Who Diagnosed You?

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hisfaithful1
Regular Member


Date Joined May 2010
Total Posts : 167
   Posted 8/17/2010 7:55 PM (GMT -7)   
Ok so I've had 2 MDs tell me I have fibro, the symptoms I have, there is not much doubt. The achyness, fatigue, pain that comes and goes.( Some of it never goes.)  sad   The forgetfulness and lack of being able to concentrate is almost as bad as the other symptoms.
 
My first MD was so nice and did all the testing, and had been trying meds to see what works for me, I really liked her so much. She's moved to Chicago, and I saw her replacement about a week ago. He is older, and nice, and took his time going thru my med file, which I liked, but he has not treated fibro.  I was relieved when he gave me refills of what I'm on now. I asked him to refer me to a rheumy, and he said yes. Still waiting for an appt.
 
Sorry, it always takes me awhile to get to the point. I want to know what you all have experienced who were diagnosed w/fibro from a Md, then went to a rheumy, did he or she accept the diagnosis you were given, or did they test you again? I'm wondering what to expect. I've read such awful stuff online about how alot of docs are when it comes to fibro, I guess I'm a little nervous.  
 
The other reason I'm going is the severe osteoarthritis in my left hip is really bad now. It hurts terribly after walking about a block, and hurts at night, wakes me up. So not sleeping well, going up and down the stairs etc.  I'm thinking I need a hip replacement, but I'm not working, it got to be too hard just working part time, so I have no insurance!
 
 My DH is on disability and working part time, thats how were surviving. Its a bit depressing, I'm 54 and went from being active and in pretty good shape to stuck at home, and trying to deal with all this. I was given the generic for Celexa by my first MD, but I started gaining weight, and so I stopped. I want something to help the depression, not make it worse! Lol! I do enjoy reading the posts here, you are so supportive of one another, and I'm learning from you all. Some of you are real comedians, and have made me crack up as if I were watching I love Lucy, or Carol Burnette. Loved those two so much!
 
 I havn't posted in awhile, so sorry this is almost a book! I think writing this has actually helped.  I gotta get off to bed, but will answer any replys in the morning. Take care, and God bless you all.
Debbie
 
Debbie, I gave you a subject line.  You will get more responses that way.
 
Sherrine

Post Edited By Moderator (Sherrine) : 8/18/2010 9:49:19 AM (GMT-6)


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 8/17/2010 8:33 PM (GMT -7)   
Debbie,
 
I know how depressing it is to go from being active to wondering if you should risk carrying 2 soup cans in from the car.  It sucks!! 
 
I never went to a rheumy.  Actually, that's not true, I did once, but she just said, "yeah, fibro," and thought my Internist was doing as much as she could do (and he has more personality! Talk about a comedian!)  So I've just been treated by him for 20 years.  If he ever retires or leaves, I'm going to be one depressed cookie.
 
I hope you can find some relief soon from your pain.
 
Debbie
 
 
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/17/2010 9:49 PM (GMT -7)   
Hi Debbie!

Glad to see you posting again. Gosh, I would be depressed just by the amount of stuff you have to deal with! OK, just kidding there but there are a lot more solutions than your doc is telling you about.

First about the antidepressant. I understand about the problems of gaining weight on that type of medication. BUT, one thing I learned from my doc (who is a local, "country" doc and is fabulous!) that if one antidepressant is causing you side effects that you find hard to tolerate then you should try another. My doc kept trying until the 3rd or 4th one and I finally found one that I tolerate and is effective. There is no reason not to take something if you need it because there are so many of them to try. Also, most often your antidepressant will seem to 'give out' after a couple of years or more. That's when it's time to try a different one again. It's just how that type of medication works.

I was first diagnosed with fibro my my primary doc and then sent to a rheumy for confirmation. Most of the lab work had been done to rule out other problems so he just finished with a couple others. Then he gently went through the exam being very considerate of my pain. Didn't take much for him to agree that fibro was it!

So often doctors refer you to someone and tell you that "They" will set up an appointment. ummmm, no thanks! I'll set my own appointments, thank you very much. What we see so often in the forum is people waiting and waiting for some secretary to make the appointment and after waiting weeks no one has even called! What I do if someone offers to make the appointment is tell them I need to make it myself since my calendar is at home and is so full. I guess it irks me to think that they can make an appointment and assign it to me without any consideration whether I'm available or not. My time is important too! (ok, I'm getting off my soapbox again...lol)

You might consider calling your doc's office and ask for the name and phone number of the referral. Then call them yourself and ask whatever questions you have and/or make your own appointment. No need to be treated that way... IMHO.

