Blood pooling in legs, lightheadedness

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probull3t
Regular Member


Date Joined Sep 2008
Total Posts : 38
   Posted 8/4/2010 9:20 PM (GMT -6)   
Hey, everyone. It's been a while since I've been on here. I'm still doing well, but I have had something odd happening for the past 2 months or so. At first it started when I would get up from a laying down position and I would get fairly lightheaded. It progressed quickly into several episodes of losing all control of my body and ends in me collapsing onto the floor. Later it got to the point where sometimes it would happen if I have just been sitting. Getting up slowly has never worked and I've been checked for diabetes, heart problems, and seizures. So far nothing really. I have worn compression stockings that never worked and took a beta blocker which I am allergic to. I'll be going to a specialist sometime later this month to see if there is anything that can be done to interrupt the episodes through my nervous system.

Just looking to see if any of you have (or know anyone) that has had something like this go on for a long time. This only happens when I change my body position from sitting/laying to standing.

Symptoms: Lightheadedness, blurred vision, dizziness, confusion, face goes very pale, (sometimes) uncontrollable jerk in my legs

Hope everyone is doing well.

Nick

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/4/2010 9:42 PM (GMT -6)   
Hi Nick and welcome back, sorry I dont have any answers for you, this is something that I have never had happen. I know when my blood pressure was low I would get dizzy but not to the point of losing control. Im thinking by specialist you are probably going to see a neurologist, hopefully they will find out what is causing this and be able to help you. Please let us know what you find out.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

probull3t
Regular Member


Date Joined Sep 2008
Total Posts : 38
   Posted 8/4/2010 10:08 PM (GMT -6)   
Yes I believe the doctor is a neurologist. I have been seeing a cardiologist who thinks it has more to do with my nervous system. I will definitely post again if I find out anything.

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2786
   Posted 8/5/2010 6:56 AM (GMT -6)   

I had episodes many years ago where if I stood up from laying down, sitting down or even lifted my head up in  my bed to roll over I would feel faint.  If I got up in the middle of the night to use the bathroom it would hit me and I would have to stop wherever I was and put my head between my legs. (I don't think I ever really fainted but saw stars and had tunnel vision etc) Now don't laugh, but there was an episode on the tv show House where this happened to a women...he finally pressed on her rib cage when she stood up and the fainting stopped.  Can't remember what was wrong, however!

They never did figure out what was wrong with me and just chalked it up to low blood pressure.  Mine was purely positional.

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil
 
Reach out and touch someone.  If they don't touch you back it's because you still  have brownie batter on your face.

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/5/2010 10:32 AM (GMT -6)   
Wow, Nick, that has to be frightening for you. I wish I could suggest what it might be, but I only get lightheaded, but it does not progress so far as you're describing.

I know this may sound stupid - because I am like a broken record about this - but are you getting really good quantities of all the necessities in your diet? Are you eating really well? Potassium has been a recent stumbling block for me - a tiny deficiency was giving me he** and I didn't know it was part of the problem. Magnesium, B-vitamins, selenium, malic acid also spring to mind. Maybe it wouldn't be the whole answer - but it might be a partial consideration?
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 8/5/2010 11:45 AM (GMT -6)   
Sending you hugs and blessings, sorry I'm not much help, but hopefully when you go to the doctor they will find out what is wrong.
-----------------------------------------------------------------------

Fibro Acid Reflux Bicuspid Aortic Valve Disease



meds:

aleve flexeril as needed ambien to help sleep

vitamin d and iron



prevacid





__________________________________________________



Don't think about what you used to be able to do............
Think about you DID do today !

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 8/5/2010 12:28 PM (GMT -6)   
Sorry you're going through this Nick.  I myself get lightheaded from time to time but nothing to this degree you describe.  Keep us posted and I will be praying for you that they find out what's going on.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15418
   Posted 8/5/2010 12:40 PM (GMT -6)   
How is your blood pressure?  I used to have mildly high blood pressure and was put on blood pressure medications and a diuretic.  Then I lost weight.  My blood pressure got too low, I was getting very dizzy if I leaned over or got up from a lying position.  I even started getting partial bowel obstructions.  Turns out my blood pressure was 62/30!  I was taken off both medications and have been fine since.  Just a thought.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 8/5/2010 12:56 PM (GMT -6)   
Hey Nick, sorry you are going through all this right now. I am going through some wierd stuff right now too...Lightheadedness, blurred vision, confusion along with other things you don't list (more pain, lumps and bumps, rashes etc.) Anyway, I was diagnosed with graves disease last week. The reason I mention this is that alot of your symptoms are listed under Graves or other thyroid problems. I am not a doctor or trying to diagnose you but have you ever had your thyroid checked? I never realized how bad you can feel everywhere when your thyroid is out of whack. Just a suggestion. I hope you get some answers soon, hang in there!
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), Graves Disease, GERD, High blood pressure, Depression and Anxiety
Oxycontin, Lopressor, Lexapro, Omeprazole, Valium as needed, Promethazine as needed for nausea from migraines

MinnyMouse
Regular Member


Date Joined Jun 2010
Total Posts : 193
   Posted 8/5/2010 8:21 PM (GMT -6)   
Hey Nick... Sorry this is a tough time for you. It's really odd that you posted this just as I was going to post almost the same thing. It started this week and I have hit the floor about 4 times, and almost more than that. It's always right after I stand up and take one or two steps. I have also had some ringing in my ears that's been driving me crazy for almost two months now. They got my blood pressure under control and I have cut out all OTC meds all ibruprofen and tylenol and am taking my Savella, Lyrica, Mobic, and an occasional Tramadol. Not sure why but I'm really light headed and so tired all the time. When I was a kid it was amemia that caused it and it seemed it always happend in Gym... probably the only kid that got an F in PE.LOL... I am going to see my Rheumy on the 20th, will pick his brain while there and see what he has to say.

Hope you are doing better, Hang in there

Steph
[u>Diagnosis: ]

[color=#800080>
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Meds: Vicadin, Meloxicam,Omepraxole(high dose previced) Vitamin D 50K , Ambian, Savella,Lyrica, Tramadol, Cyclobenzopine, Voltaren Gel, and Pennsaid Drops.




"Trust in the Lord with all thine heart; and lean not unto thine own understanding.
In all thy paths acknowledge Him, and He shall direct thy paths." Proverbs 3:5,6

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