Don't take my Savella away from me!!!

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New Member

Date Joined Jul 2010
Total Posts : 4
   Posted 8/11/2010 2:08 PM (GMT -6)   
I'm just having a minor freak-out moment here. I got put on Savella three weeks ago (samples). I called my Doc to get a real prescription because I feel fantabulistic on it. Then he says " Lets hope your public aid will pay for it... if not I'll give you more samples and we'll write a bunch of letters (whatever that means)." Walgreens called me and said they need to talk to the "public aid" people to see if they'll pay for it so that already doesn't look good.

This med has changed my life... I cannot lose it. There's no generic for it yet so that's not an option. shakehead

p.s. Does anyone yawn a million times when they go out in the sun?

Forum Moderator

Date Joined Apr 2005
Total Posts : 17061
   Posted 8/11/2010 2:35 PM (GMT -6)   
It sounds like your doctor will help you with it.  Also, many times the manufacturer will help you when you can't afford a prescription that they make.  Also, in Fibro 101, there is a link called Prescription Drug Help that may help you.  Don't start worrying yet!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 8/11/2010 3:12 PM (GMT -6)   
Hope you get this all worked out. Sherrine is right there is help out there for prescription drugs if public aid refuses to pay. Keep your chin up.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40406
   Posted 8/11/2010 4:25 PM (GMT -6)   
Sometimes if the doctor expresses how bad you need the med, you can get prioauthorization for it. I wish you the best.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 8/11/2010 5:02 PM (GMT -6)   
Amy, saying a prayer for you, hoping you can stay on the Savella. It has helped
me and I'm glad that it is working for you. Hoping the manufacturer comes through
for you!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Veteran Member

Date Joined Jun 2010
Total Posts : 554
   Posted 8/11/2010 5:57 PM (GMT -6)   
The others have been right on target with their advice.

I'd just like to add, I have a card called Together RX. It was promoted by Montel Williams when I first signed on years ago.

I *think* this is the latest info - but please double check as it may have changed a little.

"Together Rx Access, LLC
PO Box 9426
Wilmington, DE 19809-9944
Phone: 800-444-4106
Sponsored by 10 pharmaceutical companies. The applicant must not have any type of prescription coverage and not be eligible for Medicare. Must be a legal resident of U.S. Average savings of 25 to 40% on prescriptions. Annual income must be less than $30,000 for an individual and $40,000 for a couple, $50,000 for a family of three, $60,000 for a family of four, $70,000 for a family of five. Families of six or more OR residents of Alaska and Hawaii should contact Together RX Access at 1-800-444-4106 for household income information."
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

New Member

Date Joined Jul 2010
Total Posts : 10
   Posted 8/11/2010 8:05 PM (GMT -6)   
i know it's a drop in the bucket, but you might be able to get 3 months worth from the manufacturer.
Here's the link for info and application
you may have to dig a bit, but hopefully you can stay on it through the various resources folks here can provide.  nice that your doc is ready to help too.  :)
good days,
"Infinite Goodness Has Such Wide Arms"

Forum Moderator

Date Joined Nov 2008
Total Posts : 5927
   Posted 8/11/2010 9:12 PM (GMT -6)   
I don't know anything about Savella, but I'm curious about your yawning in the sun remark. What do you mean??
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Veteran Member

Date Joined Nov 2008
Total Posts : 2854
   Posted 8/11/2010 10:38 PM (GMT -6)   

Yawning in the sun...Savella and many drugs that influence serotonin levels have a side effect of yawning.  When you go out into the sun, your body gets an extra boost of serotonin, which is why some people use those Sunlight Lamps in the winter for seasonal depression.  I did A LOT of yawning while on Lexapro and I noticed it was worse when I was outside.  I know Lexapro is a different drug than Savella, but they both affect serotonin levels in the brain.

So....that may be why you are yawning in the sun!



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil
Reach out and touch someone.  If they don't touch you back it's because you still  have brownie batter on your face.

New Member

Date Joined Jul 2010
Total Posts : 4
   Posted 8/12/2010 10:22 AM (GMT -6)   
Thank for all the support and help! It means so much to me. I haven't heard from Walgreens yet so I'm going to look into all the information you guys posted. My doctor is extremely supportive of me and has been working on a diagnoses for my symptoms for a year now so I know it'll all work out. I just had a minor panic attack when he said public aid might now cover it!

about the yawning... I never thought of it being from Savella! Interesting! I've always felt horrible in the sun... super sleepy. I just thought it was so weird I couldn't get myself to stop yawning!! Actually, I was only outside for 10 minutes and became fatigued for an hour. We are having a heat wave here in chicago!

Regular Member

Date Joined May 2010
Total Posts : 110
   Posted 8/20/2010 11:01 PM (GMT -6)   
Hey.. I'm in the Chicago area!! and Hey! I was on Savella too.. and Hey.. the company I worked for dumped our good insurance for a crapty High Deductible insurance and there is no way I could afford Savella on my own.. I was lucky enough to find a doc that agreed to let me try LDN.. so far so good. my copay on the old insurance was 60 dollars for Savella. Think the full cost is something like 112. 00 for 100mg/day. Now I saved myself at least 20 bucks.. my script only costs 42. not bad compared to the 60..
DX: Fibro, PA (Psoriatic Arthritis), Psoriasis, Rosacea.
Formerly Savella, Now Lisinopril, Vit D, Prilosec, Ambien, LDN, Tart Cherry, DL-Phen

Regular Member

Date Joined Nov 2008
Total Posts : 51
   Posted 8/20/2010 11:28 PM (GMT -6)   
How long before you felt great? I am on it for 2 weeks now and nothing! Crap!

Regular Member

Date Joined Aug 2010
Total Posts : 77
   Posted 8/21/2010 1:10 AM (GMT -6)   
oh i feel so horrible in the sun as well. I just started Savella yesterday and before the dr even gave it to me i wanted her to make sure it was covered by my state aid. She said it had just been accepted. PHEW. I'm soo sorry. I really hope this Savella works for me the way it has for you

Yey the probs I have with the sun are the only contridictory symptom I have of fibro. The heat and the sun absolutly kills me!!!

Regular Member

Date Joined May 2010
Total Posts : 110
   Posted 8/21/2010 10:23 PM (GMT -6)   
Heat and Sun kill me too. But I have Rosacea and that will sting my cheeks big time.
Savella took a month and a half to delete the pain. At about three weeks into it.. i was able to cut my Muscle Relaxant down to nights only and stopped all Vicodin and just used Etodolac. (NSAID). A month and a half into it.. I didn't have to take any thing else other then Tylenol once in awhile. Savella does nothing for Arthritis though and may even make it feel worse. Savella DID increase my heat intolerance big time though.
DX: Fibro, PA (Psoriatic Arthritis), Psoriasis, Rosacea.
Formerly Savella, Now Lisinopril, Vit D, Prilosec, Ambien, LDN, Tart Cherry, DL-Phen
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