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Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 7/25/2010 10:36 AM (GMT -7)   
Just Grace, I am posting your post here so people will see you are new.  Welcome to the forum!
 
Hi.  I'm new here.  As a matter of fact, I just found this forum today while searching for more information about my fibro, meds and some other issues I've had going on recently.
 
I was dx'd with fibro 2 years ago now, though I believe I have been dealing with it for over 10.
 
When I was first dx'd both what I was told by my doc and what I had read in medical infor ALL said fibro was NOT progressive.  My fibro has gotten worse over the last 2 years despite the rx's added and learning what I can and cannot do in the course of my day.  I asked my doc to please explain to me how and why my fibro was getting worse... to the point when it's really bad I cannot walk across the room.
 
Her explanation was fibro is not considered a progressive diease because it does not actually harm the bones or muscles, despite the pain we might be feeling.  She continued on to say, yes, fibro can become more debilitating and get worse. 
 
Not exactly happy news, but at least I felt I had a bit of understanding and in a strange way,  it made me feel better

Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 7/25/2010 10:41 AM (GMT -7)   
Hi, Just_Grace, and welcome!  I'm so glad you found us and joined in.  We have had discussions about how fibro seems to get worse as the years go by.  I've had fibro for 23 years and am only a little worse.  I think it's because I'm always trying new things and have new ways of dealing with it. 
 
I have found that gentle exercise helps me a lot with pain and fatigue.  I walk and swim as my exercise.  I also do stretching exercises.  This all keeps me flexible and more limber.  If you sit or lay too long with fibro, you will be stiff as a board.
 
I also have found malic acid/magnesium supplements and vitamin D3 supplements help me a lot with pain and fatigue.  Many are deficient in these vitamins and nutrients.  I live in Florida and am in the sun all the time but I use sunscreen so I was not getting vitamin D.  Now I take 5,200 IU of vitamin D3 a day. 
 
Be sure to check out Fibro 101...the first thread on the forum.  There are links to good info about fibro, including linkd about malic acid/magnesium and vitamin D. 
 
Don't hesitate to ask question because we are here to help you.  Hope to hear more from you soon!
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 7/25/2010 11:47 AM (GMT -7)   
Hi Grace! Welcome to the insane family of fibromites. We are so happy you joined us. *pokes sherrine* Sorry I felt like poking her Grace.Please feel free to post away. We have a lovely Koffee Klatch that two of us do (currently me til the regular one takes over) every morning that you are welcome to particpate in. It is just a fun thing to do. Hope you enjoy it here, I do.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis, Anxiety
Medications:  Tri Nessa, Percocet, Metformin, Prednisone, Cingulair, Albuterol, Pro-Air, Morphine, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops, Percocet, Immuran, Alvesco, Allerga, Gabapentin, Visteral  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl Undergoing Chemotherapy Taking Lorazepam (Ativan) For MRIs and Anxiety, Surpressed Immune Sytem


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/25/2010 10:52 PM (GMT -7)   
Welcome :)
(I know I said it in another post but hope you don't mind.)

When i was diagnosed (was it 6 yrs ago?) my doc said that it tends to get worse. I asked another doc's opinion and he said that indeed it does tend to get worse. I admit, that scared me at first. Then instead of being afraid, I got sort of ticked off and wanted to prove that wrong. Honestly, I am leaps better today than I was back then. Am I well, no, but I'm happy with this in comparison to where I was. I believe if we close our mind then we're done. If we believe there is a way, then there is a way. If we never seek, we'll never find --- keep seeking.

EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/26/2010 6:05 AM (GMT -7)   
Welcome Just Grace.

I'm new here as well.
It's nice to be somewhere that everyone else is going through the same things that you are and understand.

Hugs and Blessings.
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Fibro    Acid Reflux    IBS

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