What does it take to get some sleep??

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caligirl2001
Regular Member


Date Joined Jan 2010
Total Posts : 197
   Posted 8/13/2010 11:15 PM (GMT -7)   
I met with a sleep specialist doctor today about my insomnia. We talked about my history, my difficulty falling asleep, the fact that I'm a light sleeper. When she asked if I was comfortable with the idea of a sleeping pill of some kind, I told her i'm fine with it if she can find one that works. I told her about my frustration that most sleep medications I've been given or tried in the past, whether RX or OTC seem ineffective. I take them, and lie awake twiddling my thumbs, wondering when I will get to fall asleep. So, I walk away from the appointment with an RX for ambien and an assurance that it should do the trick, and help make up for the scant 4 hours I got last night.

So, where am I tonight? I took the darn thing2 hours ago! and here I am, still awake, wondering when I'll get to fall asleep. What is the point of a sleeping pill if they don't put me to sleep? I swear I need the equivalent of a horse tranquilizer to knock me out. It just makes no sense at all. And it is extremely frustrating. I've slept 4 hours since Thursday morning. I should be drooling on my pillow right now. ugh!!
Fibromyalgia, High BP, Migraines, anxiety, Non Celiac Gluten Intolerant
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin

Witchesblew
Regular Member


Date Joined Jul 2010
Total Posts : 105
   Posted 8/13/2010 11:54 PM (GMT -7)   
I am right there with ya! Sleep is not something that comes easily for me either, and my little shopping trip today has gotten my flare all worked up into a pissy! Ambien doesnt work for me at all, sat for nearly 4 hours after taking two! and unless I take enough percoset to knock out a horse, I stay awake all night or have some off the wall dreams wheni do try to sleep.
Angela

Fibromyalgia, Hysterectomy, CFS, Positive ANA test (unknown what autoimmune disease it is), Severe Carpal Tunnel,PCOS,Hip replacement
meds: Benicar, effexor, percoset, zofran, amitryptaline, premarin, multivitamins, valium

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 8/14/2010 5:44 AM (GMT -7)   
Ladies, after 22+ years of sleep problems, taking all kinds of RX sleeping meds and like you, sitting for two hours, waiting for them to work, and then the side effects of someting like Ambien, of sleep eating or should I say sleep gorging...falling asleep for 15 mins and getting up and eating until I can't any more, and all the weight gain...I finally began psychotherapy two months ago. I told the therapist I want OFF Ambien and any other sleeping medications. with her help, I weaned (SLOWLY) off Ambien. She told me to sleep alone (my DH snores SO LOUD, my Ipod doesn't block out the noise). So I moved into another bedroom, leave soft music playing at night along with a fan for white noise and I know this is almost impossible to believe, but I AM SLEEPING. I now fall asleep within 10 minutes of lying down and I sleep ALL NIGHT LONG, at least 7 if not 8 hours. I do still take Flexeril, which I was taking with the Ambien, and at times an Ativan, but now, only Flexeril. I plan to wean off that at some point. I am currently weaning off my Celexa.
I know we have been told by many professionals that with FM, we NEED these medications and I believed every doctor that told me that, but for some reason, I have turned the corner and I believe I can do this without the medication crutch. I think what is really helping me is the therapy. I had no idea therapy could heal the body as it is doing for me. I always knew I had "issues" going as far back as my childhood. I am beginning to really believe that what is physically painful, at least for me, has been caused by psychological problems from long ago, well, all my life. I never believed this before...but, well, therapy is working. That's all I can say.
If you have a room where you can sleep alone, consider it your sanctuary, MAKE it your sanctuary, a place of your own, a quiet, peaceful place. I used to become so anxious before bed, knowing how long I would lie there waiting for sleep to come, which I am sure never helped the situation, and then the snoring...now, only quiet, soft music and peace. I am calm when I lie down.
I wish you all peaceful, sleepful, nights,
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/14/2010 6:25 AM (GMT -7)   
Hi Cali, Sorry you are having so many problems with sleeping. Mariam had a good idea with therapy and there is also relaxation therapy that can sometimes help. For me a 5 mg. diazepam usually does the trick. If it doesnt work right away I will read for a little while. I will be praying that something works for you soon.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/14/2010 7:38 AM (GMT -7)   

Cali, have you tried hitting yourself over the head with a rubber hammer?  devil

Seriously, Miriam (Mt Lady) is right.  You do need to put yourself on a sleep schedule.  Go to bed around the same time most every night and get up around the same time in the morning.  I never lay in my bed until I'm ready to go to sleep.  My body responds to that.  I don't take naps in bed.  I will sometimes have a power nap...around 10-15 minutes....but never in bed. 

