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Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 7/26/2010 4:06 AM (GMT -7)   
Well I've been so tired I go to bed and get up tired. I finally caved AGAIN and told my DR I wanted the C-Pap machine back.  I couldn't keep the mask on last time and insurance would not pay for it if I couldn't get it in gear. My sleep has been disterbed for some time now and is developing into a differant pattern that's why I talked to my DR again.
 
At least my pain management DR released me back to my primary DR.
 
I also asked my PPO for a new foot DR because I needed a new one because the other one doesn't take my insurance anymore. I really liked her.
 
My right shoulder and neck are feeling better thanks to some Voltaren Gel. YEA!!!
 
 
Hara turn

myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 7/26/2010 4:23 AM (GMT -7)   
Hi - I use a c-pap machine and would go nuts without it. I remember those early days also. I would rip that thing off after only a short time....but eventually, it stayed on all night. That will happen for you too. Just don't give up. Also, it took me 3 different masks to find the one that worked for me. I am told that that is not so uncommon.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, nabumetone, hydrocodone, c-pap machine.


Missmissy
Regular Member


Date Joined Oct 2006
Total Posts : 237
   Posted 7/26/2010 4:43 AM (GMT -7)   
I, also, use a cpap and have for about 6 years now. I cannot sleep without it. It did take some time to used to it, and the masks were a challenge, but I finally found one that I can tolerate. It really is worth it to make it work for you. There is a really great group at cpap.com that will support you, and I found lots of valuable info there. They are like the folks here. REALLY supportive, and worth their weight in gold!
Crohn's Disease, Fibromyalgia, Psoriatic Arthritis
1200 mg. Asacol 3 times daily for Crohn's, 12.5 mg. Savella per day along with Tramadol for pain for the Fibro, and right now, not much for the PA.
I'm not going to take this lying down.


EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/26/2010 5:54 AM (GMT -7)   
Hi Hara,
I'm new to the boards but wishing you the best and hope the cpap machine helps you.

Blessings,
Maria
------------------------------------------------------------
 
Fibro    Acid Reflux    IBS


AKMamaBear
Regular Member


Date Joined Jul 2010
Total Posts : 35
   Posted 7/26/2010 9:00 AM (GMT -7)   
It'll be nearly a year next week that I was first introduced to the C-Pap machine, and for the love of Mike it took me nearly six months and 7 masks before I finally found one I could tolerate. At first I was so self-conscious about having it on, not to mention worrying what my husband would think, that I nearly drove myself nuts. Eventually I realized how much better I felt, and just how much I needed this contraption. Give yourself some time, and trust me, if I can do it, you can do it as well.

AKMamaBear
Breathe in, breathe out...repeat
 
 
Fibromyalgia, collagenous colitis, osteoarthritis, peripheral neuropathy, moderate spinal stenosis (C3-C6) carpal tunnel, sleep apnea
 
Current Medications: Premarin 0.625mg, Oxycodone 10mg, Hydrocodine 10-325mg, Tricor 145mg
 
Other: Omega 3 Fish Oil, Cinnamon, Calcium/Magnesium, Vitamin D, Glucosamine Hydrochloride


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 7/27/2010 12:45 AM (GMT -7)   
It's so hard to keep that darn mask on. I found out that I was taking it off in my sleep.
 
I did find one day I slept for 8 hours and I felt great, but then started taking the mask off again. I'm going to ask these ppl about the different masks. I know I have to have a full face one not just the nose one. I chought myself on it.
 
Thanks everyone. I really hope I can do it this time. I don't know what I'm going to do when I don't have insurance to pay for it (C-Pap) and all it's parts.?
 
HARA

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 7/27/2010 8:18 AM (GMT -7)   
Ah, life....it just keeps comin' at cha! I hope you can get one that works, and that you can tolerate.
Achey
This too shall pass...   
 
 
.......fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed
    
 


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 7/27/2010 11:06 PM (GMT -7)   
I went to see a Neurologist today. Within the course of the office visit she told me to cut down on my medications. Then she started in on the Valtaren Gel I use on my shoulder and neck. I told her to forget that and only my PPO dr was going to tell me what pills I should and should not take, and that whatever the combination of pills and any kind of motivation that I could muster up it was up to me and me alone what I should do.
 
Then she told me that I might have some Neuropothy in my feet or at least my ankles.  I told her to set me up. I have a memory problem also but she doesn't know if she can get that approved.
 
WHATEVER
 
Hara

AKMamaBear
Regular Member


Date Joined Jul 2010
Total Posts : 35
   Posted 7/28/2010 8:50 AM (GMT -7)   
Hara, two things immediately come to mind; a good neurologist will perform the necessary tests, and yes, it hurts, before diagnosing you with neuropathy in your feet and ankles...I know...been there, doing that, and no mine isn't related to diabetes. I also use the Voltaren gel on my knees, and for the most part it helps some. Also, I agree with your decision to tell them that as far as your medications go only your PPO can determine any type of change.
AKMamaBear
 
Breathe in, breathe out...repeat
 
Fibromyalgia, collagenous colitis, osteoarthritis, peripheral neuropathy, moderate spinal stenosis (C3-C6) carpal tunnel, sleep apnea
 
Current Medications: Premarin 0.625mg, Oxycodone 10mg, Hydrocodine 10-325mg, Tricor 145mg
 
Other: Omega 3 Fish Oil, Cinnamon, Calcium/Magnesium, Vitamin D, Glucosamine Hydrochloride, Alpha Lipoic Acid (600mg), Valerian, CoQ10 (200mg), Ginger root, Grape seed extract


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 7/28/2010 11:45 PM (GMT -7)   
AKMamaBear,  Thank you so much you just made me smile. My emotions have been going up and down for a while now. I feel like a yo-yo at times.
 
HARA
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