Does it get worse?

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saintsfan
Regular Member


Date Joined Aug 2010
Total Posts : 171
   Posted 8/14/2010 9:40 AM (GMT -7)   
Does fibro get worse as you age or the longer you have it? REally curious to know what the future holds.
Dx: Fibro, HTN, Depression

"The Lord is close to the broken hearted and He saves those whose spirits have been crushed" Psalm 34:18

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/14/2010 10:04 AM (GMT -7)   
Hi Saintsfan, welcome to the forum! Symptoms of fibro will feel worse when you
are flaring. Fibro isn't really a progressive disorder because it doesn't destroy
muscles or joints although it feels like it does.

In one sense it gets better only because you learn to live with it. If you don't use
your muscles and exercise you become more stiff and you'll hurt more...That is why
it is so important to move. Some people will say it hurts too much to exercise and
they stop being active all together. When that happens the muscles can atrophy and
you will hurt all the more. Taking one day at a time really helps me.

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 821
   Posted 8/14/2010 10:45 AM (GMT -7)   
Saintsfan, I was only dx'd last year but I think I have had it since I was a child. Luckily I was always very active and as an young adult I began an exercise program and stuck with it. I always stretch after exercising. I think my fibro has gotten worse in the last few years but I do not let it slow me down. I do some form of exercise everyday and finish with stretching. I do yoga and gentle stretches. I also bike ride and my husband and I like to swing dance (rock and roll, not Glenn Miller devil) I am now 64 and I decided this darn condition was not going to take over my life.

When I woke up this morning I felt horrible but after a cup of coffee I made myself take my golden retriever for a long walk. I then stretched when I got home. Am feeling much better now.

You get lots of great info from the people on this forum. I'm glad you joined us.
Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/14/2010 11:01 AM (GMT -7)   
In October of last year I would have sworn that my fibro had gotten alot worse as far as the fatigue. I mean Ive been tired for a long time but this was so much worse that I ended up quitting work because I just did not have to mental alertness anymore for the job that I did.
Well now the Cancer Dr. says I have had this lung cancer for at least 5 years so now I think it was probably the first signs of the cancer showing up. My best advice I can give someone with fibro is dont always think that it is the fibro make your doc. check it out thoroughly if it is something you have never experienced before.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 8/14/2010 11:07 AM (GMT -7)   
Being that everybody is different, it is hard to say what the future holds.  I have gotten better with pain meds and adderall.  I am not perfect by all means, I still fight some fatigue and have some pain, but it has been at an even level for a long time. 
 
My suggestion is just to take it one day at a time and try to stay active.  Don't dwell on what you can't do anymore, but learn the things that you can do and enjoy life as much as possible. 
 
With that being said, I hope that you have a wonderful day.  I am glad that you have joined us.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 8/14/2010 2:24 PM (GMT -7)   
Hi, Saintsfan, hope you like the forum.

In some ways, I'm better, because I know what to expect (and what to not even try doing)and my family is older and also understands much better. Of course, aging brings its own problems and it's often hard to tell what is causing something. I would agree with what everyone said, don't become a couch potato! But be gentle with yourself.

Debbie
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/14/2010 2:34 PM (GMT -7)   
Some great replies here. I hope these help. They're all true.

When I was first diagnosed, I asked my doctor, and the doctor who founded the medical group as a second opinion, "does this get worse?" The second doctor said, "I'm sorry to say, it tends to do that, yes." Well, you know what? He was not really right. I'm proof that it doesn't have to be that way. So are many other people. After you're diagnosed, I think you go through some mourning and maybe you will feel worse for a while. But once you get through that phase, you can begin to research, and read, and talk to others, and find out what can be done, large and small, to improve your condition. And these things can make a vast difference. They have for me. I'm not worse than I was. I am better than I was years ago. Much better. Am I great? Not yet - but I'm not ruling that out. :D

Hang in hon.
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

Twinklestar
New Member


Date Joined Jul 2010
Total Posts : 14
   Posted 8/14/2010 6:41 PM (GMT -7)   
I don't know if I am worse, or that I am older so that it feels worse. I do know that when I was 1st diagnosed that I just had pain issues. Now, it seems to be fatigue, heart, sleep, itching, and a host of other issues that seem more related to FMS than just natural aging. I have tried my hardest to not let FMS define who I am, but especially this last year, it seems to have worked it's way into every aspect of my life. Everything seems related, so instead of fighting one issue, you are fighting it all. However, I know that I have to stay hopeful and proactive, because this is my journey to follow and make of it what it is.
Just take one step at a time, one day at a time and make the most of each and every day.....
It is the journey that counts......

