UPDATE - ER Again (Was: Taking a break)

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TheChickenPrincess
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Date Joined Jun 2010
Total Posts : 554
   Posted 8/8/2010 8:18 PM (GMT -7)   
(EDIT: SCROLL DOWN For my latest entry -- Situation has changed since I first posted this. )


Hey all,

Just wanted to say I may be taking a break for a while. Won't be posting. Just a little worn out and tired. Have to try to regroup. Still not eating well enough. Going to try to work extra hard at meditating for an hour each day. Also found a hypnosis tape from my old psychologist which I'm going to play every day. I've got to kick this so I feel like me again. Will see you all after I get back together.

Be good.

*hugs*
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

Post Edited (TheChickenPrincess) : 8/9/2010 10:18:14 PM (GMT-6)


livenlaugh
Regular Member


Date Joined Dec 2009
Total Posts : 387
   Posted 8/8/2010 8:30 PM (GMT -7)   
Bye and take care of yourself!

Witchesblew
Regular Member


Date Joined Jul 2010
Total Posts : 105
   Posted 8/8/2010 9:02 PM (GMT -7)   
Hugs.... take care of yourself!
Angela
Fibromyalgia, Hysterectomy, CFS, Positive ANA test (unknown what autoimmune disease it is), Severe Carpal Tunnel>


__________________________________________________________________


meds: Benicar, effexor, percoset, zofran, amitryptaline, premarin, multivitamins, valium

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 8/8/2010 9:46 PM (GMT -7)   
Understandable - but your voice will be missed. Have a good break, and I hope it helps.

Debbie
This too shall pass...

.....fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Missmissy
Regular Member


Date Joined Oct 2006
Total Posts : 237
   Posted 8/9/2010 4:37 AM (GMT -7)   
Love and hugs to you. Heal quickly, feel better soon!
Crohn's Disease, Fibromyalgia, Psoriatic Arthritis
1200 mg. Asacol 3 times daily for Crohn's
I'm not going to take this lying down.

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 8/9/2010 5:11 AM (GMT -7)   
Take care of yourself and regroup.  We'll be glad to have you back! 

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/9/2010 7:10 AM (GMT -7)   
Hope you are able to find your quiet empty space to guide you to full relaxation....
breathe deeply. Rest and relax. Take Care, we are here for you!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/9/2010 7:13 AM (GMT -7)   
We'll miss you!  Feel better soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/9/2010 7:21 AM (GMT -7)   
Hi Princess, just wanted you to know that I will miss you bunches. I do understand though and hopefully you will be back soon. Take care of yourself.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 8/9/2010 10:12 AM (GMT -7)   
Huggles princess. I will miss you! You hang in there, and I will look forward to your return and your comments. We will be praying for you.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis, Anxiety
Medications:  Tri Nessa, Percocet, Metformin, Prednisone, Cingulair, Albuterol, Pro-Air, Morphine, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops, Percocet, Immuran, Alvesco, Allerga, Gabapentin, Visteral  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl Undergoing Chemotherapy Taking Lorazepam (Ativan) For MRIs and Anxiety, Surpressed Immune Sytem

KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 8/9/2010 8:39 PM (GMT -7)   
I enjoy your post, your knowledge and your wit.........((hugs)) we all need breaks.
'Brokenness means we are ready for change. Lord, come take my pieces and make me what you want.' Mark Brown

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/9/2010 8:45 PM (GMT -7)   
Thanks very kindly, everyone.

I sure didn't expect to be posting this soon - but there's been a little change.

I ended up back in the ER tonight. :-| I was running a fever of 102 and my heart rate was 130. I was extremely fatigued and having new joint pains. They pulled enough blood to run their own blood bank, did x-rays to check for pneumonia and ran an ekg. My heart is okay. My potassium was even lower (2 whole points low!) than when I went in 2 weeks ago, even though I've been eating bananas and potatoes. Most of my other tests came back normal, but they said my liver panel was just slightly elevated. They want me to follow up with a doc tomorrow. Mine's on vacation, but I'll see her colleague, another woman doc who is supposed to be okay. They said an elevated liver panel can come from a viral infection - so they tested me for mono. Negative for mono. They said it could still be some other virus, however. I'm REALLY hoping I don't have some sort of kidney disease, as that would definitely suck. I don't drink, don't do caffeine, don't smoke, never did anything illicit, don't take any meds on a regular basis except my benadryl and birth control pills.

