Need some advice please

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birdgrl10
New Member


Date Joined Aug 2010
Total Posts : 3
   Posted 8/13/2010 11:07 AM (GMT -7)   
So hi everyone. Just a as quick as I can make it background, I'm a 23yr old I've had joint and muscle pains and migraines and stomach problems for at least 7 or 8 yrs now. A few years ago I was diagnosed with the migraines and irritable bowl disease. Just this last December I was diagnosed with some sort of mixed connective tissue disease and fibromyalgia. I take lyrica, plaquenil, vitamin d, tramadol and excedrin. I've tried cymbalta which made me extremely sick to my stomach and amitryptilline but that made me too tired. My back has been killing me for about a year now so I went to have it looked at and I have a few bulging discs. I hurt all the time and everywhere. I get tired out so quickly from just the simplest if tasks. My advice I need is that to most people especially those that don't know me I look like a healthy young 23 year old woman and people ask me help them do things and expect so much physical labor from me at work and I don't ever know how to explain I just can't do these things. I'm so frustrated and fed up with everything. Thanks in advance!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/13/2010 11:24 AM (GMT -7)   
Hi, birdgrl, and welcome!  Yes, this is a problem that has been discussed...the fact that we all look healthy, but aren't.  I would just say that you have muscular and back problems and can't do heavy-type things.  You would love to help them but are physically unable to do that. 
 
Be sure to check out Fibro 101...the first thread on the forum.  There are links to good information about fibro, including one called Doctors Respond to New York Times Article.  You could print this out and give it to the people that don't understand.  Also, if you want them to try to understand fibro better, print out the link called The Spoon Theory.  This helps some people to understand.  But, actually, don't hold your breath!  Many times, after you have tried to explain, they still don't understand.  You just have to consider the source.  Besides, no one truly understands how we feel because they haven't walked in our shoes.
 
I'm so glad that you found us and joined in.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.
 
Sherrine  
Forum Moderator/Fibromyalgia
***********************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 8/13/2010 11:42 AM (GMT -7)   
Hello, birdgrl,
It is extremely frustrating, and it causes you to do all kinds of things you shouldn't (no kidding, huh??) I still get myself in a pickle, and I've had this for decades. It takes time to learn that it just AIN'T worth it!

Welcome to the forum! I hope you stick around.

Debbie
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/13/2010 12:47 PM (GMT -7)   
Hi birdgirl, I have the back problems also and I finally learned that when people expect you to do it because you are young you just tell them I cant because I have disc problems in my back. That they can accept alot better than trying to explain all the othe problems. I think Im just repeating here what Sherrine just told you lol. Sorry Sherrine,
Anyhow welcome to our fibro family you will find alot of great people here. Any time you need to vent just let us have it we all understand.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/13/2010 2:21 PM (GMT -7)   
Hi birdgirl, welcome to the family! You have already been given some great advice :)
I did want to stop by and welcome you and tell you this is a wonderful, caring forum.
We are here to help one another. Everyone here understand pain and the ups and
downs dealing with chronic illness.

Come back often with any questions, comments or if you need to vent. We care!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

birdgrl10
New Member


Date Joined Aug 2010
Total Posts : 3
   Posted 8/13/2010 5:31 PM (GMT -7)   
Thanks everyone for the outpouring of support and speedy advice! Seems like I found a great place to find support and offer my own to others. Thanks!

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/13/2010 7:10 PM (GMT -7)   
Hi Birdgirl smilewinkgrin

Just chiming in with a big welcome. You are definitely in the right place. Make sure to hang out and you'll find a whole lot of people who really do understand what you're struggling with. We help each other find ways to get through our big and small issues. That's just what we do here. I am sure you'll feel a lot better just having this support.

I can relate to having back, ibs, fibo and migraine problems. That's me, too. I often recommend a back book called, Healing Back Pain Naturally: The Mind-Body Program Proven to Work by Dr. Art Brownstein , M.D. Many libraries will be able to find this book - it is fairly popular. That way you can review it before spending any cash. It helps explain how the back works, why it hurts, and how to help it come back together again. There are a lot of very gentle yoga type stretch exercises which can help rebuild the muscles and tissues that support the spine. Eventually, it can help with disc issues - although it takes a long time. You may want to show it to your doctor and just ask, "are these safe exercises for my back?" and if they say yes, give them a try. My boyfriend and I both found tremendous relief from following the book. I ended up buying it after checking it out from the library numerous times.

Wishing you better days.
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!
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