I do hope you get some good treatment since it sounds like you're uncomfortable with this 'new' doc. Keep us posted.

Chutz

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/18/2010 5:17 AM (GMT -7)   
Chutz is right there are antidepressants out there that do not cause weight gain so dont give up on them. I wasnt diagnosed by a rheumatologist but by the husband of one who was also a dr. and then again it was confirmed during a sleep study.
As far as the arthritis in your hips have you ever had cortizone shots to try to help with the pain. They are painful but they do help with arthritis. Dont do much for fibro though.
I hope you get the answers you seek.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 8/18/2010 8:47 AM (GMT -7)   
I was diagnosed by my Internist and then I moved and found another board certified Internist.  I have never seen a rheumatologist.  BUT, my Internist does treat fibro patients.
 
I hope you get the help you need to get you up and about again and feeling better.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 8/18/2010 9:13 AM (GMT -7)   
I was initially diagnosed by a rheumatologist. My internist threw the word "fibromyalgia" around a few times but never diagnosed me. He sent me to a neurologist who said, "I don't know what is wrong, but I do know it is not neurological." That was many years ago, and I now find that statement kind of funny, considering the new research indicates that fibro may be the result of a pain processing problem in the brain. Go figure.

I took it upon myself to make an appointment with a rheumy. I have actually been to 3 rheumies: I didn't like the first one; the second one was too far away, and I couldn't continue to make the drive; and the third one moved away. All of them took a medical history, did blood work, felt all of my muscles and joints, and did tender point tests. I am now back to my internist, who accepts their diagnoses, and helps me manage the fibro.

Good luck with your treatment.

Hugs - Austen

hisfaithful1
Regular Member


Date Joined May 2010
Total Posts : 167
   Posted 8/18/2010 12:30 PM (GMT -7)   
 
 
Thanks everyone for the encouragement and sharing what you went thru in getting diagnosed. I feel more at ease now.
 
Austen.....  how true, I read that people with fibro may be better treated from a Neuro, because it is seen now as a pain processing problem. So Neuros better be gettin up to speed about this condition that causes so much pain!
 
Sherrine..  I didn't know Internists treated Fibro. Course theres alot I don't know. I thought I should see a Rheumy cause they treat Fibro and Arthritis.
 
I read your 2nd Timothy verse everytime I read one of your posts, it always encourages me. I believe God's Word is living and powerful to help us every day.  I would be lost without it.  Anyway thanks for the kind words too.
 
Shirley.... Thanks for mentioning the cortizone shots, I will ask him, if I can ever get an appointment! And I will ask my MD for another anti-depressant. I'm guessing you've tried them? If so how long did it last? And if you don't mind me asking, wheres your arthritis at? Besides hips, n  knees, I think I have it in my right elbow cause it's been really achey, and hurts like the dickens when I move it up or down, and now my fingers are all hurting! 
Thanks for replying.
 
Chutz.... Thank you for the info, I guess I need to be more assertive, and keep trying  till I find what works. And I'm glad you told me about how they will stop working after awhile. I guess it's like pain meds  and we build up a tolerance. 
 
I know your right when it comes to setting appts for other doctors. This health center I go to has a sliding scale that I qualified for, so it's what I'm stuck with, well, I;m grateful I can go there, it saves me 60% of the bill. I think it's odd they want to set up people's referrals for them too, every other doctor I've been to in my whole life would just give it to me. I will ask them why they do it this way, it is frustrating. I did call today, and had to leave a message, but told them I am in alot of pain from my hip, and need the referral right away.
 
Hey Debbie... love your name by the way!  I'm glad you have a doctor you know and trust, it is so important, I know because I had the same one in California for about 18 years. Then moved to Md. I hated losing him, cause I trusted him, and he was so kind and compassionate, took my kids to him all the time.. back then I was healthy so didn't need to see him much myself.  If i could just bring him here to MD!!
 
Thanks again all of you, 
 
Hope you all are having an easy day today.
 