My original intent wasn't to go to the ER, but my doc is on vacation. The nurse at their office didn't want me to wait - she wanted me seen now. They said to go to the urgent care walkin clinic. The nurse at the walk-in was the epitome of the b word. Beyond the b word. She told me I didn't have a fever that was worth considering, that I wasn't dehydrated, that I didn't drink enough, that my pulse rate wasn't bad enough to warrant even calling a nurse about. She belittled and humiliated me until I swear to you I nearly pulled back my fist and landed it in her sour puss. Then her doc came in and said, "Wow, you're really sick. Go the ER right now, I can't treat you here." I told him his nurse disagreed with him, but he didn't get my point. I sneared at her as I left. Stupid doctor didn't even give me help walking out across the parking lot. Worst doctor and nurse I have EVER encountered.

ER nurses and doctors were totally kind, professional and thorough. Couldn't have asked for better at the ER. AND at the ER, they confirmed that the doc at the walk-in was nuts, that they do EKGs and IV drips there all the time.

Anyway - I'm rambling - I plan to report that nurse for sure. She should be fired, or at least get a foot put up her useless hind end. (Can you tell I'm angry?)

My pains and heart rate stopped after the potassium kicked in. The fever broke when they gave me tylenol. I am not allowed to take more until the doc figures out what's up with my liver though.

So if you would please wish a good wish for me for this, I would appreciate it. Not quite out of the woods yet. But if this is a virus, I will be relieved that it isn't something worse.

Always something, isn't there?
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

Post Edited (TheChickenPrincess) : 8/9/2010 9:51:02 PM (GMT-6)


TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/9/2010 10:07 PM (GMT -7)   
(PS: Sorry for writing so much. )
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

Witchesblew
Regular Member


Date Joined Jul 2010
Total Posts : 105
   Posted 8/9/2010 11:12 PM (GMT -7)   
So sorry you had to come back on such a stressful note. ope they figure out your liver issues, and can help control the pain somewhat. Gentle hugs to you!
Angela

Fibromyalgia, Hysterectomy, CFS, Positive ANA test (unknown what autoimmune disease it is), Severe Carpal Tunnel,PCOS,Hip replacement
meds: Benicar, effexor, percoset, zofran, amitryptaline, premarin, multivitamins, valium

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 8/10/2010 5:05 AM (GMT -7)   
Sorry to hear about another trip to the ER and I also hope they figure out the liver issues.
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 8/10/2010 5:42 AM (GMT -7)   
I'm so sorry this is happening for you right now.  I have had three ER visits myself in the past few months.  I will say a prayer for you that you get to the bottom of what's going on.  Take care and keep us updated.

"When life knocks you on your knees, you're in the perfect position to pray."

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/10/2010 7:21 AM (GMT -7)   
I'm so sorry that you are going through this. Could the benadryl raise your liver
enzymes. Meds will sometimes do that. I've had abnormal liver enzymes and they went
back to normal without changing meds. Our bodies can be such mysteries.

Sending up a prayer and gentle hugs. Hoping you feel much better soon!
Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/10/2010 7:24 AM (GMT -7)   
Hey Princess, Look what happens when you try to take a break from us. (just kidding) I am glad you are back though. I will be praying for you that this is just a virus.
I wont go to a walk-in clinic anymore. My best friend never had a regular dr. So when she was having problems she was going to the walk in clinic and they told here she had some kind of palsey because she couldnt smile right and sent her home. This went on over a couple months and she finally ended up in the ER. It was cancer and six months later she was gone.
A co-worker of mine was very ill and he kept going back to the walk-in and they kept saying it was the flu. He was losing alot of weight and could barely catch his breath. His new wife finally set up an appointment for him with her dr. He had cancer also. Luckily his was treatable and he is done with treatments and back at work.
I no longer trust the walk-in clinics I think their main mission is just to get you out of there as fast as possible.
I am glad you went to the ER princess and Im sorry about that nasty nurse. Welcome back.

Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 8/10/2010 9:09 AM (GMT -7)   
Wow, Princess,
 
I don't blame you for wanting to punch that smug nurse!!  devil   If only there were some standards of behavior and competency that they had to hold to! 
Anyway, hope for the best for you, that it's nothing serious (obviously!)  
 
Debbie
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/10/2010 9:31 AM (GMT -7)   
Hey, Chick, can I come with you when you kick her in the behind?  Maybe both of us can do that together!  yeah    I'm glad you are reporting her.
 
I don't go to walk-in's either.  I figure that if the doctors were really good, they wouldn't be in a walk-in!  I did go to one once.  Was diagnosed with pink eye.  It turned out to be iritis...which, if I hadn't gone to the optholomogist, I would have gone blind...both eyes no less!  So I have no use for walk-in clinics.
 
I am glad you went to the ER, though, and were treated with respect.  They will get to the bottom of this.  I had my kidney function go REALLY bad on me and, in my case, it was medication that I was taking!  Once I stopped the medication, my kidney function went back to normal.  So, try not to let your mind run away with you.  I've been terribly sick at times and I'm doing fine now. 
 
Let us know what's up!  I'm praying for you. 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/10/2010 11:45 AM (GMT -7)   
*Hugs* for each of you. Thank you.

Sherrine if you are in a butt kicking mood let's do it!

Shirley and Sherrine - you're right about walk-ins. The weird thing is, this walk-in is in the big main office of a normal doc facility. A city bigger than my small town So when they're unable to see you - they send you to the bigger facility. Some years ago one of my sisters needed to go there, and they sent her home saying she had a bug, nothing more. Well, she was acting sort of incoherent. I forced her to see her reg doc first thing in the morning. Good thing I did, she was so dehydrated should could have died. Her ex-husband was also shoved aside for something very serious - I think that might have been the time he was hospitalized for pneumonia and almost died.

Thanks for the thoughts, Robin. The doc didn't seem too concerned about my benadryl, but I made sure to tell her all about it. Even asked her if the peppermint I take for ibs would be a concern (she said no).

Debbie, Libby, GSDgirl. Feisty, Thank you each.

Update ---

Had a follow up this morning. She is every bit as thorough as my new doc. I feel glad to know two trustworthy docs now.

She still suspects virus, since mom was hospitalized about a month ago with very similar symptoms - and the length of illness is similar. She said some viruses, while they don't have proper names, can last 3-6 weeks.

She wants me to come back every week for 6 weeks for checkup blood work to watch the liver. If it goes back down, we're good. If it doesn't, we'll do other tests - like maybe look at the gall bladder and stuff like that.

She's rechecking my levels today and will tell me tomorrow if I need to buy a potassium supplement or magnesium or anything else.

My fever is coming and going - but I'm doing all right. I asked why sometimes I feel like I'm getting well, but then I get slammed back down again. She explained it could just be the body realizing it needs more resources for the fight, so you start feeling crappy again.

Also - they were NOT impressed with how the walk in clinic treated me. There will be things done about that. 8-) They should have done all the testing there last night - they have all the machines and lab equipment. It would have been cheaper for my insurance to pay (not my pocket - but I don't like them being screwed.) Someone is going to get their butt kicked, and rightly so. I also have a form to fill out complaining about them.

I sure will be glad when I can eat again. I've dropped just too much weight. I never realized how completely hard it is to put ON weight - it is every bit as hard struggling to lose it - but maybe a little scarier because it goes in free fall and the implications are a bit dire. I've been on both sides of this loss gain issue - both suck.

