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Date Joined Jul 2010
Total Posts : 1
Posted 7/26/2010 8:27 PM (GMT -7)
I'm new to the boards. I have had a lot of back pain mainly for a while, but was made worse after a car accident of this year. My doctor sent me to PT, and a orthopedic surgeon. An MRI revealed a bulging disk and one that had quite a bit of fluid loss. I had been in PT since February and had not much change in my pain. The major sharp pain that radiated down my legs went away with PT but the muscle aching and pain did not. The PT gal would give me therapy exercises and the next day I would be sore for days after. My muscles in my back would tighten and hurt quite a bit. I seemed to have good days and bad. So I was recently sent back to my doctor with notes from pt. She then told me that she felt that with what the therapist had noted and my symptoms that I most likely had Fibromyalgia. She had noted that I had a lot of the trigger points per my therapist.
In doing research on it, I do have a lot of the symptoms except most of my pain is in my back, lower and upper. I can't do very much before my back starts to hurt. Vacuuming will set it off, holding my nephew who is about
13lbs will do it if I hold him for too long. I can't do a lot of bending or standing either. I do get tired during the day a lot. I toss and turn at night especially if I wake up with back pain. The doctor thinks that I may have had symptoms of fibro before the accident. But that the accident made them worse. Before the accident I always felt my muscles were in knots and it was hard to fall a sleep but I eventually did. I started walking last summer to try to loose some weight. I eventually got up to 2 miles a day. After about
two weeks I had bad pain in my calf muscles to the point that I would start out walking and after 10 minutes I was limping from the pain. I also, had pain in my back while drinking any type of Alcohol even wine coolers. This I have had since my 20's and have had back pain since then, but not as bad. After about
5 minutes of drinking wine coolers my muscles burn and ache really bad. Hence I don't drink a lot because of it. Right now I can't sit too long or stand too long without pain. My doctor has me on an anti-inflamitory (NSAID) which does help. Without it my symptoms get worse. Right now she has me on restriction that I can only work 2.5 hrs a day. I have a part time job with the YWCA in town and work in their after school program. So I only work when school is in session. I had been able to work those 2.5 hours sometimes without pain and sometimes with pain. I had good days and bad days. Prior to the accident I had been trying to look for other work to fill in the remainder of my day that I don't work. Now I'm not so sure that I can work another job on top of the one I already have. But I'll wait and see what happens.
She also has me on a muscle relaxer which helps me to sleep at night. She is sending me to a Rheumatologist for confirmation. I have an appointment with the Rheumatologist September 17. That was the soonest I could get in. However, I'm trying to find other Rheumatologists in surrounding areas to see if they have anything sooner than that.
When I go to the appointment, is there anything I should bring or tell them? I know they want a list of all my medications, prescribed and OTC that I am taking.
Also, I will be trying to have children within this year. So I don't want to be on a whole lot of medication. I know that when I do become pregnant, I'll have to stop all meds completely. Has anyone here had children with Fibro and how did it impact it? I know that the doctor said that it wouldn't hurt the child, but that I may or may not have worsening symptoms since I mainly have back pain. She also said that symptoms could decrease too. So I thought I'd see if anyone else has been through it and how they did.
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Date Joined Jul 2010
Total Posts : 62
Posted 7/26/2010 8:48 PM (GMT -7)
Hi! I'm new here too. I was dx'd with fibro and a few other conditions 2 years ago, so I'm still learning a great deal and haven't had any major accident to add too it.
I really don't have any info to share with you other than I've always had the muscles in my lower back and in my shoulders be extremely tight. Even at times when I'm not stressed. I think they stay tight even in my sleep *lol* Lately my back pain has been increased. Whether I've done anything specific, I really don't think so, to cause it to be more painful... just think it's my fibro or arthritus or both combined.
As for when you go to the appt with the rheumy, my advice is to list absolutely everything you can think of.... med's AND how you've been feeling, what hurts, what makes it hurt more, what activities you do or just can't do and so on and so forth. The more info you give them, the more they have to consider and to evaluate.
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Date Joined May 2010
Total Posts : 1556
Posted 7/26/2010 8:52 PM (GMT -7)
Hi mel and welcome to our fibro family. Im sorry you have to be here but rest assured that you have come to the right place. Alot of my fibro pain is in my back too but I find that it can and does travel to other places at different times. My back always hurts but right now I can feel it in my shoulders and neck as well most of the time.
I just want to say that I can really relate to the alcohol causing pain. One sip of any kind of alcohol puts my neck and shoulders in extreme pain so like you I dont figure it is worth the effort to drink.
I believe I have had fibro since I was very young and I did manage to raise 5 children. I will guarentee you it is not easy but it is manageable when you are young. They learned very early that they had to mostly walk because mom couldnt carry them very far.
I am 50 now with a 2 year old grandchild and I will tell you this it is alot harder to do the older you are.
Once again welcome and I know there will be alot of others coming along to welcome you soon.
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here.
(Brad Paisley & Dolly Parton)
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Date Joined Jul 2009
Total Posts : 4796
Posted 7/27/2010 5:37 AM (GMT -7)
Hi Mel, welcome to the family, I'm so sorry you are hurting. There are many
fibromites here who have disc and back problems. I've had surgery and it has
helped some. I understand back pain well. PT was helpful and I do the exercises on
a regular basis. Before getting out of bed I do a series of gentle stretching
and pelvic tilts. This helps stretch the muscles as well, also helping fibro.
Be sure to stretch before you walk. Walking helps strengthen the back and relieves
stress and good for fibro. If you are experiancing sciatica, you don't want to
create anymore inflamation...you need to rest.
I had many fibro symptoms, years before I was diagnosed. It wasn't until after
my back surgery that I was first referred to a rheumy. Sometimes it takes years
to get a diagnosis. Be patient...the main thing is finding someone to treat your
When you go to your appointment, bring alist of all your questions and symptoms.
Check out fibro 101, second thread, page one, there you will find lots of helpful
Good luck to you, I'm glad you have joined us!
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid. OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
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Date Joined Nov 2008
Total Posts : 5930
Posted 7/27/2010 8:39 AM (GMT -7)
Most of my pain has always been in my back, too. It used to be unbearable when I was in my 20s and 30s. Strangely, having first my appendix, and then years later, my gallbladder, out has helped that. I don't know if these organs were slowly going bad and that in my case, they referred the pain to my back, or what. I never had the "classic" symptoms of either (of course!) My 24-year-old daughter just had her gallbladder out last week - she never had back pain with it, but awful stomach-area pain.
What made me think of this is that you mentioned alcohol making it worse. It used to make that gnawing pain worse for me, too.
Maybe this is way out there, but just thought it might be something to look into. Good luck with it all!
This too shall pass...
.......fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed
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