Busy day yesterday and the new game plan

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sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/13/2010 7:02 AM (GMT -7)   
Hi all my fibro family, Thanks so much for all of your support just knowing you are all with me on this new journey makes it easier to travel.
Yesterday was a very busy day for me. I was at the Cancer Doctor at 8:20 in the morning and believe me I am not a morning person lol. Anyhow this is what the game plan is. On Tuesday I will be having outpatient surgery to put a port in so that I dont have to get stuck with different needles each time. They can just use this port to put the drugs into and it is under the skin so not all that noticeable. Then on Thursday I will see my cancer dr. again and from there I will go get my first chemo treatment. They are going to use two different kinds to try to shrink down the cancer it the chemo works well they will then do pin point radiation to try and kill the remainder. Then I will have to be on maintenance pills to prolong its coming back. This all happens if the chemo is a success and being as I am trying to think only positive thoughts I didnt ask about what happens if the chemo doesnt work. He did confirm that it is stage 4 and he also gave me the new that I will definitely lose my hair. I wont dare go outside on a windy day because I have ears like dumbo the elephant and would probably fly away. lol
Well from there We went and talked to the surgeon who is going to be putting in the port she was very nice and explained that they will be putting it on the right side which is the worst in case during the surgery the lung collapses I will still have the better lung on the left. More lung issues to look forward too lol.
 
From there it was down to the lab for bloodwork. That needle didnt hurt going in but I was surprised how much it hurt coming out. Yikes. After that it was to pre registration and then we had to see another nurse. She said they should do an ekg and I said I dont think so, as by this time I was more than ready to leave the clinic. She said they will probably do one on Tuesday before the surgery I said that was fine just couldnt do it today.
Finally got out of there at 12:30, went and got something to eat as both hubby and I were starving by this time.
Then at 3:00 we had to be at the Social Security Office to talk to them about keeping hubbies disability. We told her that Charles has cut down hours and is even taking a leave of absence when my chemo starts. She is going to try to help us. I sure hope she can because without his disability we have nothing.
Anyhow we got done there at 4 and at 4:45 I had to be at the MRI place for a brain scan. The cancer doctor said that alot of times lung cancer will jump to the brain and that doesnt show up on a petscan. Good thing Im not claustrophobic. lol I did find out some good news there, I actually do have a brain, believe me I asked. lol
After that it was back home and by this time I was exhausted, One good thing is that the two sons who are out of town came home last night for the weekend. They are so worried with being gone all the time but I dont want them to put their life on hold for me. I know they love me and thats enough.
Sorry this is so long so moderators if you need to you can shorten it. Love you all
Gentle Hugs
Shirley yeah
 
I just fixed your subject line.  I didn't touch your post....much too inspiring!
 
Sherrine

Post Edited By Moderator (Sherrine) : 8/13/2010 9:18:05 AM (GMT-6)


sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/13/2010 7:04 AM (GMT -7)   
OK LOL, just read what I put in the subject line that should say busy, not busty. Sorry
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/13/2010 7:15 AM (GMT -7)   
((((((((((((((((((((((((((((((((((((((((((Shirley)))))))))))))))))))))))))))))))))))))))))))))))))

We all will be thinking positive thoughts with you and will be right here praying for
you every step of the way my friend!

Get some much needed rest after that busty day lol :)

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/13/2010 8:25 AM (GMT -7)   
Aw, Shirley, you sure had some day yesterday.  I'm glad they are attacking this cancer right away and have given you something positive to consider!  They wouldn't have mentioned the pinpoint radiation if they had never been able to shrink this type of tumor!  So NOW we know how to pray.  I'm very glad you didn't ask questions to put doubts in your head.  We don't want the bad news....only the good news and we here on the forum know you are a fighter and your attitude is your shield.  You are quite an inspiration.
 
Aren't MRI's of your head a lot of fun?  I have done that.  It was close to Christmas so I sang, out loud, Christmas carols for 45 minutes!  I'm sure they were seeing if I had a brain, too.  smilewinkgrin
 
They have great wigs or scarves that will help with your hair loss so don't worry about that.  And, if your ears work, that's the most important thing.
 
I will be praying for successful chemo treatments and also for your hubsand's disability.  Somehow, things work out.  You just take care of yourself.  We really care about you.
 
