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EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/23/2010 9:49 AM (GMT -7)   
TO the boards but not to Fibro.
 
My name is Maria and I'm 43 years old.
 
I was diagnosed with Fibro about 6 years ago.
 
I have my good days and I have my bad days.
The worst part is when people think you are just being lazy.
That is what my EX husband thought and told me so all the time.
 
I started noticing something was wrong when  I was carrying my 2 year old nephew up the stairs and I almost couldn't do it.  My legs got weak and I had to hold onto the banister to pull myself up.  I knew something wasn't right.
 
Now most days I have the usual "not there" feeling and awkwardness and off balance feeling.
I have a lot of neck and shoulder pain along with rib discomfort.  I hate it when someone comes up and pokes me in the ribs, it hurts so bad.
Some days my legs are very sensitive and it initially will hurt when my 7 pound dog will lay her head on my leg.
 
I also have IBS and Acid reflux.  Also this past year I've found myself putting on a bit more weight as well along with that nasty middle age pooch in my belly.  LOL!
 
I try to walk on a regular basis at least 4.5 to 5 miles 4-5 times a week.
I started going to Zumba classes at the end of May and just love it.
Until recently.
The last month my legs have really been bothering me.
Just feeling heavy and weak and no energy at all.
Last night at Zumba I couldn't do hardly anything and I thought I was going to pass out and my legs were very weak.
I went to the doctor today and he said that I have the onset of arthiritis in my knees combined with the fibro.
He said that the Zumba may just be too much for me to do.
He told me to take 2 aleve before each class and see if that helps.
If not, then I may have to give it up and just stick to the walking.
 
I look forward to getting to know everyone here and get some moral support as well as give it.
I know that Fibro is hard for someone to understand if you don't have it.
 
Thanks and God Bless!
 

EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/23/2010 9:59 AM (GMT -7)   
Wanted to add that right now I don't take much medication on a regular basis.

I take vitamin D daily for the dizziness, but it doesn't help but I still take it.

I also have taken flexeril at bedtime if I have very bad pain, but I don't like the way I feel for the next couple of days after taking it.
So right now if I have trouble sleeping I take Ambein and it seems to work without the icky feeling.
I also take Prevacid for my acid reflux.
Then I take aleve when I'm hurting.

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 7/23/2010 10:07 AM (GMT -7)   
Hi EML and welcome to our fibro family. Reading your post reminds me so much of my self. Arthritis in the knees, Acid Reflux, sensitive legs, and cant stand getting poked anywhere. I have had fibro I believe since I was very young after a fall off a horse and other trauma stuff. I was diagnosed 10 years ago. I am older than you by a few years. lol
I have a 2 year old grandson that I have a hard time lifting much less carrying him up stairs. I told my son he has 3 more pounds and I wont be able to lift him at all. lol
He weighs 37 lbs. now.
Anyways Im glad that you found us because there is a great bunch of people here and I really do consider them to be family. Feel free to post questions anytime and we will do our best to answer them.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 7/23/2010 10:12 AM (GMT -7)   
Hi EML,
 
I am so glad that you have joined us.  My new doc wants me to take flexeril at night instead of my ambiem.  It would be nice if it worked.  I have had a hard morning thus far.  I just didn't get the restful sleep that I got from the ambien.  It is so frustrating.
 
The vitamin D is good for you as long as you take D3, which I imagine that is what you are taking.  I don't know if it helps with dizziness, but most fibromites are low in it and to me it makes me feel good all the way around.  I usually take 2000iu of it.  But when I was low, I took more.  This is more for maintainance now.  But I can always tell when I forget it.  So I finally put it in my pill box with my other pills.  Many others...lol...
 
If you get a chance, check out the thread called fibro101.  There is a wealth of information on there.  Our wonderful Sherrine put this together, she will be on soon to greet you I am sure.  But anyways it is the second thread on the forum.  You should have no trouble finding it.  And I am sure you will be glad that you looked it over.
 
With this being said, I want to wish you a wonderful day.  Keep your chin up, take life one day at a time.  Keep walking.  That is one of the best things that you cn do for yourself.  I walk my dogs daily and we all benefit from that. 
 
Keep posting and feel free to post on other threads.  Thank you for the introduction.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/23/2010 10:34 AM (GMT -7)   
HI Shirley and thank you.

