Want to help my Mom

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Sissyfyia
New Member


Date Joined Aug 2010
Total Posts : 2
   Posted 8/16/2010 3:35 PM (GMT -7)   
My mother has had Fibromyalgia for over 5 years now.  She is allergic to Lyrica and is on a a strange amount of drugs.  She lives in a very rural area and doesn't have access to the best doctors.  I was just curious what the common meds are for fibromyalgia patients.  My mother still lives with pain daily and has little to no energy.  I want so badly for her to be able to spend time with her grandbabies and live a life with quality to it.  I will list the meds that I know she has taken.
 
Lyrica (allergic to it so no more)
Fentanyl
Cymbalta
IBS meds
and a daily vitamin.
 
Surely there is something out there that works.  Is it worth taking her to the Fibromyalgia and Chonic Fatigue centers or will they just tell us the same.  I am sick of all the jerks trying to take advantage of people with "miracle pills"!!!  Please help.  I wish I could cure each and every person with Fibro!!! I REALLY DO!!!!

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/16/2010 4:10 PM (GMT -7)   
Sissfyia, welcome to the forum. My heart goes out to you! Your Mom is lucky to have
such a loving and caring daughter.

Lyrica, Cymbalta and Savella are three drugs that are approved by the USFDA for
the treatment of fibromyalgia. Some of us take muscle relaxers like Cyclobenzaprene
to help ease the pain others may use painkillers anything from tylenol to prescription narcotics. We all tollerate meds so differantly
                  
Keeping active is really important. If your Mom doesn't exercise she should start.
Inactivity only makes us worse. I'm a walker and I know if I didn't walk I would hurt
all the more. Muscles will become stiff and sore and add to the pain.

Please read Fibro 101 page 1, top of the page...there is some very good information
including gentle stretching exercises. If your Mom has not exercised in awhile she
could start doing these and work her way into an exercise routine sh would enjoy.

With fibromyalgia even with treatment there is some pain but if you find the right
meds, the pain is more tolerable. Is her present doctor experianced with working
with fibromyalgia patients? Some doctors don't even believe in it, so it is important
that the doctor understands her pain and is looking for ways to relieve it.

Many of us were found to be Vitamin D deficient and that adds to the pain, a test
should be given to make sure there is no deficiency.

Thank You for your kind wishes for a cure. I'm sure others will come on to help.
I'm glad you have joined us. Perhaps your Mom could join. We are here to support
one another . The members are very loving and compassionate. We all understand
pain, so we can relate.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/16/2010 8:30 PM (GMT -7)   
Sissy Im sorry your mom has to deal with fibro, I wish there was a magic pill that would make us all feel great but with this disease it is a matter of trial and error as to what works and what does'nt is different for each of us. I will say however that Robin is right when she said that you have to do some kind of gentle exercise. The trick is to start out slow and work herself up. Let her go at her own pace and please dont push her to hard or it will end up being a step backward for her. I have a grandson and I love him so much but he is hard for me to keep up with. I do enjoy any time I have with him and I do play with him to some extent but I get tired out easy. He is a little young to understand right now being as hes only 2 but he is learning that grandma cant play like his mom or dad or his aunts and Uncles. But he is still grandmas boy lol. I hope this helps you some.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 8/17/2010 2:34 AM (GMT -7)   
Hi, and welcome! One of the greatest things you can do for your mom is to believe her symptoms - and you do - so you are a huge help to her already! There are many different meds that folks are on for fibro. I did not do well on Cymbalta....and have not tried Lyrica or Savella because of weight gain.....that is the last thing I need after losing 48 pounds so far this year.

My meds for fibro are Nabumatone (Relafin) and Vicodin. Nabumatone is an anti-inflammatory and the vicodin takes the edge off on bad days. We are never pain free, no matter what we use, but symptoms can get better with the right treatment.

For exercise, I walk or swim. Stretching of any kind is very painful for me, so I don't do that.

