long time you can have a different/bad reaction happen. I did stop the HRT I recently added after reading that increased estrogen can cause gallstones. Since the ultrasound showed none I guess I can start that again.
So if tests next Tuesday are negative that may be the next process of elimination, with other meds.
My doc did decrease my klonopin from 3/day to 2/day (I didn't get much say in this because apparently docs just don't like anything addictive, even if it helps!). Maybe my stress is reacting to less anti-anxiety medication with stomach pains.
I have to stop the prilosec after 2 days because today I started getting the pain right after eating. Before the prilosec it was not until 2-3 hours after eating. Now I am afraid to eat (and my appetite has not been normal either).
I will have to see if a couple of days without prilosec changes whem the pain occurs again. I guess it might be a diagnostic point at least!
Rose
RoseCrone
__________________________
Fibromyalgia, TMJ , MPD, CFS, hypothyroid, bruxism, endometriosis, medically induced menopause (everything removed!), "clinical" depression and anxiety
__________________________
Ultram, Soma, Klonopin, Lyrica (on and off), P- Thyroid , Famvir, can't tolerate SSRIs or SNRIs and most AIMs.  Recently added Roxicet (Ultram tolerance and maxed on dosage).  Trying gabapentin as of 4/1/10.


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/23/2010 9:26 PM (GMT -7)   
RoseCrone said...
Thanks for sharing...I really doubt an ulcer because I can eat things that are acidic and nothing happens (unless it's a 2-3 hour delayed reaction?). Most of the time my stomach is empty when it happens, that seems it ought to help with diagnosis.

Rose


Hi Rose,

I meant to reply to this the other day, sorry. A delayed reaction may not rule out an ulcer, or similar problem. That would be a good thing to research further.

Have you considered a hiatal hernia by the way? There was some talk of this in my case for a while - never confirmed or denied with testing though.

I'm sorry you're getting afraid to eat. I've been through that. :( You could try the very bland BRAT (Bananas, Rice, Applesauce, Toast) diet for a while, and thenadd other foods slowly if it sets well with you. The only drawback is the lack of protein - so you don't want to do that very long. (No coffee or tea - water is safest.)

Also - although I'm not saying you have IBS, the starting point of this diet helped me with more than just my IBS symptoms. I'm not as strict as this site indicates any longer - but when you're trying to find safe foods it is a great place to start. (If I posted this before - forgive my fibro fogginess) http://www.helpforibs.com/diet/

Wishing better days for you.

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/23/2010 9:38 PM (GMT -7)   
PS: Found this for you:

Symptoms of ulcers in the upper small intestine (duodenal ulcers) and in the stomach (gastric ulcers) are similar, except for when pain occurs.

* Pain from a duodenal ulcer may occur several hours after eating (when the stomach is empty) and may improve after eating. Pain also may wake you frequently in the middle of the night.
* Pain from a gastric ulcer may occur shortly after eating (when food is still in the stomach).

http://www.webmd.com/digestive-disorders/tc/peptic-ulcer-disease-symptoms

Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 7/24/2010 6:42 AM (GMT -7)   
Sounds like gallbladder. Mine would hurt like that and the tests showed nothing. Went on for a few years and then one day it was the worst pain ever, went to the er and they found stones in my gallbladder. I don't know why it took so long for it to show up but it did. I hope that you aren't having gallbladder problems but it could be. Hang in there, maybe the attacks will go away soon. Mine did go away for a long time then came back out of the blue.

Hope you are feeling better.
Fibromyalgia,arthritis,raynauds syndrome,gastroparesis,IBS,depression,severe costochondritis, generalized anxiety disorder
 
God and Family is my life.


RoseCrone
Regular Member


Date Joined Aug 2008
Total Posts : 71
   Posted 7/24/2010 12:13 PM (GMT -7)   
Thanks again for more info! I wonder why gallstones would not show up initially then show up later. I did have an ultrasound and she was pretty thorough. But I will keep this in mind.
I have heard of the BRAT diet. Today I had toast and was ok, then took the chance at lunchtime with leftover shepards pie - only a little bit - to see what happened. Nothing so far for pain and it's been a couple of hours. A little deduction tells me the prilosec changed the pain pattern (did not take it today). If I have no pain today then I am definitely not taking the prilosec - yesterday both after lunch and after dinner I had that pain, and it was the first time it happened twice in one day! Any drug that causes more pain (and more frequent pain) just doesn't seem right to be taking. Earlier this week I went 3 days with no pain at all. Such a puzzle.
Thanks again....and I will look at that info on the different types of ulcers!
Rose
RoseCrone
__________________________
Fibromyalgia, TMJ , MPD, CFS, hypothyroid, bruxism, endometriosis, medically induced menopause (everything removed!), "clinical" depression and anxiety
__________________________
Ultram, Soma, Klonopin, Lyrica (on and off), P- Thyroid , Famvir, can't tolerate SSRIs or SNRIs and most AIMs.  Recently added Roxicet (Ultram tolerance and maxed on dosage).  Trying gabapentin as of 4/1/10.


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/24/2010 12:32 PM (GMT -7)   
Hey Rose, I have heard of people with gallstones not having them found upon the first ultrasound. Ask Achey - because I think her daughter just had a hide-a-scan (sp?) for gallbladder. Also - I believe the gallbladder can be diseased and not always have stones. My mother's surgeon mentioned that in passing once.

If the reaction is coming and going - I guess I wouldn't totally rule out gall bladder either. It would flare with fats/oils/grease content of your food mostly - -and I think it could take a few hours after the food is eaten to happen. Mom's final large attack was 5 or 6 hours after dinner. Hers was diseased, full of stones, and also ended up containing MRSA infection (cultured upon surgical removal). If it is gall bladder, the doctors and surgeons told me that each attack could be dangerous. If you have a massive amount of pain, pass blood, throw up blood, or just generally feel terribly unwell do NOT hesitate to get to the hospital. Not meaning to scare you, but that's what the doc's told my mom when she wanted to wait and think on having surgery.

sarah21
New Member


Date Joined Jun 2013
Total Posts : 1
   Posted 6/26/2013 3:05 PM (GMT -7)   
Hi Rose,
Just wondering if you ever discovered what your stomach pains were? I am having the exact same symptoms and am hoping you have some insight. Thanks!

Myself 09
Veteran Member


Date Joined Dec 2009
Total Posts : 5883
   Posted 6/26/2013 3:16 PM (GMT -7)   
Sarah-
RoseCrone has not been around for awhile. You might want to post your question where many more people will see it.
Fibromyalgia DX 2005. Ulcerative Colitis 2003, Crohn's 2013, enteropathic arthritis and Ankylosing Spondylitis, 2013. History of Fibro--2 out of 3 siblings diag

There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 6/26/2013 8:30 PM (GMT -7)   
Yes, Sarah,

This is a very old thread, so I'm locking it (that's what we do in these cases.) But by all means, do start a new one! I have some further insight into this subject.

Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (recent discectomy), DDD, frozen shoulder(s?) Hashimoto's thyroiditis, IBS, migraines, visual disturbances, tachycardia, hearing loss (probably Menieres,) balance issues, chemical sensitivities.
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