Thank you all.
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/10/2010 1:50 PM (GMT -7)   
Chick, there are fortified drinks, like Ensure, that will help you put on weight.  If you are worried, I'd try that. 
 
I'm glad you are finally being heard...and by a couple of good doctors, too.  Sometimes these things just have to run their course.  It's not fun so hang out with us.  We'll help you through.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/10/2010 3:42 PM (GMT -7)   
Thanks Sherrine. I'm going to read some of those drink labels. Maybe there is one I'd like.

Yeah, you're all stuck with me. I'm hanging out. :D Thank you.
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 8/10/2010 4:52 PM (GMT -7)   
I can so sympathize with the weight loss issue.  I too have lost quite a bit over the last two months.  I have been having severe nausea, getting full after a few bites, food not going down and horrible leg and arm weakness.  I've had a ton of bloodwork, abdominal/pelvic ct scan and upper gi series.  All have turned out ok except low magnesium, low vit. D and my liver enzymes were on the low side.  And also, I tested positive for H Pylori which I had years ago and evidentally didn't get rid of. The nausea has been so bad just talking sometimes can gag me.  No answers for me yet, but I am having an endoscopy/colonoscopy Friday (as I have posted on here more than once- mostly due to fear).  But on a lighter note, I have been eating much better the past several days so I have been taking advantage of that.  I too am anxious to put some weight back on.  I have always been small but in recent years had actually put a bit of meat on my bones and was kind of proud of that.  I have been drinking alot of Ensure, shakes and ice cream.  I also found something called Benecal.  It can be put in things like the Ensure.  It adds 333 calories and I believe it is 8 ounces of protein (I don't have any right now to look at but you could look it up online, that's where I found it and ordered it online also).  It doesn't taste that great but in with the Ensure it's not too bad.  I'll be keeping you in my prayers.  Keep us posted!  Soft hugs.
"When life knocks you on your knees, you're in the perfect position to pray."

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/12/2010 7:16 AM (GMT -7)   
((( Libby ))))
Sorry to be so slow to reply. I couldn't find my own topic.

I'm really sorry you're having trouble with low weight too. It is the pits! I got so mad at one friend who said, "hey, that's a lot better than needing to lose!" I thought that was so insensitive to say.

Thanks for the tips. I'm glad you're going through a time of eating a bit more. Definitely run with it. I'm finding that if I snack every time I possibly feel like eating, I'm doing a little better. My desire to eat seems to run out mostly after 4:pm when my fever generally goes up - so I'm trying to eat lots of small meals before that.

This may be a virus after all. I've developed a small tickle type cough - just like my mom did about 2 weeks into her sickness. She also told me she still doesn't have a good appetite, and she's at least 2 weeks (or a month?) ahead of me. :-O She also lost at least 5-10 pounds while sick. If I could just quit with this fever I'd be feeling a whole lot better. Every time it goes down, I feel almost normal! Then it goes up and I feel sucky again. I read online that kids can get viral fevers for 4 days. Well, this is my fourth day. If it is here Friday, I'll call the doc and ask if I should be concerned if it continues over the weekend. I've only taken tylenol twice now. 250 mg on Tuesday night, 500 mg on Wednesday night. (Oh, and 625 in the ER) She said I could take it as needed, because she wasn't THAT worried about the liver panel - but to use my discretion. I also figure I do want to let my body's defenses (fever) kill the virus if it can ... but on the other hand, when it reaches 100.7 or 101, I get nervous and take the tylenol. So far that's only two times now. *sigh*

Sorry to rattle on.

Thank you so much Libby. I hope they can help us both get back to good.

I've decided this new doc may be aggressive enough and detailed enough to help me overcome a lot of issues. When this is over, I may ask her if she can solve some other issues other docs left as mysteries. She seemed shocked that no other doc bothered to find out why I get hives - maybe she's the woman for that job? Did I mention she typed as fast as a stenographer to get every detail that I said? And she contacted me at 9:15 at night to make sure I got my results? How cool is this woman? I wonder if she has a cape and is able to leap tall buildings in a single bound?
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!
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