Thanks for your well wishes, and I hope your mom can get the right help.
DX fibromyalgia 2007, OCD, depression, anxiety, sleep apnea, hysterectomy.
meds - fluoxetine (prozac), abilify, trazodone, lorazepam, nabumetone, hydrocodone, c-pap machine.
A friend loves at all times. Proverbs 17:17

saintsfan
Regular Member


Date Joined Aug 2010
Total Posts : 171
   Posted 8/17/2010 4:02 AM (GMT -7)   
It's so wonderful of you to want to help your mom. I think taking her to the fibro clinic would be benefieical to her and to you. Like the others have already said, everyone is different, but that's why we have to have faith in our docs to find the right medicine for us. Exercising does help - gentle exercises work best for me; swimming is a fantastic way to help with fibro pain. If you don't have a pool( I got one at wal-mart for $200.) maybe check in to the local ymca. We all have flares and can only take it onde day at a time is all we can manage some days. Good luck to you and her.
Dx: Fibro, HTN, Depression

"The Lord is close to the broken hearted and He saves those whose spirits have been crushed" Psalm 34:18

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/17/2010 9:13 AM (GMT -7)   
Hi, and welcome!  What a wonderful daughter you are!  Is your mother older?  If she knows how to use a computer, see if she will come here...even just to read.  It helps to know you are not alone with this illness.
 
You have been given excellent advice from some of our wonderful members on this forum.  But, I'll add another supplement that has helped me a lot.  It is a malic acid/magnesium supplement.  I have a link in Fibro 101 all about it and how it works in the body.  This, along with vitamin D3 do help with pain and fatigue.  There is a link about Vitamin D in Fibro 101, too.
 
I'm so glad you joined us.  Don't hesitate to ask questions because we are here to help you.  Hope your mom gets some relief.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Sissyfyia
New Member


Date Joined Aug 2010
Total Posts : 2
   Posted 8/17/2010 12:23 PM (GMT -7)   
Thank you all so much!! I have told my Mom about the site and as long as she can access it from work she will do that. She is at a computer all day so she hates to get on one after work. I love her so much and wish so badly I could take the pain away. It really does help to know that she is not alone though and there are people who totally understand her. I hate when people think she is lazy... it angers me so much I want to break their legs and then tell them to run a marathon and MAYBE they'll comprehend some of the pain she deals with. I hate that I can't even hug her sometimes because her skin hurts! Thank you all for the kind words and help!! I am grateful she is not alone!!! I will continue with my research and the advice you've given!!

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/17/2010 12:38 PM (GMT -7)   
Welcome, Sissyfyia. The others gave great advice, I'm just including a direct link to the Fibro 101 topic what was suggested. Here it is: www.healingwell.com/community/default.aspx?f=24&m=1609914

Do make sure deficiencies, like was mentioned, are checked. Vit D, magnesium, malic acid, the B-vitamins, potassium - and many others can cause problems if we're low. Never underestimate the additional problems a fibro sufferer will have if they're low on some important elements.

Wishing your mom and you both success in finding what works for her.
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/17/2010 12:41 PM (GMT -7)   
PS: Consider also scrutinizing her diet. For example, MSG and artificial sweeteners of any kind give me huge health problems. Reading labels can be very important. It is for me.
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 8/17/2010 2:10 PM (GMT -7)   
Hello, Sissyfia. What a blessing you are to your mother - you care, and you believe her! My daughters do, too, and it means the world to me.

I lost my mother and father 2 years ago....they also had "invisible" problems, (fatal, in their cases) and looked and sounded young for their age. People tend to only take seriously things they can see, as I'm sure you're all too aware.

Good luck to you! I'm glad your mother has you in her corner. I'm also glad you're not about to be taken advantage of by "quacks." I had a woman try to get me to buy acai berry stuff for my fibro, literally hours after my mom had died (and I'd told her this) as I was taking my 87-year-old dad back to assisted living. If I'd had my wits about me (which I rarely do when it counts) I'd have given her a piece of my mind. Never underestimate the insensitivity of people trying to part you from your money.

Debbie
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed
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