Ode to Fibromyalgia

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Regular Member

Date Joined Jul 2010
Total Posts : 416
   Posted 7/28/2010 2:48 PM (GMT -6)   
My nightmares awake me through the dead silent night,
The angels that protect me, vanish from sight,
Tormenting visions, never leaving my head
Binded to darkness, pain is where I am led,
No escape from my H*ll, the torture comes from within,
Not sure why it started, or how it will end
I strive for some answers,starring , reflection in mirror
I turn away quickly, my reality frightfully clear
Knowing I am the nightmare that keeps me awake
My acceptance of this life, is more than I can take
Fibro,  unwanted, selfish, and hated friend,
You may stride with me until all of days end,
I accept now you've changed all that I see,
A friend without whom, I don't know who I'd be,
This is life now, accept what may come
We are strong, we fight back, you'll never have won.
yeah From, Heather          .It's been a rough day so this is my raw feelings of the day. Hope everyone is as pain free as possible

Regular Member

Date Joined Jul 2010
Total Posts : 416
   Posted 7/28/2010 3:44 PM (GMT -6)   

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 7/28/2010 4:17 PM (GMT -6)   
I enjoyed reading your Ode to Fibromyalgia. Hope you feel better soon!
Mama, I can relate to that poem...I express myself through poetry also.
Going through my poems I can see how my attitude has changed. I wrote
this poem when I was having a very difficult time accepting my diagnosis.
I think it is common to go through stages of grief before for acceptance.
Not to say that we can't have a bad after we have accepted our illness.
I find it hard to believe that I wrote this. It seems so dark, but that is how
i felt back then.
Prisoner of Pain
Bound by the misery of unending pain
I am a prisoner, a prisoner of pain
Feeling tortured, trying to remain sane
Each day I wait hoping for relief
Praying today I'll be spared from this grief
Maybe tomorrow the pain will go away
And let me enjoy a pain less day

Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Post Edited (crazykitty) : 7/28/2010 4:38:17 PM (GMT-6)

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Date Joined Nov 2008
Total Posts : 5941
   Posted 7/28/2010 5:33 PM (GMT -6)   
I feel this way a lot, too....I go up and down all the time. (Not as far down as I used, to, though...:)
This too shall pass...   
.......fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Regular Member

Date Joined Jul 2010
Total Posts : 416
   Posted 7/28/2010 6:16 PM (GMT -6)   
Robin, I don't think your poem was dark, I think it was good. Some days are better than others. Whenever I finally get a good rhuemy, I think, and pray, wink I will have more good than bad. For now that's not the case. Thanks for letting me express. Heather

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 7/28/2010 7:25 PM (GMT -6)   
I loved both of those poems and have had times where I can relate to both of them. Hoping that you find a good dr. soon mama.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Regular Member

Date Joined Jul 2010
Total Posts : 416
   Posted 7/28/2010 7:28 PM (GMT -6)   
:-)  Shirley,
I needed the hug today more than ever. Thank you, and a gentle one sent back your way.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41255
   Posted 7/29/2010 2:22 PM (GMT -6)   
Hope that you are feeling better Mama6. ((((hugs))))

  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Jul 2010
Total Posts : 416
   Posted 7/29/2010 2:49 PM (GMT -6)   
cry  Karen, I'm not but at least I have found a new(good..from what i've read and heard) Rhuemy. So fingers-crossed that something good comes from it. Hugs always help, thank you :-) . Heather

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