Heart Surgery??

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WannaSew
Regular Member


Date Joined May 2010
Total Posts : 25
   Posted 8/1/2010 8:20 PM (GMT -7)   
I am so tired of getting new diagonzes that I think are frightening.
Fibromyalgia. Multiple fractured kneecap. Depression. Anxiety. Heck I have so many diagonzes I can't remember them. Oh yeah probably P.T.S.D.
I have been having heart problems since Easter 2009. I woke up Easter with a rapid heartbeat and I couldn't stand up because I was so dizzy. My son took me to the ER, the triage nurse stopped taking my bloodpressure and rushed me into a room. I was surrounded by doctor & nurses, they "rebooted" my heart. They didn't use the paddles but somekind of IV that stopped my heart and restarted it.
Fast forward to October and same type situation, heart gets out of whack, ambulance ride and another reboot. This time I kept having problems and ended up back at the ER several times the next couple weeks. EVentually they did a heart cath and said everything was good. No problems with the arteries.
I ended up on heart medicine and am told I have a "short circuit" and my blood starts to go thru 2 of the chambers skipping the other 2. Doctor says I will eventually need heart surgery, an obliation (sp?). Well, eventually is trying to catch up to me. They have increased the meds and yet at times I still feel the crazy heartbeat starting.
Do any of you have this? I had a perfect heart check up the past 5 years before I got Fibro. So why does my health keep getting worse & worse.
Fibromyalgia from a bad car accident.
I was waiting for traffic and someone on a CELL PHONE hit my car at 65MPH and totalled it.
PTSD, Anxiety, Depression, Chronic Fatigue, Arthritis and other stuff sprinkled in for good measure.
Wanna Sew

KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 8/1/2010 8:32 PM (GMT -7)   
Do you have a name for your condition......I'm not sure if its like mine. Supraventricular tachycardia, I never remember that name.

Ours runs in the family, the heart doctor explained it to me as the blood comes into the heart, inside of pumping back out it gets stuck going round and round. He explained it as a electrical circuit going round and round with no way out. I have to take deep breaths and cough hard several times before it stops. He explained that when I do that it stops the heart for a second allowing the blood to flow natural after that.

The only way I can explain it it feels as my heart is about to jump out of my chest, my pulse goes rapid. Scary feeling. When my daughter began with it, she would freak out, biggest thing is trying to stay calm which is hard to do but you have too.

They put me on a beta blocker, it has helped since then it has happened only one time.

I'm sorry it just seemed that you might have the same thing.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 8/1/2010 8:36 PM (GMT -7)   
That prospect is enough to stress you out!

I do get the fast-beating heart sometimes, out of the blue, but my doctor always downplays it. Had a stress test on it a few years ago after I went to the ER, thinking I was having a heart attack (it was my gallbladder, my heart was fine.) My mom used to get the heart thing too, and was eventually put on Cardura (I think) for it. Mine has always stopped on its own, maybe that's why they never take it seriously. But it can last hours, and it makes me very tired. One time I was in the middle of teaching (subbing) in a 1st grade classroom. It just started up and lasted all afternoon. I thought if I just stayed calm and didn't think about it, it would go away, but it didn't.

Hope it lets you be!

Debbie
This too shall pass...

.....fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

WannaSew
Regular Member


Date Joined May 2010
Total Posts : 25
   Posted 8/1/2010 8:55 PM (GMT -7)   
Yes! That's exactly what he called it, Supraventricular tachycardia. It is exhausting! I didn't know if it's part of fibo or what. I am just so exhausted between the SVT, PSTD, depression, & fibro. Seriously how much more can my body take?! I am on so many medications! I guess I am just frustrated. Sorry to dump on you!
Fibromyalgia from a bad car accident.
I was waiting for traffic and someone on a CELL PHONE hit my car at 65MPH and totalled it.
PTSD, Anxiety, Depression, Chronic Fatigue, Arthritis and other stuff sprinkled in for good measure.
Wanna Sew

KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 8/1/2010 9:09 PM (GMT -7)   
Your not dumping and I understand your frustration....I'm not a doctor this is what I was told several years ago, surgey can fix it but other ways should be tried first.