I have two new great nieces and it just kills me that I can't hold them for very long periods at a time.
I'll hold them for a bit then my arms give out and I'll have to hand them off, but at least I can still kiss them. LOL!
I could not lift anything that weighed 40 lbs. I do good with 10 or 20. :D

I also had some head trauma a few years back. Fell of a 7 foot retaining wall in my sister's backyard and was knocked out for serveral minutes.
Fractured my left hip, which now still bothers me from time to time.
I've no lasting head trauma though, thank the lord for that.


Thank you Karen,

The flexeril does help the muscle pain when it's intense but I just don't like how I feel afterwards so right now I only take it on the weekends and if I feel really bad.
My doc did warn me that the Ambien would NOT help the muscle pain so I was aware of that but I like that it doesn't make me feel groggy.

I do take the vitamin D-3 but right now only 1000
Maybe I should check with my doc about taking it twice a day .
I haven't noticed any difference in the dizziness though and I have been taking it for awhile.

Again, thanks for the very warm welcome.

I belong to a crafting board as well and many of the women there have fibro so I will have to tell them about this place.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 7/23/2010 11:15 AM (GMT -7)   
Hi, EML, and welcome!  I'm so glad you found us and joined our family.  I, too, take vitamin D3....5,200 IU a day.  Many people, not just people with fibro, are finding that they are deficient in this vitamin because we aren't in the sun as much AND we wear sunscreen when we do get out in the sun.  There aren't too many foods that have high amounts of D in them either. 
 
I also take malic acid/magnesium for pain and fatigue and this has helped me a lot, too.  If you check out Fibro 101...the first thread on the forum....you will find links about malic acid/magnesium and also vitamin D and how these supplements and nutrients work in your body. 
 
I have to do gentle exercises.  If I do something too strenuous, I'm in more pain.  I walk and swim as my forms of gentle exercise.  I also have a walking in place video that has some aerobics in it that helps, too.  These shouldn't hurt your joints that much...especially swimming.  I hope you have access to a pool and can get some exercise there.  As you have found out, exercising does help with the pain of fibro.  We usually don't feel like exercising but it is well worth it. 
 
I'm happy you are here.  We have wonderful members that love to help one another so I think you will really like it here.  As a bonus, we really do care about each other, too!  Don't hesitate to ask questions because we are here to help.  Hope to hear more from you soon.
 
Sherrine 
 
 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/23/2010 11:56 AM (GMT -7)   
Thank you Sherrine.

I did check out the fibro 101 and have malic acid/magnesium on my list to check with my doctor.

I usually walk along with the Zumba once or twice a week, usually once.
I did a water aerobics class once and loved it.
It was outside and has been raining on the nights classes are scheduled so haven't had a chance to go back.
But even if I like it it will end once summer is over.
And I hate paying for a gym membership just to use the pool.

Thank you so much for the kindness.
It's nice to be somewhere where people understand what you are going through.

My boyfriend of a year just broke up with me a few weeks ago.
He is very active and loves to do all kinds of sports.
We used to go roller skating on sundays, something I hadn't done in ages and loved it.
We had so much fun.
But I guess he thought I was or would hold him back from doing the things he liked to do.
------------------------------------------------------------
 
Fibro    Acid Reflux    IBS


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 825
   Posted 7/23/2010 12:19 PM (GMT -7)   
Welcome EML. I too have a lot of neck and shoulder pain. Some days I'm good, others days not so good. I also do lots of walking. I try to walk on grass because I have arthritis in my knees, hips, and spine and I feel the softer grass doesn't hurt me as much. I really love the elliptical machine too because there isn't the impact on my knees. I do yoga most days to stretch.

You mentioned Zumba. This is something I was thinking about trying, maybe. It might be too much for me.

Glad that you joined us. This is a great place with lots of caring people.
Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 7/23/2010 1:56 PM (GMT -7)   
Hi Maria, welcome to our family! Zumba seems like it would be such a fun exercise
if you aren't hurting...zumba music is happy and watching people do it is like
watching a party!

Sorry you have added arthritis to fibro. It isn't fun when the joints begin to swell.
I hope the aleve works well for you so you can continue Zumba.

I'm a walker too and find it helps with stress and gives me energy. I love to soak
in a hot tub to relax my muscles. Breathing exercises and meditaion relaxes me too.

For fibro I'm taking Savella daily and use Flexeril when I'm flaring. I'm glad you
have joined us. Continue to post, we do understand and care!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/23/2010 1:58 PM (GMT -7)   
Hi Maria. :) Welcome to the forum. It's great that you're here.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 7/23/2010 2:02 PM (GMT -7)   
Maria, I'm sorry about your boyfriend but actually it's for the best.  You found out, before it was too late, his lack of loyalty.  If you love someone you stay with them.  Just think if you remained healthy, married him, and then got fibro!  What a mess! 
 