Sherrine 
 
 
[color=blue>Forum Moderator /Fibromyalgia
***********************[/color]
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 8/13/2010 8:35 AM (GMT -7)   

Thinking of you through this difficult and trying time....you go, girl!  You have spunk, a positive attitude and are an inspiration to us all.  Your fibro family is with you all the way!

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ Meds: valium Advil

Reach out and touch someone. If they don't touch you back it's because you still have brownie batter on your face.

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 8/13/2010 9:27 AM (GMT -7)   
Wow Shirley, you are such an inspiration to me. Everything you are going through and you keep such a great attitude! You are one amazing Lady! I know you will beat this and just know you are in my thoughts and prayers everyday. Keep posting.
Gentle Hugs>

Shannon




Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety


Oxycontin, Lopressor, Lexapro, Omeprazole, Valium as needed, Promethazine as needed for nausea from migraines

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 8/13/2010 12:14 PM (GMT -7)   
((((Shirley)))),

You are definitely one strong lady. Many, many good thoughts for you here from all your friends. All your positiveness must surely be attracting a good outcome! I don't know how it could do otherwise!

Debbie
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/13/2010 4:59 PM (GMT -7)   
(((( Shirley ))))

There is a lot of good news and hope in what you wrote. I just wanted to cheer you on quickly for now - but will write more later. (Getting a storm and gotta unplug the computer.)

*hugs*
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/13/2010 6:00 PM (GMT -7)   
(Sorry for the delay)

Shirley, it sounds like your medical team is top notch. Your oncologist sounds like he has it all planned perfectly. This is so good to hear. You'll have all the right stuff being done. And like Sherrine said, now we know how to focus our thoughts and prayers. ;-)

I so love reading about how you're tackling this - and how you spend your days. When I'm in with my doc, I actually think of you, and say, "now wait a minute, Shirley would probably be making this a light hearted thing - I'm going to lighten up in my thoughts about what I'm treating, too!" So you've helped me so much - and I thank you for that.

Sherrine is also right that wigs, hats, scarves and wraps can make a world of difference. And you know, with a wig, you can keep it looking nice without all the labor or shampooing, conditioning, blow drying, curling ... etc. So maybe that's not a bad deal for a while.

I'm so glad your boys are showing their concern and love. You raised them right. Sounds like you've done a lot of things right. You're gonna get this treatment right, too. ;-)

love and hugs.
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 8/14/2010 6:05 AM (GMT -7)   
Wow, what a day. I'm sending big (((Hugs))) and prayers your way. Please continue to keep us updated; we care about you and want to support you. :-)

This may have been mentioned before, but for all of our friends who are being treated for cancer, are you aware of Chemo Angels?

http://www.chemoangels.net/

I've heard good things about it.

I hope you are able to rest today and enjoy your sons.

Hugs - Austen

PS - a "Busty" day?? LOL, LOL devil smilewinkgrin

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/14/2010 7:02 AM (GMT -7)   
Wow can you believe it Im feeling speechless here. Im so overwhelmed by all the love and support you all have given me when you are all going through so much yourselves.
Sherrine thank you so much for fixing my mistake. I did laugh when I saw what I had done but it was rather embarassing too. Thanks also for your kind words. They help so much. Robin and Austen thanks for taking the time to laugh with me, around here everyday is a busty day. lol I bookmarked that site too Austen thanks. Debbie, Shannon and Donna thanks so much just for being here and giving me the support I need. You guys are all special. Princess you are as always my cheerleader and I thankyou so much for all that you do to raise my spirits. I also want to thank all of you out there that are pulling for me. Life is a roller coaster of ups and downs for all of us and I am so glad we have each other to lean on. Love all of you
Gentle Hugs
Shirley

P.S. I think I found my voice. LOL
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 8/16/2010 7:08 AM (GMT -7)   
I could've sworn I posted this the other day but I didn't see it anywhere.  We had a man who worked where I work that about a year and a half ago was diagnosed with stage 4 lung cancer.  He is now cancer free and doing well.  You are so awesome and your attitude is just wonderful- keep on keeping on Shirley!  I am praying for you and will continue to.
"When life knocks you on your knees, you're in the perfect position to pray."
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