There isn't a trigger with this it just happens, next time stay calm and cough hard several times. The heart doctor knowing we were Christians told Megan remember when Samson pushed the pillars down, take that position in a door way and push with all your might. I never tried it but thought I share.

I have a good blood pressure not sure what it is when that is happening.....never think to take it when it's happening. My first goal is to stay calm and bring it under control.

To let you know I can go for months not having it and then have mutiple incidents.


Please keep us informed and we are all in the same boat so don't worry.......talking and learning from one another helps with the journey.

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/1/2010 9:48 PM (GMT -7)   
WannaSew - I'm really glad you could connect here and get some feedback on what's happening. That's just what we do here every day with each other - like KellieJo said, you're not dumping. We try to help each other. This stuff can get frustrating and scary as heck on our own. So ask as much as you need to!

When my mom had a rapid heart beat incident about 2 weeks ago, the nurse said there are two types - something about upper ventricles and lower ventricles. I think one was the type you and KellieJo have. Me, I get rapid heart beat incidents, but more like Achey's type - but not frequently. I actually think mine is linked to the low potassium problem I'm having - and maybe magnesium, too. In fact, my mom's incident was set off after her cardizem (sp?) med had been removed from her line up (she'd been on it since the early '90s) - AND her potassium was way low. Potassium can regular heart functions. So maybe if you're low on something it couuld be setting off extra events of this for you? Worth asking the doc maybe.

As for getting new stuff dumped on you - Yeah, I've been griping big time to myself about this. Just when you get a grip on what you have, a new item rears up. Somehow though we'll get our control back over all this. We all just need to stick together here on the forum.

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 8/2/2010 1:20 AM (GMT -7)   
I went into the ER due to using my epi pen for a severe allergic reaction, doctor listens to my heart and says "let me check this again" then says "Is it ok for another doctor to listen to your heart?" I agreed, other doctor came in, listened. And then they speak up and told me I had a murmer but it didnt seem life threatening however they wanted me to see a cardiovascular doctor just in case. I did, everything checked out just a murmer. But I'm a trip sometimes in the ER because I will have a heartrate of 116 to 125 at times (Tachy) and they try to figure it out. So far, I've kinda caught on, but I think when I am overly stressed it will raise my heartrate. The only times I get it is if I am severely ill or after dental work (the numbing stuff keeps puting me tachy and I have to be watched carefully). No matter what, Wanna Sew, you will be in my thoughts and prayers. I understand that surgery is scary, especially heart surgery. Remember God won't put you through what you can't handle, and that no matter what, you have us, your fibromite family. gentle hugs
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis, Anxiety
Medications:  Tri Nessa, Percocet, Metformin, Prednisone, Cingulair, Albuterol, Pro-Air, Morphine, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops, Percocet, Immuran, Alvesco, Allerga, Gabapentin, Visteral  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl Undergoing Chemotherapy Taking Lorazepam (Ativan) For MRIs and Anxiety, Surpressed Immune Sytem

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/2/2010 5:57 AM (GMT -7)   
Hi wannasew, sorry to hear that you are having so many problems right now. The thought of heart surgery is very scarey, but hopefully it doesn't come to that. However if it does come down to surgery know that you will have all of us in your pocket with you praying for you.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 8/2/2010 6:10 AM (GMT -7)   
Wannasew,,
I'm sorry you are having the extra issues with the heart and then that makes your anxiety even worse.


I was diagnosed with mitravalve proplapse for years
The doctor didn't say that it was related to my fibro
Then after my cardiologist passed away I started seeing his son
He wanted to do some updated tests as he did not think that I had what I had been diagnosed with.

