Rheumy on 29th - what to say and expect?

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TheChickenPrincess
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Date Joined Jun 2010
Total Posts : 554
   Posted 7/25/2010 11:52 PM (GMT -7)   
Although I was diagnosed almost 6 yrs ago by my former g.p., he has retired and I needed to seek out a new doc. Took me all year to find one. She is fantastic, but she advised that if I'm going to be seeking disability it would be helpful to have the opinions of a rheumatologist on record. That, and maybe he can do some more testing to rule out other stuff.

So I'm asking you all - what tests might he run? I'm thinking he'll want to rule out autoimmune diseases. The only one I was tested for in the last years was celiacs (negative results). Are they just blood tests for most of this stuff?

What should I tell him - do I bring a list of symptoms that I had in the past, and ones I experience now?

Will he try to push medicines at me even if I don't want them? (Super sensitive and sometimes allergic to too many meds.)

Will he think it strange if I discuss my home life issues (which some of you know is quite damaging to me.)? I know I need to discuss the fact that I'm going to apply for disability.

I've never seen a Rheumy before. My g.p. said this one is her choice among the ones in their group. I've seen a dermatologist who was one peg above a traffic light for her iq. I saw a great allergist, but he conveniently forgot about me when my hives problems weren't easily figured out. Haven't seen any other specialis, so I thought maybe I better ask your advice before Thursday rolls around.

Thanks in advance.

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 7/26/2010 5:40 AM (GMT -7)   
Go to your rheumy prepared. Write everything down. He will want a complete
medical history, which will include all medical procedures you have had in the past,
your symptoms, past and present...names of other doctors you have seen. He
will ask about all the meds you have been on past and present.

He should do plenty of diagnostic lab work, running a number of antibody tests
to rule out the autoimmune diseases. Some docs only will run an ANA test and
if that comes back negative they won't run other antibody tests. An ANA is not
definative by itself. I'm living proof of that, I have never had a positive ANA but
biopsies have determined I have Scleroderma. There are many antibody tests,
I was tested for Sm, RNP,SSA(Ro) SSB(La) Scl-70, ssDNA, dsDNA, histone, and RF. I have tested high positive for RNP on repeated tests, that and clinical
findings gave me a diagnosis  of MCTD. Symptoms and tender point tests also
revealed I had fibro.

They will more than likely do a CBC... complete blood count, CMP, comprehensive
metabolic panel, check your Sed rate and do thyroid testing.

Write out questions for your rheumy... there are no stupid questions, everything
you want to know ask. Tell him everything that you think is relevant to how you
are feeling. Good luck and keep us posted!

Hugs, Robin

PS I forgot to mention that they might also do x-rays if you have complaints about joint pain, that is howI found out about having arthritis

 


Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Post Edited (crazykitty) : 7/26/2010 6:55:12 AM (GMT-6)


EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/26/2010 5:50 AM (GMT -7)   
I've not been to a Rheumy before so I have no idea but I hope it goes well for you.

I too have a low tolerance to medications and have to watch what I take and how much.
------------------------------------------------------------
 
Fibro    Acid Reflux    IBS


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/26/2010 7:43 AM (GMT -7)   
Thanks very much for the details, Robin. That really helps me. I hope I can gather my info together in time. This week is looking over scheduled for me. In January they did a cbc and some other tests (my allergist requested them). They never bothered to tell me what any of them were though - nor did he ever go over the results. (Nice to have a brilliant doc when he doesn't follow up). Maybe the Rheumy can explain what they are.

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/26/2010 7:43 AM (GMT -7)   
THanks for the kind wishes, EML. :)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 7/26/2010 8:27 AM (GMT -7)   
I've never seen a rheumy either.  But, we do have pain logs in Fibro 101 that you could print out and write what you do and the amount of pain you feel.  There are pain charts on Fibro 101, too, that will help you describe your pain.  This will help your doctor.
 
Also, on Fibro 101, there is a link to What Else Could It Be?  You will see what they want to rule out with the testing. 
 
Let us know how the appointment goes!  I'm glad you found someone you like.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 7/26/2010 9:56 AM (GMT -7)   
Hi princess just wanted to wish you luck with your appt. As everyone else has mentioned dont be afraid to ask questions. There are no stupid questions only stupid answers. I hope this rheumy is nice and not one of the Im superior to you ones. Good Luck again.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/26/2010 1:30 PM (GMT -7)   
Thanks, Sherrine, I'll make sure to look for that info. I'm hoping since the g.p. I like recommended him that he'll be a lot like her. Fingers crossed.

Thanks Shirley. :) I hope too that he's open to listening - and then I won't feel as crazy telling him everything. I can talk up a storm with a good doc, but with the nasty ones I'd rather crawl under a rock, or throw it at them. ;-)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 7/26/2010 2:26 PM (GMT -7)   
Don't forget that you are the boss!  You are hiring the doctor to take care of you and they do charge a lot for that.  You are paying big bucks for their time so you have every right to say what you need to say. 
 
I always go with a list of questions and don't let the doctor leave until he has answered the satisfactorily.  One time he was backing out the door and I told him I had a couple more questions to ask him so he came back in.  I hate it when I'm talking and a doctor backs out the door....but I was upset with him at the time and letting him know why and he wanted to get out of there!  LOL  smilewinkgrin We really do have a great relationship and we can say anything to one another and that is important.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 7/26/2010 3:18 PM (GMT -7)   
Thanks, Sherrine. That is a reminder that I needed to hear.

I have to admit, I quit one doctor when he told me the list I brought in with my concerns was obsessive and "no one does that!" He then said, "Don't get a fetish about your own body!" I really would have like to have slapped him. So rude!
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