I developed fibro right before my 40th birthday.  I was married nearly 18 years at that time.  No one wants to see their loved one ill.  It was hard on my husband but he stood shoulder to shoulder through fibro and all my other illnesses.  (My Crohn's disease kicked in when I was 31 and had three babies.  That was a huge mess, too.) 
 
So, even though it hurts right now, it is for the best.  You will meet someone that will love you for YOU...not what you can do.  That's really important.  You are not a "defective" person.  You are a person with a chronic illness that has a lot to offer the right person.  You are very special and never think otherwise!
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 7/23/2010 2:38 PM (GMT -7)   
Hi Maria,
 
I too am sorry about your break up with your boyfriend.  But like Sherrine said, it is better now than farther into the relationship.  It would have hurt a lot more emotionally if he would have waited any longer.  It is sad though, and I feel he is very shallow if he was worrying that you wouldn't be able to keep up.
 
My husband and I have a good relationship.  He does his thing and I do mine and we meet in the middle.  We are both getting up there in years so we have both slowed down just due to age.  But he has LLS in his back and that puts a damper on the things he would like to do.  But it works out, we both understand eachother's pain. 
 
You will find that there are a lot of people that don't understand fibromyalgia.  And it is a shame too.  But we can educate them I guess.  In our own ways.  If we feel it is worth the effort.  But coming here, you are understood and the support is awesome. 
 
I hope that you are having a good day today.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/23/2010 7:28 PM (GMT -7)   
Thank you for the warm welcome and the support.
You guys have made me cry. :D

PUPPYLOVER:
Love your name. :D I could never have children but I have one very spoiled little furbaby.
I think my neck and shoulder pain is the worst and I have very bad headaches at times.
Do you see a chiropracter. I do on a monthly basis but lately that hasn't even helped .
Most of the time when I walk I go to the school track behind my house and it's pretty soft compared to pavement. We also have a wonderful walking path by the river that I love to go to. It helps to relax me and relieve my stress and the scenery is wonderful.
I'll let you know if I have to end up quitting the Zumba. You do get a pretty good aerobic workout.

CRAZYKITTY (Robin):
I love the Zumba music. It is so lively, just so much fun and that is what gets me in the mood to just want to do it and get into it. It's a blast and our instructor is the best.
I also have to have my hot baths. LOL! Even in the summer, I am definitely a bath person for sure.
How are you doing with the flexeril? I only take it when I really have to. It makes me feel so groggy the next day.

Thank you THECHICKENPRINCESS lol!

SHERRINE:
I know it was for the best with my boyfriend.
I told him right up front on our first date about the fibro. I even printed some info out for him to read so he could understand it better.
He was very understanding and said that he understood and it wouldn't be a problem. But I think it's easy to say that until you've had to deal wtih it.
Then when he did have to witness my bad days, it got to him after awhile.
I've had a rough few years going through a divorce and then a bad couple of relationships after that.
I'm thinking just stick to me and my puppy dog and things will be fine. LOL!
I'm glad that you have a caring husband that has stood by you.
I won't even get into my 40th birthday and what my husband did. Needless to say it was a birthday to forget.

KAREN:
Thank you.
That's good that you also have someone understanding in your life. :D
It's 10:30PM
I've had my aleve and my hot bath and I'm not doing to bad right now.
I didn't go for my walk, took my mother out to dinner for her birthday instead.
That was worth it. LOL!

Thanks again everyone!
Hugs and Blessings!
------------------------------------------------------------
 
Fibro    Acid Reflux    IBS


mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 7/23/2010 8:21 PM (GMT -7)   
yeah  Welcome Maria,
So sorry we have to all go through this pain, to meet such caring, compassionate people. Everything happens for a reason, I suppose. I have not been around for very long but as you can see so far, everyone is so wonderfull!! I hope to chat with you more,but for now, I have been having a painfull couple of weeks and the typing gets to me. TTUSoon, smilewinkgrin   Heather
Mama6


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 7/24/2010 9:53 AM (GMT -7)   
Maria, I've been a widow for nearly 13 years.  Now it's me and my dog and two cats!  Not a bad arrangement at all!  turn
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/26/2010 7:07 AM (GMT -7)   
Thanks Heather.

I have met some wonderful people on message boards.
I loved crafting and found a crafting board and have met some amazing ladies.
I have even met some in person over the years and have formed lasting friendships.
When I went through my divorce a few years ago, it was funny, but my cyber friends were actually my rock through it all. They gave me so much love and support I don't know how I could've done with without them.

