Update on Daughter

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Regular Member

Date Joined Jun 2010
Total Posts : 197
   Posted 7/27/2010 11:00 AM (GMT -6)   
I posted earlier the issues my daugter was having with her doctor and the horriffic pain she has been in for the past two weeks related to her fibro. Well, yesterday was the worse, took her two hours to dress herslelf and she had a PT appointmtnet, so she called a friend to take her. Her appointment for 45min. turned into a 3 hour session. They called in the head guy to help with her and he's also an internest. 1st, her hip was out of the socket. She has no idea how it slipped out, but it was out. That helpped some, but as he palpatated her stomach, and abdomen areas he found a spot that he said "is not right" at the same time when he pushed in ALL the pain in her legs was gone for a split second. I'm really scared, they are suggesting three things, Issues with her liver, Connective tissue problems between her organs and tissue and spine and the last is the big C - cancer of some type.
She also woke up yesterday with her whole body bruised, legs, hips, arms, everything. She's white as a ghost and her eyes are suddenly sunken way back with huge dark circles ... She asked if this was part of the fibo and was told that it's seperate issues. She is going in for testing this week and I pray it's something that is correctable. She
s still having a great deal of the electrical pain shooting down the hip into the leg and has to return for 3 more sessions this week to workwith the hip issue. She said that the pain dropped from a 10 to Ia 6 with the hip movement.
She is in Texas and I'm in Wisconsin, but it looks like I am going to have to move there soon with family, because my LTD insurance company does not seem to be woring very hard to approve my leave and I'm still waiting on SSDI as well. Money running short and since I was the breadwinner of the family we just can't make it here on our own. I am so upset about that situation I could just spit nails. You pay into theses stupid policies your whole life, work your tail off for the company and then someone in a chair decides that your doctors don't know what they are talking about and it drags on and on, while they hope you will go broke and quit.   arrgggg..
Sorry... I guess that was my rant for the day, Anyway, I'm sure some of you know what I'm talking about.
I will update you guy's as I learn more.
Diagnosis:  Fibremyalgia, Chronic Myofacial Pain, Degenerative Disc Disease, Degenerative Joint Disease, Connective Tissue Disease, Lupus, Osteoarthritis, Anemia, Issues caused by being severely double jointed. Vitamine D Difficency.
Meds:  Vicadin, Meloxicam,Omepraxole(high dose previced) Vitamin D 50K , Ambian, Savella,Lyrica, Tramadol, Cyclobenzopine, Voltaren Gel, and Pennsaid Drops.

"Trust in the Lord with all thine heart; and lean not unto thine own understanding.
In all thy paths acknowledge Him, and He shall direct thy paths." Proverbs 3:5,6


Veteran Member

Date Joined Aug 2008
Total Posts : 1771
   Posted 7/27/2010 11:08 AM (GMT -6)   
Sending up prayers for your family. Please keep us updated.

Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen

Regular Member

Date Joined Jul 2010
Total Posts : 202
   Posted 7/27/2010 11:12 AM (GMT -6)   
Sending many prayers your way for your daughter and for you.
I'm so sorry that you all are having to go through this.
I realize how scared your daughter must be.

Gentle hugs and Blessings!
Fibro    Acid Reflux    IBS

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 7/27/2010 11:41 AM (GMT -6)   
Steph, I will be keep you and your family in my prayers. Hoping your daughter
will get her diagnostic testing soon and that her results can be resolved with
wonderful treatment. Remember to take some time for yourself to relax. As a
Mom, I know you must be worried. My thoughts are with you!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 7/27/2010 2:10 PM (GMT -6)   
Hi Steph, I just wanted you to know that I will be praying for your daughter and you. Im so sorry that you and your daughter are having to go through so much right now. Thanks for keeping us updated.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Veteran Member

Date Joined Jun 2010
Total Posts : 554
   Posted 7/27/2010 2:45 PM (GMT -6)   
Steph - *great big hugs*

Definitely praying for you and your daughter and whole family.

Her hip was out of the socket?! Yikes. That former doctor of hers should be sued within an inch of his worthless hide.

It sounds like she has a competent group of docs looking at this all now - that is positive.

I hope you can find a way to be there. I understand how terrible money issues can be. There is a charitable group called modestneeds.org - I don't qualify because you have to have an income showing you would be able to normally afford the expense - but if you do qualify, they award up to $1000 (I think) as a gift, no pay back required. Maybe it is of use to you?

If you're in my part of the state, which I think you are cuz we had storms at the same time, this is a very expensive place to live. Property taxes are outrageous, compared to the rest of the country.

Keep writing - and let us know what's happening when you can. We're all here to listen. You know we all care.

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