After some testing he said that I had Bicuspid Aeortic Valve Disorder.
It was very similar to what they thought I had. And with better tests available they could really diagnosis it.
He said more than likely I was born with this.
At the opening of your aeortic valve you have 3 flaps. 2 of mine are fused together so I only have two.
I don't have any major problems or issues with it and I'm not on any medication.
He said I should continue to exercise like I do. Once in awhile I will feel a slight flutter but nothing major.
Right now I just have to go in for a yearly checkup.

Sending you hugs and prayers and hopefully they will get yours under control.
-----------------------------------------------------------------------

Fibro Acid Reflux Bicuspid Aortic Valve Disease



meds:

aleve flexeril as needed ambien to help sleep

vitamin d and iron



prevacid





__________________________________________________



Don't think about what you used to be able to do............
Think about you DID do today !

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/2/2010 9:06 AM (GMT -7)   
That has to be so frightening, Wanna Sew and Kellie Jo!  (Hey, you guys even rhyme!)  WS, maybe try the coughing thing that Kellie Jo mentioned.  I hope it settles down for you.  You have plenty to deal with, without this...both of you!  I'm so sorry you are having this problem.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

WannaSew
Regular Member


Date Joined May 2010
Total Posts : 25
   Posted 8/2/2010 7:08 PM (GMT -7)   
Thanks for all the support. I see the cardiologist on Wednesday. They are gonna have to take me off Cardizem and try something else because I am having a reaction. I hope they come up with something good. I'll let you know what happens.
Fibromyalgia from a bad car accident.
I was waiting for traffic and someone on a CELL PHONE hit my car at 65MPH and totalled it.
PTSD, Anxiety, Depression, Chronic Fatigue, Arthritis and other stuff sprinkled in for good measure.
Wanna Sew

upbeat
Regular Member


Date Joined May 2009
Total Posts : 240
   Posted 8/3/2010 9:49 AM (GMT -7)   
That must be so scary! I hope you get your medication switched and it helps.

Was the surgery your doctor was talking about a catheter ablation? That is when they go in through a vein or an artery (can't remember which) in your groin and use heat to kill the abnormal tissue in your heart that is causing a problem. I have a lot of pvc's and my cadio said if they ever cause a problem I could have an ablation.
Fibro dx 2004, RLS, raynauds
Ultracet, Robaxin, Neurontin, Lidoderm patch, Vit D, CoQ10, Mag

it's a new day
Regular Member


Date Joined Jan 2010
Total Posts : 105
   Posted 8/3/2010 12:54 PM (GMT -7)   
The way you describe it sounds like what I had several years ago.  At 36 years of age my heart rate was out of control.  They rebooted it several times - only to have it race again.  I was on major medication to control it.  They kept increasing it with a lot of side effects.  Finally a nurse told me to refuse to try anymore medication and insist they do something more permanant.  It was actually my doctor's nurse that told me that.  Anyway, they ended up doing an ablation and put in a pacemaker.  I am now 54 and am on my third pacemaker.  The ablation/pacemaker surgery is really a noninvasive surgery.  Easy recovery.  No more medication to control the heart.  I am thankful for the years that I have had.  My heart condition is not related to fibro at all.  If you have it done - I think you will be surprised at how much better you will feel.  And you won't have to worry about it anymore - therefor less stress -YAH!!!  I am thankful that they have diagnosed you already.  That can be the hardest part.  For years they told me it was in my head, sort of like fibro.  You are in my prayers.  I understand how scared you are.

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 8/3/2010 12:57 PM (GMT -7)   
So sorry you are having this along with everything else.  I usually have an "elevated" heart rate but when I am under anxiety or sick it will get down right fast.  It has scared me on several different occasions in my life.
I went to the Dr. this morning and when they took my vitals the nurse asked if my heart rate was usually a little fast and I told her yes.  I didn't ask her what the pulse rate was, would've just made me more anxious.  Hope it doesn't come down to surgery for you.  I will be praying for you!  Soft hugs.
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