I look forward to getting to know and chatting with you and everyone else more.

Sherrine,
At least my dog won't
lie to me
cheat on me
tell me I'm lazy or boring
or give up on me

I wish we could post pictures here and I would share one of my sweet Bailey with all of you. :D
------------------------------------------------------------
 
Fibro    Acid Reflux    IBS


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 7/26/2010 8:29 AM (GMT -7)   
And, Baily is loyal, will love you no matter what, and is always by your side to help you.  Now, THAT'S what I call a deal!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/26/2010 9:07 AM (GMT -7)   
Exactly Sherrine! LOL!

Have to say it, I would choose my Bailey over a man any day. :D
------------------------------------------------------------
 
Fibro    Acid Reflux    IBS


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 7/26/2010 1:54 PM (GMT -7)   
My Jamine's mother was named Bailey. So she is Bailey's Sweet Jasmine on her pedigree. Sherrine picked out that name for me. Thanks Sherrine.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 7/26/2010 2:17 PM (GMT -7)   
I have a Havanese named Sabra that my husband bought me.  He passed on 7 1/2 months later and she has been my constant companion...was there to kiss away the tears.  I absolutely adore her.  She is 13 years old and I just can't think about losing her one day.
 
Animals are so wonderful.  No matter how lousy you feel, they don't care.  They are just soooo happy to be with you.  They aren't demanding dinner on the table or for you to turn the television to the football game.  They don't care what you want to do, just as long as it includes them.  Golly, I love my pets!
 
Oh, Karen, you are welcome.  I forgot all about that!  LOL  Isn't the fog lovely?  LOL
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/26/2010 4:25 PM (GMT -7)   
I always loved the name Bailey and if I had ever gotten pregnant and had a little girl that is what I would've named her.
So it just seemed appropriate to name my furbaby Bailey. :D

Sherrine, if I hadn't had Bailey after my divorce along with friends and family, I would not have made it. I know that for a fact.
It was hard for both of us, she missed her daddy.
But it made going to bed at night a bit easier with that 7 lb furball next to me.
I would just lay awake some nights and listen to her breathe and it would calm me.

I don't know what I would do either if anything happened to Bailey. I would have to have some valium.
------------------------------------------------------------
 
Fibro    Acid Reflux    IBS


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 7/26/2010 6:56 PM (GMT -7)   
Hi, Maria! I hope you like it here - I sure do.

I love my big dogs, but my 8-lb. cat, Tom, is the one who I can't stand the thought of losing. He's 12 years old, and been through 3 dental surgeries, (nasty mix of bacterias they still don't know where he picked up) and lots of teeth and about half the bone in his mouth are gone. He has Inflammatory Bowel Disease, too, so I can't let him out to graze anymore. :( But what a BIG personality he has! When the dogs get too aggressive and start "playfighting," he feels it's his job to step in and tell them to cool it...much to my dismay!! Last week it was bad, they were tossing him around like a rag doll, and I'm shrieking, "Stop it!" (grab) "I'll kill you! (hit) You leave him alone!" (kick) - I doubt if they even knew I was there. My husband thought I was being killed. It stopped as suddenly as it had started, and Tommy was fine, but I was shaking for an hour.

He is my inspiration. :)
Achey
This too shall pass...   
 
 
.......fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed
    
 


EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/26/2010 7:03 PM (GMT -7)   
Hi Achey,
I LOVE it here , as you can tell I'm quite the chatty cathy. LOL!

I'm sorry that your cat has so many issues.
OMGSH, I'm so glad he is ok and the dogs didn't hurt him, I would've been freaking out.

We took Bailey over to some friends once while we were playing cards.
The guy had two big boxers.
Well hubby let Bailey down and they thought she was their new chew treat.
They had her cornered in the corner and weren't going to let her out.
I was screaming at them and went right over and shoved them out of the way and got my Bailey.
We went home after that and I never took Bailey over there again.

Give your furbaby a squeeze for me. :D
------------------------------------------------------------
 
Fibro    Acid Reflux    IBS


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 7/27/2010 8:06 AM (GMT -7)   
Maria,
Wow, you are brave! You had the guts to actually reach in and pull your dog out. Good for you!!
Achey
This too shall pass...   
 
 
.......fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed
    
 


EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/27/2010 9:14 AM (GMT -7)   
Hey, aint' nothing gonna keep me from protecting my baby.
And my hubby was chewed out for letting her down in the first place. LOL!
------------------------------------------------------------
 
Fibro    Acid Reflux    IBS

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