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Missmissy
Regular Member


Date Joined Oct 2006
Total Posts : 237
   Posted 7/29/2010 4:22 AM (GMT -7)   
Good Morning! Well, I'm taking Prednisone for my Crohn's as of yesterday. 30 mg. per day for 10 days, 20 mg. per day for 10 days, 10 mg. for 10 days, then off (hopefully, as I have trouble weaning off of this stuff). Here's the deal: If my fibro symptoms are improved by the prednisone, does that mean that it is helping for the inflammation? And if so, I thought prednisone didn't help for fibro. I have been reading online, and there is so much info out there. Does anyone have first hand information for me? Opinions, comments, etc?

Just another day in Paradise rolleyes

Thanks, and gentle hugs!
Crohn's Disease, Fibromyalgia, Psoriatic Arthritis
1200 mg. Asacol 3 times daily for Crohn's
I'm not going to take this lying down.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 7/29/2010 7:05 AM (GMT -7)   
Missy, I have Crohn's and have been on Prednisone many times.  I have autoimmune inner ear disease and they put me on 80 mg of Prednisone every day for a month to see if it could stop the progressive hearing loss.  The first couple of days I felt absolutely wonderful!  I actually landscaped my front yard!  But, then I started getting sicker and sicker and it pretty much shut down my immune system.  Plus, I lookd like the Pillsbury Dough Boy!  It took me four months to be weaned off it.
 
You aren't taking as much so you probably won't have this type of problem.  But, like you, I was surprised that it made me feel better!  It's not supposed to help fibro.  Ibuprofen is an anti inflammatory and it helps me a lot, too.  I've read that it is prescribed for fibro but if fibro isn't an inflammatory illness, why do that? 
 
So, I personally think there is some inflammation involved in fibro by my body's reaction to these medications.  I'm not a doctor but I do live in my body.  I'm not just written words on a page.  Remember, the doctors still don't know what is causing this illness but are realizing we really DO have a problem and it's not all in our heads.
 
Well,  you have my comments now.  I do hope you feel better an the Prednisone helps your Crohn's.  Prednisone can be a very nasty medication and I don't take it unless it's absolutely necessary OR a small amount.  Actually, I had a rash 22 years ago and my doctor gave me a Prednisone dosepak.  The day I took the very last pill was the day I was hit with fibro!  Go figure!  My rash was gone but I felt I had been run over by a semi.  But, seven years later I was given those huge doses of Prednisone and didn't have a problem.  ~Sherrine shaking her head...totally confused...~
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 7/29/2010 7:11 AM (GMT -7)   
My FIL took prednisone for years for his lungs and he was always swollen and had weight gain.

I've never taken it and don't know if I would want to with the side affects.

My dog actually takes prednisone when she has bad rash break outs on her belly. :D
She has very sensitive skin.
-----------------------------------------------------------------------

Fibro Acid Reflux Bicuspid Aortic Valve Disease



meds:

aleve flexeril as needed ambien to help sleep

vitamin d and iron



prevacid





__________________________________________________



Don't think about what you used to be able to do............
Think about you DID do today !


sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 7/29/2010 7:31 AM (GMT -7)   
Missy I took prednisone once for something, dont remember why, lol. For me it was the only time that I could remember feeling pain free. I asked my dr. about staying on it but he said that long time use of prednisone is really bad. I sure did enjoy those pain free days though.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 7/29/2010 7:40 AM (GMT -7)   
I've been on prednisone tapers in the past and never found any relief from fibro.
They were given to take down inflamation that was being caused by autoimmune
issues. In fact that information helped with being diagnosed also with fibro.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


utmountaingirl
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 7/29/2010 9:38 AM (GMT -7)   
My experience is similar to Robin's. I don't find that my fibro symptoms are helped by Prednisone, probably because there isn't real "inflammtion". It does help other parts feel better and it is very helpful for an autoimmune flare (in my case RA). If it helps your fibro symptoms, I would talk closely with my doctor about the diagnosis to evaluate if there could be other autoimmune issues causing fibro-like symptoms.

Good luck!
"Infinite Goodness Has Such Wide Arms"
~Dante


mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 7/29/2010 12:25 PM (GMT -7)   
I agree with utmountaingirl. I have been on it three x this year for herniated disc. When I am on it I can move my hands, my elbows stop shooting pains, I don't get the headaches, my feet can move. Weird huh? With that being said i finally got in to a new Rhuemy..well Aug.20 because i think there is something else besides that going on. You may want to look into it. Everything my mom went through with fibro. and all that I have read, or heard from the Dr.'s that wont look past my orig. fibro diagnosis, inflammation is not part of FM. We know our bodies, that's all I am saying. Good luck!! Heather
Mama6


kathydownunder
Regular Member


Date Joined May 2009
Total Posts : 447
   Posted 7/29/2010 12:50 PM (GMT -7)   
I was on prednine when I first had Fibro and it was no help at all, in fact I was worst while on it, I took it for some time, and only got off it with the help of my chemist. The GP was worst then the Fibro. All the rescearch tells us it does not work for Fibro thank goodness.
Taking it is very bad for our healt ie bone density,
If it was ever offered to me again for a cure for anything I would have to think very hard before I took it.


Kathy
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