Debbie  
 

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/18/2010 12:49 PM (GMT -7)   
Hi Debbie, yes I have had the cortizone shots in my knees for the arthritis and the first time I got shots it lasted about 5 years before I had any problems again. They drained fluid off the first time too and that was very very painful. The shots themselves are not that bad. Now the second set Ive had has lasted for over 6 years, but I have lost alot of weight this time around so that is probably why it is lasting longer. At least the second time though they didnt have to drain the fluid off my knees. I hope you can get some relief soon.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 8/18/2010 3:18 PM (GMT -7)   
Debbie,

Wellbutrin (bupropian) is a good anti depressant that doesn't cause weight gain.

Good luck,

Hope that you feel better soon.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 8/18/2010 3:23 PM (GMT -7)   
Our former family doc diagnosed me.  She was wonderful but left the practice here and moved back to Canada.  My current doc is great also.  I've not seen a rheumatologist.
"When life knocks you on your knees, you're in the perfect position to pray."

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 8/18/2010 7:34 PM (GMT -7)   
My GP mentioned fibro about 8 years ago.  Went to neurologist last summer for my neck which he told me there was too many discs involved so there was not a surgical fix. 
 
Then went to a rheumy around feb or march and was diagnosed with fibro.  he gave me my choice of going to him every 3 months or to just continue with my GP which is what I chose to do. 
 
I do have an appt at a pain clinic on Sept 7th.  The pain doctor I went to a few months ago did not believe in fibro and told me that I was too active to be in any real pain.  I just remembered that I went to a pain clinic last summer also and they wanted to do a cervical epidural.  I opted out of that real quick after I researched it.
 
It just seems like such a merry-go-round....of doctors
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 

hisfaithful1
Regular Member


Date Joined May 2010
Total Posts : 167
   Posted 8/19/2010 7:02 AM (GMT -7)   
                    
      Libby... I'm glad to hear you have a good doctor.
      I have  heard some horror stories about bad  
      doctors.
 
      Karen.... thanks for the suggestion about
      wellbutrin. I was actually going to ask my
       doctor if I can try it. I just read that it is
      one of the few that doesn't cause weight
      gain.
 
      Shirley.... wow, I didn't know the cortisone
       shots could last for years! I will ask the
       rhuemy about it when I see him.
       Is the arthritis in your knees severe?
       And do you know if you can still have the shots
       in the hips if it is severe? I have it in my
       knees too.
 
      GSDgirl.... Gee sounds like you had fibro a long time before being diagnosed. I hope you get better results with this pain clinic. I'm thinking I may eventually  to have to go that route myself.  Let us know how it goes. I will pray you get a good doctor
who understands.
 
    You are all such a blessing. No one in my life understands this dragon as I have heard it mentioned.
 
I'm so glad I have somewhere to go with questions, and and support.  Thanks all of you so much.
 
                          Hugs , Debbie  
          

just_grace
Regular Member


Date Joined Jul 2010
Total Posts : 62
   Posted 8/19/2010 8:14 AM (GMT -7)   
When I went for an appt with my gp about 2 & 1/2 years ago, she said she "thought" I might have fibro and referred me to my rheumy.  After some test, the tender point test and blood work, my rheumy told me she was certain I had fibro, oa and carpal tunnel.  The carpal tunnel was the only dx I wasn't surprised by.

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/19/2010 4:06 PM (GMT -7)   
They have never mentioned how severe mine is but in my mind it is very severe when it acts up. It can put me in tears at times when it is acting up and it takes alot of pain for that to happen. As far as the hips I dont have arthritis in my hips so Im not sure how well the cortisone shots will work there. Definitely talk to your dr. about it.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

hisfaithful1
Regular Member


Date Joined May 2010
Total Posts : 167
   Posted 8/19/2010 5:35 PM (GMT -7)   
   
 
just_grace, I'm sorry you have to deal with fibro and osteoarthritis. We have those 2 pain issues in common. And it's funny, well not really funny, but I suspect I have carpel tunnel too. My wrists and hands hurt and get tingly. It mainly happens when I'm sleeping though, but my right wrist starts hurting alot just from typing.
 
Ohh Shirley, I know the pain your talking about from the arthritis. And then all the other illnesses your dealing with has gotta be really hard. My Mom has the osteoporosis and copd also, and arthritis in her back.
Thanks, and I will ask the Rheumy about the shots in the hips.
 
God bless, and take care
 
Debbie S.
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