Weird and asking for thoughts

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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 8/2/2010 1:30 AM (GMT -7)   
So, last year in the winter or late fall I had this super myalgia. Hurt so bad I was crying and trying to massage the arm/shoulder and moving it as much as possible. Ended up in the ER where they just called it a "myalgia" and said hot and cold it. Well, a month ago the same thing happened to the opposite side of my body. It took me six months for the muscles in the left arm/shoulder/and especially pointer finger to work correctly again. I couldn't bend the first knuckle of my pointer finger and my thumb also go extremely weak at bending. Had tons of issues with holding things in that arm. Now it's in the right side which is my dominant hand. However, the right pointer finger isn't bending at the first knuckle by itself (I can bend it with other fingers or bend it in with other hand but it won't bend by itself). I ALSO seem to be experiencing tightening of the left pointer and thumb muscles. They bend but its super tight like they don't want to on their own either.
 
Anyone else have that problem? I have numb top layer of skin on my left knee and inside it hurts like crazy. I swear, all my doctors aren't improving anything. I have a script of prednisone and I wonder if maybe that wouldn't help it since the super-myalgia in my right arm/shoulder/hand occurred right after I finished my last taper from when I was in the hospital.
 
Does anyone else have this? Or had this? Who should I see? What's making it happen so it takes six months of moving the hands and fingers like I'm giving myself physical therapy. Please help me if you can.
 
Thank you.
29/f
Allergies and Asthma my whole life: Benadryl
Depression and PTSD after surgeries and illness of 2003 (turned out to be Crohns)
Crohns Dx'd: February 2008: Pentasa, Hyoscyamine
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 8/2/2010 1:46 AM (GMT -7)   
physical therapy would be good to keep you moving. a neurologist is the one who should proabbaly be seen.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis, Anxiety
Medications:  Tri Nessa, Percocet, Metformin, Prednisone, Cingulair, Albuterol, Pro-Air, Morphine, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops, Percocet, Immuran, Alvesco, Allerga, Gabapentin, Visteral  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl Undergoing Chemotherapy Taking Lorazepam (Ativan) For MRIs and Anxiety, Surpressed Immune Sytem

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/2/2010 5:49 AM (GMT -7)   
Hi joie, I have to agree with Desiree, this sounds like a neurological problem. I have had problems with my neck and right shoulder for a long time with the fibro, but what you describe sounds a lot different. I will be praying that you find answers soon.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 8/2/2010 6:03 AM (GMT -7)   
I've not had this happen but hoping you find some relief soon.
Hugs and Blessings.
-----------------------------------------------------------------------

Fibro Acid Reflux Bicuspid Aortic Valve Disease



meds:

aleve flexeril as needed ambien to help sleep

vitamin d and iron



prevacid





__________________________________________________



Don't think about what you used to be able to do............
Think about you DID do today !

livenlaugh
Regular Member


Date Joined Dec 2009
Total Posts : 387
   Posted 8/2/2010 6:07 AM (GMT -7)   
Hope you find some relief soon.
Lisa

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 8/2/2010 11:37 PM (GMT -7)   
Thanks for your thoughts. Cripes, you all are echoing an ER doc's thoughts on it too. Bleeeach! I give up! ~decides to just throw a temper tantrum in her head and pretend I'm stomping my feet and holding my breath til my face turns purple~ S'not fair Snot FAIR!

Tehehe. What should I expect if I see a neuro? Anyone out there know? What kinds of tests would he/she run and what kinds of questions will I be facing?
29/f
Allergies and Asthma my whole life: Benadryl
Depression and PTSD after surgeries and illness of 2003 (turned out to be Crohns)
Crohns Dx'd: February 2008: Pentasa, Hyoscyamine
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/3/2010 7:34 AM (GMT -7)   
Hi joie, a neurologist does alot of testing as far as your balance and coordination. He will have you describe what is going on just like any other doctor. He will probably have you get an MRI or a Cat Scan. He is not someone to be afraid of though, he is there to help you. Dont be afraid of him. Praying that you get results soon.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/3/2010 9:10 AM (GMT -7)   
Joie, the word "myalgia" means pain in one or more places.    So, their diagnosis was what you already knew!
 
