Vitamin D levels and Graves disease

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damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/28/2010 7:33 AM (GMT -7)   
Hi all, I hope everyone is doing well today. I got some new information at the Doctor's yesterday. First of all, She is pretty sure I have Graves Disease from the blood test she did on my thyroid. I had never heard of this disease until she told me. So needless to say I have been going crazy googling it. I will be seeing a endocronologist (SP?) soon for this. I am really scared, but hopefully they can treat this and I should start feeling better.
 
On a different note though my doc is pretty sure this isn't the only auto-immune disease that I have. So I guess we will take care of this first then try and figure out what else is going on. The whole hurry up and wait thing we all experience! Very frustrating.
 
I also got my results from my vitamin D level check, it's a 23.5 and it shows the reference range to be 32.0 to 100.0. I wonder if because mine is low that I feel so worn out? What I have read about Graves is that it also causes fatigue and muscle weakness. So I guess I have 2 negatives in my corner. I remember reading a post awhile back that they have changed the reference range for Vitamin D, that now they think it should be higher? Does anyone remember that or did I dream it...lol Just curious.
 
Anyway, thanks for reading about all my current issues, I hope everyone has a great remainder of the week with low pain! Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 7/28/2010 8:28 AM (GMT -7)   
Shannon, I'm sorry to hear about your Graves disease but try not to worry.  The first President Bush has Graves disease and so does his wife, Barbara!  It was just a coincidence, from what I have read.  Anyway, she was diagnosed with that back in the late 80's I believe.  She was put on medication and has done fine for 20 years and look at him....skydiving at his age!  It's just frightening when you get a diagnosis and don't know much about it.  It's a disease related to hyperthyroidism and we do have problems with that.
 
People with Graves can have lower vitamin D, too, from what I have read.  They are finding out the importance of this vitamin.  The FDA still says that 400 IU a day is suggested but, several years ago, I read in the Journal of the American Medical Association and article about vitamin D and how the cardiologists are saying people need at least 1,000 IU a day.  So, after I read that, I started taking that amount.  Nevertheless, about a year later, I found out I was deficient in vitamin D!  My doctor kept upping my amount and now I take 5,200 IU a day, counting the D in my calcium and multiple vitamins, too.  This would be a good question to ask at your next visit.
 
I'm glad they caught the Graves and you will be treated for it.  That's far better than not knowing you have something wrong.  Now you will start to feel better...and yes, vitamin D does really help with pain and fatigue!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 7/28/2010 8:33 AM (GMT -7)   
Hi Shannon, I just had to look up graves disease to see what it is too. I had heard of it but didnt know for sure what it was. I have read alot on another board about the thyroid being part of the problem for alot of people with fm. Not sure if this person is right but hopefully in your case the treatment for graves will help you overall. I will be praying for you and hopefully there is nothing else serious going on.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 7/28/2010 10:24 AM (GMT -7)   
Hi Shannon,
As the others stated, many of us have issues with our thyroid being too low (hypothyroidism) or too high (hyperthyroidism) which iis what Grave's disease is. The thyroid affects every single organ in our bodies. I have had many times when my TSH level - which is the thyroid stimulating hormone, just goes off and I have to have my thyroid medication adjusted. But, in the weeks/months preceding the blood test to determine what happened, my periods were affected, my moods were affected, I had increased muscle pain, couldn't sleep, you name it, I had it and when they adjusted the meds and it does take about 6 weeks to get your thyroid back on track, the symptoms went away. I am NOT saying all your FM symptoms will go away, but they may decrease. It is amazing how such a little tiny gland in our neck can cause so many problems and, it is VERY common in middle aged women to have thyroid issues. You are doing the right thing, research it. KNowledge is our best defense!'
be well
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/28/2010 2:30 PM (GMT -7)   
Thanks everyone for your replies. I just got off the phone with my doctor and she said it is Graves disease and I am meeting with the surgeon on the 11th. He will then decide what to do, either remove my thyroid or basically destroy it with radioactive iodine. Neither option sounds like much fun, but at least I should have one problem taken care of then. I will let everyone know what he desides to do. Thanks again for caring!
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines

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