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KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 8/4/2010 3:06 PM (GMT -7)   
Many of you all I'm still in limbo land on being diagnosed.....doctor says I'm in the beginning stage of something.....duh.
 
Last two days have been burning skin pain and I have pain mostly in my limbs.  I went shopping for good and pushing the cart made my forearms hurt, cleaning glass hurts....plus I am tired.  Earlier today my jeans rub some funky way on my leg and I just jumped up......like something was poking me....my kids are gonna think mom is crazy.
 
At times I think Fibro, then I feel normal, now when I say normal not like last year.  Normal to me is few issues with pain/skin sensations/twitching. 
 
Like now I feel good earlier to day I felt blah blah....  day to day and hour to hour, I never know what I am gonna feel like.
 
Tell me I ain't crazy.....
'Brokenness means we are ready for change. Lord, come take my pieces and make me what you want.' Mark Brown

EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 8/4/2010 3:10 PM (GMT -7)   
No, you are definately NOT crazy girl. :D

Did your doctor actually do a fibro test?

I hope you get to feeling better soon.
-----------------------------------------------------------------------

Fibro Acid Reflux Bicuspid Aortic Valve Disease



meds:

aleve flexeril as needed ambien to help sleep

vitamin d and iron



prevacid





__________________________________________________



Don't think about what you used to be able to do............
Think about you DID do today !

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40601
   Posted 8/4/2010 3:21 PM (GMT -7)   
This is where you learn to take your life one day at a time because you never know what tomorrow is going to throw at you.  Relax, this is just the beginning, you have more yet to come.  Fibromyalgia waxes and wanes.  That means one day good, one day bad.  Or whatever it decides to do at any particular moment. 
 
I have my pain down to a minimum.  I have pain, but it isn't so bad that I can't tolerate it.  At least for the moment.  Have paitence with this disorder.  Expect the unexpected.  And never be surprised about it. 
 
I hope that you feel better soon, and I hope that you get a diagnosis.  When do you see your doctor again?  Let him know that you would like to put a name to this beast. 
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 8/4/2010 3:28 PM (GMT -7)   
I think it was Sherrine that said she felt like water running down her leg, with me I kept thinking that my cigarette ash was on my leg or in the garden a sweat bee or something on my leg. I now don't worry like I did but it still bugs me. Shutting down for the night......bringing the baby boy up for the night....baby boy is a 6 month old 50 lb GSD that needs house manners.................night, night
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/4/2010 4:05 PM (GMT -7)   
Fibro fluctuates from hour to hour and day to day.  I felt good today and forgot to take my 2 PM ibuprofen and now I'm in a world of hurt and limping.  It is important to remember your meds but difficult with fibro fog.  Plus...I was feeling sooo good!
 
But, I know I'll be better tomorrow!  That's how I keep going.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/4/2010 4:29 PM (GMT -7)   
Kellie, you aren't crazy, the symptoms we experiance can be. I sometimes feel like
my leg is wet and I'm forever drying it or have the sensation that needles are sticking
me or the burning sensation or the creepy crawler sensation or the numb, tingly feeling.

The limbo land is a crazy place to be, but sooner or later you get a Dx and you go on
to another crazy place, but then you know what you are dealing with... something that is
crazy, and it won't be bad because crazy becomes normal. That sounds crazy, but you do
learn to live with it.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 8/4/2010 4:41 PM (GMT -7)   
Thanks all, thats how I believe it is fibro because it comes and goes. Just the last few days have been tougher, lol.

I try to avoid pain meds this last week I am unable to do so, lol Sherrine I started to take Ibuprofen instead of tylenol.....well last few times I started to break out in hives. I feel like a freak don't need to look like one, rofl. Needless to say I'm back on tylenol.

EML and Karen, I don't see the doctor until 6 months, I have plenty of medical expenses and just feed up with them. She did push on my shoulder and elbow, no pain, although I felt good that day. It seems I go through of wonderful periods and then hit for several days of feeling blah.

GSD don't laugh this is how tired I am.......couldn't figure out how a 6 month baby would weigh 50 pds....you caused me an hour of pondering until I realize it's an pet....good grief, lol.
'Brokenness means we are ready for change. Lord, come take my pieces and make me what you want.' Mark Brown

KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 8/4/2010 4:44 PM (GMT -7)   
Robin, you said it, I have learned to ignore many things going on....I just have times thinking to myself going this isn't normal, lol.

I just keep telling myself God won't give me more than I can handle... ;O)
'Brokenness means we are ready for change. Lord, come take my pieces and make me what you want.' Mark Brown

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/4/2010 7:10 PM (GMT -7)   
Hi Kelly I think test of faith is defined as fibromyalgia. Im sorry it is worse for you right now and it has to be really hard not knowing for sure what it is. If it is fibro though you will learn to adjust and still be able to have a happy if not normal life. Always remember along with the bad days there will be good ones. Keeping you in my prayers.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 8/5/2010 10:04 AM (GMT -7)   
I really feel for you, Kellie, as I am in limbo land too! I don't know if I could wait 6 months! I am surprised the dr. didn't do a full blown out tender point test. Have you had an extensive blood test? I think I have ruled everything out but Lyme disease, however the doctor doesn't think I have it because I don't have some of the symptoms. I hope you can get some relief soon! I hate being in pain and not knowing what it is from! I feel half drunk every morning when I wake up and I can barely exercise anymore. You are more patient than me to wait that long. I hate all the medical bills though- ugh.. I even have health insurance, but still have to pay a high deductable!

Take care!
Kellie (yes, I have the same name!)

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 8/5/2010 10:06 AM (GMT -7)   
p.s.- I like the quote in your signature :)

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 8/5/2010 10:09 AM (GMT -7)   
Kellie-- I forgot, I was going to tell you that I have all those symptoms too.... even light touch hurts me.. sort of like having a sunburn. Do you still get muscle twitches? I get those too at times, but not as bad as it used to be. I can't help but think to myself that is MUST be Fibro b/c I don't know what else it would be. But then, I would feel really dumb if it wasn't. But MS has been ruled out for me, as well as RA and Lupus and other diseases.

When did you start with your symptoms? I only started the beginning of May of this year.... so, I am also in beginning stages of symptoms... so, it also makes me question the validity of some of my blood test results, like if maybe something just hasn't showed up yet.

EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 8/5/2010 10:13 AM (GMT -7)   
Sending you hugs and hoping you are having a good day.

I go through that too, have wonderful days where I feel great and then it all come crashing down and can't seem to function.

My legs hurt if my small dog even lays her head on my lap.

And I know the feeling of fed up with doctors.
It seems all my appts hit at once.

In Sept I have my check up with my reg/fibro doc
My pap smear
A check up and ultrasound with my cardiologist.


Just too much!
-----------------------------------------------------------------------

Fibro Acid Reflux Bicuspid Aortic Valve Disease



meds:

aleve flexeril as needed ambien to help sleep

vitamin d and iron



prevacid





__________________________________________________



Don't think about what you used to be able to do............
Think about you DID do today !

KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 8/5/2010 7:49 PM (GMT -7)   
Today has been more aches no burning.....life goes on.

Kellie (gosh that is weird) if you can please email, my email is in profile.....thanks
'Brokenness means we are ready for change. Lord, come take my pieces and make me what you want.' Mark Brown
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