onedayoneday
Regular Member


Date Joined Aug 2010
Total Posts : 23
   Posted 8/14/2010 10:04 PM (GMT -7)   
I have was diagnosed 6 six years ago and from what i have seen it gets worse in that there always seem to be more problems arising, I was very religious about gentle excercise until i had a car accident last year and since than everything has gotten worse and i have not managed to get my body back to any place decent. for me the meds don't work so it is dealing on my own and it is hard , i hope that life will get easier some day soon.
Gentle and Supportive Hugs,
Survival Power

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/14/2010 10:37 PM (GMT -7)   
Hi and another welcome to the fibro Family!

The folks in here are genius, IMHO, so I don't have too much to add. I do think your outlook and actions can have a lot to do with your pain and quality of life. If you give in and don't move much then you are destined to be much worse than if you try to remain as active as you can. But I also agree that as we age with fibro that other fibro-related things just seem to pop up more often than in non-fibro people.

If you read the medical literature on fibro most of it says it's not a progressive disorder. But I disagree with that. Maybe for some but for this gal I've grown progressively worse over the last dozen years or so. I think some of the researcher who are writing this stuff don't have fibro but are relying on some numbers and a few surveys. Just a guess on my part there.

I was looking around online for any articles that might be of interest on this topic and found a link to the NIH(National Institute of Health - a government site) that has short write-ups on many research studies. If you are interested in some current information on fibro here's the site...

www.niams.nih.gov/News_and_Events/Spotlight_on_Research/2004/fibro_sum.asp

Chutz

saintsfan
Regular Member


Date Joined Aug 2010
Total Posts : 171
   Posted 8/15/2010 5:31 AM (GMT -7)   
Thanks Chutz and everyone else. I ad read it wasn't progressive but over the last few yrs it sure to seems worse to me. I've been in a flare for a month now and the Savella just isn't doing the trick. I discussed this with my doc who increased the dose. I've alwasy been the type to ignore the pain and keep moving-not working for me right now though. Anyway, i'm rambling... I am glad I've found you and thanks for all the positive words---that's what I need most right now.
Dx: Fibro, HTN, Depression

"The Lord is close to the broken hearted and He saves those whose spirits have been crushed" Psalm 34:18

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 8/15/2010 9:03 AM (GMT -7)   
All I can say is no one knows what the future will hold...not even the doctors.  Gee, they don't even know what causes this!  We are all so different and how fibro will affect us is different, too.  But, I do feel that if you stay active and keep moving, you will keep the muscles flexible and working with less pain.
 
Like puppylover, I walk my dog the first thing in the morning and that gets the blood flowing to my muscles and gives me more energy and less pain.  Nope, I don't feel like going, but I do things that I need to help myself.  If I sit too long, I am in more pain and stiff as a board.
 
I've had fibro for 23 years and it seems about the same to me.  Yes, I'll have really crummy days but I have really good days, too.  So, you do have a lot to look forward to.  I'm still living my life to the fullest and enjoying it, too!  You can too.  Just plan on it.  :-)
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

MinnyMouse
Regular Member


Date Joined Jun 2010
Total Posts : 197
   Posted 8/15/2010 7:37 PM (GMT -7)   
Day by day by day and sometimes minute by minute. No one knows what the future holds but with the right doctors and the right combo of medication I can feel some ease. The flares for me are frequent and the fatigue is all consuming. I'm on of those that do not do the exercising I should be doing and so really listen to the others there, you must keep moving.... it's a must.... I know it and I just don't.... I walk some and do stretch some but not near enough. I can tell the meds I'm on work. For me I think that as I got older and my joints did break down because of degenerative issues, it did get worse. NOT so much the fibro, it's always been there, but because of the combination of issues, the Lupus and the degenerative joints and discs... it's just all add up.

Stay positive, take one day at a time and don't expect to be like any of us.. You are you! You are strong, and you can fight this nightmare or give in..... Fight.. and feel better.
Savella, Lyrica,Mobic,Tramadol,Flexeril,Omeprezole,Vitamin D3,
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