I do have problems with my hands.  I had a big, painful problem with my right thumb and with all of my fingers.  My thumb was soo painful that I barely could move it.  Where the thumb meets the wrist, I couldn't touch that area because of the pain.  I was learning how to write with my left hand because I almost couldn't hold a pen.  I took ibuprofen and babied it and, after about six months, it started getting better.  Now, I would never know I had a problem.  
 
But, my fingers still lock.  If I close my hand in a fist, I can't straighten all of my fingers out again.  One I have to manually straighten and my fingers "pop" too.  My hands were so weak at one time that it was difficult for my to put dishes in the cupboard and I also dropped my Crock Pot full of food on the floor because my hands and arms were so weak.  Notice, I said "were".  I have gotten better!  So, as you can see, you are not alone.
 
I find that moist heat helps me the most.  Hot showers and a Bed Buddy are helpful.  You can find Bed Buddies at Walgreen's and other places or you can make one by taking a tube sock, filling it 2/3's full of raw long grain rice, and tying a knot at the end.  Pop it in the microwave and it gives off moist heat due to the moisture in the rice!
 
I hope you get some answers and feel better soon.
 
Sherrine
 
 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Mrs.ZtoU
New Member


Date Joined Aug 2010
Total Posts : 2
   Posted 8/4/2010 9:18 PM (GMT -7)   
Hi everyone, I'm new to the boards. My pain doc has told me I have fibro and also scarolitis (sp). I've been dealing with back pain for over a year now, been through the wringer and back, even as far as having radiofrequency ablation done that didn't work :( Anyway the post above from Sherrine caught my eye about her hands hurting and locking up etc. Mine feel that way all the time now, it would come and go in spurts, and feel as though I would have to crack my knuckles a lot, but never get relief. The pain was endless. They always feel swollen, but very rarely are. In the morning I feel like I've been run over by a truck, my body hurts so much. My feet are hellacious. No matter what shoes I wear, my plantar faciatis pain won't go away, and I've already been down that road before, so I know how to deal with it. My body aches and down right hurts all the time. i've been on lyrica for some time now, don't really know if it helps or not. I'm only on the 2nd month of cymbalta, and they have me on zipsor also. I take hydrocodone too. I still hurt. I get migraines, but thankfully they haven't been much of an issue lately. Does this sound fibro ish?

Tina

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/5/2010 10:58 AM (GMT -7)   
Hi, Tina, and welcome!  Well, I dealt with plantar faciitis, too.  Once I started wearing Birkenstock shoes, the pain slowly went away.  That was 16 years ago.  I thought those shoes were the ugliest things I'd ever laid eyes on but now I have 22 pairs!  Hey, they took care of the plantar faciitis for me...and also for a friend of mine, once she followed my suggestion.  I can even walk barefooted now with no pain...unless my fibro is acting up. 
 
I'm happy that you are here and I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40580
   Posted 8/5/2010 1:04 PM (GMT -7)   
Hi Tina,
 
I just wanted to welcome you to the forum.  I am glad that you have joined us.  Please feel free to start an introductory thread of your own so we can get to know you.  Tagging on another person's post may not get read. 
 
All of what you are describing is so familiar.  I hope that you feel better soon.  If you get a chance, check out the thread called fibro101.  It is at the top of the page.  There is a wealth of information on there.
 
Best wishes to you,
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

Mrs.ZtoU
New Member


Date Joined Aug 2010
Total Posts : 2
   Posted 8/5/2010 6:22 PM (GMT -7)   
Thanks for the welcomes :) I will start an intro thread in a bit, but did want to comment on this one again. Sherrine, i have about 6 pairs of birks, and they too bother my feet where they didn't just last year!! So something must be amiss!

Tina

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/6/2010 7:26 AM (GMT -7)   
I don't wear anything but the Birks.  They are my shoes and my slippers.  I even have black patent leather Birks for those "special occasions"!  LOL  I like the Arizona style because I can just slip my foot in them.  It took me months to get used to them but, once I did, I can walk just about anywhere.  I walked for two weeks through Italy and even trudged around on a glacier in Canada in my Birks!  That was a huge difference because before I started wearing these, I could barely stand to put my feet on the floor.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7
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