My husband always had to have the TV on when he went to bed so now I do too.  I have my TV on but yet I fall right asleep in about 10 minutes.  I do wake up several times during the night, mainly to use the bathroom.  The first time I get up, I turn the TV off for the night.  Sometimes, when I know I'm going to fall asleep soon, I'll turn it off then. 

Don't have caffeine after like 4 PM, either...and that means chocolate, too.  That can keep you awake.  So can eating a large meal close to bedtime. 

I have found these things have helped me get some sleep.    It's not a "sleep through the night" type of sleep, but I am getting enough rest to be alert most of the day.  I have never taken a sleeping pill...even in the hospital.  I hope this helps you.

Sherrine


Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

caligirl2001
Regular Member


Date Joined Jan 2010
Total Posts : 197
   Posted 8/14/2010 9:05 AM (GMT -7)   
Hi, and thanks for all the responses.

I've tried every sleep hygeine, sleep schedule, sleep relaxation thing out there. That is what led me to the sleep specialist. I run a fan for white noise.I'm a very light sleeper as well, so unless i'm in that very deep sleep, the slightest noise will wake me up. Thus the fan. Outside of my occasional chocolate fix or some iced tea, I don't do caffeine because it messes with my heart rate in anything less than a small quantity. Most days, I am completely caffeine free. I envy my husband, who falls asleep in 10 minutes just by turning on the TV. My husband doesn't snore very loud most of the time, and we have a memory foam bed, so I don't feel much, if anything when he moves. I've been unable to go to sleep for so long that I semi-gracefully, if reluctantly, accepted defeat a long time ago. I keep a stack of books and my lap top next to me, and I just entertain myself until the tired wins out over the brain that won't shut up. otherwise, I'm just stressing myself out thinking about how badly I want to sleep, but can't. At least the books and computer distract me. I like to go to bed at the same time as my husband does. It's the only place in the house we get to talk without kids around, and that before bed time is usually our only alone time all day.
Shirley, I tried valium, same kind of thing. Not much effect at all. Sherrine, lol, hammer has possibilities, although concussion might not be conducive to restful sleep either, but suggestion is filed in desperation category.

I took ambien before briefly a long time ago when it was still very expensive. I don't remember if it worked better then or not. I know I didn't keep taking it because even with insurance it still cost me 3.00 a pill, so had decided it wasn't worth it. I didn't get out of bed or go do anything strange last night so that was good, and my doctor and I agreed that to avoid a tolerance, I would only take it every other night. But if it is going to act like every other sleep aid and take hours to knock me out, why bother? despite having fallen asleep a little earlier because of the ambien, I woke up at the same time, and I feel just as unrested. What's the point? I need a vacation. I'm picturing myself on a lounge chair beside a tropical pool with a cold drink and a nice stack of books and no responsibilities. Maybe then I will rest. Oh well. Back to the drawing board.
Fibromyalgia, High BP, Migraines, anxiety, Non Celiac Gluten Intolerant
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 8/14/2010 9:17 AM (GMT -7)   
I feel for you. When I had bad sleep problems (when the babies started coming) I had the most bizarre dreams, very disturbing. I used to see strangers on the street and envy them their night's sleep. Anger doesn't even begin to cover it - what I felt was rage.

Debbie
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 8/14/2010 9:48 AM (GMT -7)   
Caligirl, it's taken me 30 years of marriage to finally accept I need to sleep in a room separate from my DH, so I understand how you feel. And even though his snoring isn't disruptive, the fact that he falls asleep so quickly could be an underlying stressor. I wouldn't have believed it then, but now, seeing the differnence, I realize I would become anxious just walking into the bedroom knowing my husband would fall asleep before his head hit the pillow!!! Gosh, was I jealous and now, like I said, no more than about 10 minutes and I'm out.
As mentioned, at least for me, a big part of this change has been psychotherapy. I don't know if I would be sleeping this well if not for the therapy. I always said I couldn't afford it, insurance doesn't cover much, until I realized this is just as much a treatment as if I needed a doctor for a physical ailment. My only regret is that I waited so long to do this and suffered for so many years with poor sleep, pain and so much fatigue. Believe me, I still have fibro, it hasn't gone away, but when I wake up in the morning, I do not have that fibro fog that everyone speaks of...at least for me, that was a drug hangover,which all doctors insisted was the FM...well, since I've stopped the Ambien, Ativan and weaning off of Celexa, the fog is gone. Do I do "goofy" things? You bet, like I found two knives in the fridge the other day, in the deli meat drawer and found a package of deli turkey in the silverware drawer! But at least that morning feeling, like I'd been run over by a truck is gone!
I really hope you find the right recipe, the right mix, that works for you. Have you tried listening to meditation, like Deepak Chopra? I have just one of his CDs that came with a music CD and it's really wonderful
take care
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.

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