Is there any other group of people with problems who have to keep moving or else they hurt? I'm tired of always having to move. To me, it's a double-edged sword. If we don't move, we hurt, if we move too much, we hurt. I get very frustrated! To top it all off, at the end of the day, I want to relax, but I have to keep moving so not in pain to go to bed! aaarrrggghhh :)
Try to take things one day at a time. It sounds like your daughter really wants to be able to do this, so do give it a try. Tell the other parents that you have a muscle disorder and fatigue and that you don't know if you can always keep up. I am sure that they will understand. If you can't do it, you can't do it. But if you worry about it, you will make it worse and harder to handle. The stress will make everything worse.
I too can't handle the heat, and the humidity makes me even worse. We have had a hot and humid summer and I have been miserable. So I understand where you are coming from.
You said that you were depressed when you first got fibro. Are you taking anything for the depression or seeing anybody? Often depression can cause ahces and pains like fibro. If you got your depression treated, the aches and pains might go away. Also antidepressants do help with fibromyalgia. Something to think about. Are you feeling depressed now? That is something that you want to stay on top of.
I hope that you feel better soon. Forgive me if I am forgetting something. I am trying to stop smoking and haven't had a smoke all day. So I am starting to get a little edgy. I just took a xanax hoping to curb it. My husband is quitting too, but he is taking chantix. I wish I had some, actually I do, but it is two years old. So I don't think it would be much good. I don't know. It is tempting. It gives you a good feeling, like you don't need anything, so it takes away the cravings. Sounds good to me right now. But I might call my pdoc and see if he would prescribe it for me. I am new to my MD and he wants me to make a special appointment to see him and I don't want to. That is why I am quitting cold turkey. Wish me luck.
Post Edited (crazykitty) : 8/19/2010 5:56:34 PM (GMT-6)
Karen, keep going on the non-smoking thing! I quit cold turkey on April 15, 2010, and for 4 days, I was a witch, to put it very nicely! After that, I had no problems. I haven't snuck one drag from one butt. I was a pack 1/2 a day smoker for 27 years. My motivation...I didn't want to be the mother-of-the-bride who stood outside sucking on a smoke! (My daughter got married in June) I had tried many times before, but I had always cheated. I know that from now on, if I take one drag from a smoke, I will start again. I've only gained 6 pounds, but I was never much of a snacker beforehand. I never felt as if I had any side effects from smoking. It's probably why I kept doing it for so long. I even sang in a band for 19 years, singing songs like Evenescense, and she sings very high!
You've got to keep going. If "I" can do this, than you can! I can't promise that you'll feel much better. This whole fibro thing kind keeps good feelings on the sidelines! I will say, that food is way too salty for me now! hahaha Keep on keepin' on!!