Do I have Fibro?

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Regular Member

Date Joined Nov 2008
Total Posts : 51
   Posted 8/20/2010 11:42 PM (GMT -6)   
I don't have the pain spots (at least not as they are on the diagram)...but I have 80 percent of the symptoms on the FIBRO 101 thread.

Been having weird pains that keep getting worse for years now. No one can tell me what it is and I am sick and tired of this! UGH! Finally broke down and have been trying meds. Lyrica gave me blinding headaches, Cymbalta did not work well and trying Savella now.

The one horrid symptom that drives me crazy is the extreme feeling of fatigue in the morning no matter how much sleep I should have gotten. Its really ruining my life. Seems like i have crazy vivid dreams all night. Sleep studies tell me no stage 3 or 4 sleep so maybe that is it? Mild apnea, but a mask did not help. I am always sore in the am, limping and such. All my joints hurt and my body along my muscles - down outside of arms and legs - is incredibly sore to touch or poke.


Forum Moderator

Date Joined Apr 2005
Total Posts : 17059
   Posted 8/21/2010 10:55 AM (GMT -6)   
Hi Lynniecat, and welcome!  I'm glad you found us and joined our family!  Does your doctor believe in fibromyalgia or does he/she think it's all in your head?  You definitely need a doctor that believes in this illness and is willing to help you.  I see a board certified Internist for my fibro but many here see a rheumatologist.
Your doctor should run you through testing to rule out other illnesses that have many of the same symptoms as fibro.  These illnesses can be helped.  There is a link in Fibro 101 called What Else Could It Be?  You will see what needs to be ruled out first. 
I don't have all the tender points but I also take a lot of ibuprofen and Tylenol so that's probably why.  I also use vitamin D3 and malic acid/magnesium supplements.  These have helped me with pain and fatigue quite a bit.
Gentle exercise helps a great deal, too.  I walk and swim as my gentle exercise and always feel better, less pain and less fatigue after exercising.  If you sit or lay too much, you will be stiff as a board with this illness.
We can't tell you if you have fibro.  We are not doctors but you very well could have this illness.  I hope you find a good doctor that will listen to you.  In Fibro 101 there is a link to a daily journal and also links to pain charts to help explain the pain you feel when doing certain things.  You might want to keep a log and take it with you to your doctor.  That can really help them realize better what you are going through.
I'm happy you are here.  Don't hesitate to ask question because we are here to help you.  Let us know how things go.  I hope to hear more from you soon.
Forum Moderator/Fibromyalgia
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 8/21/2010 10:57 AM (GMT -6)   
Hi Lynn, sure sounds like fibro to me and the fatigue can definitely be a part of the fibro. Have you tried any muscle relaxers to help you sleep better at night. They might help. So sorry that you are having to go through this. Didn't the sleep dr. have any ideas that might help you get a better rest. I will be praying for you.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Forum Moderator

Date Joined Nov 2008
Total Posts : 5927
   Posted 8/21/2010 11:12 AM (GMT -6)   
Hello, Lynniecat,

I agree with Sherrine, you need to find a good doctor. But it sure sounds possible that it's fibro. I have that in the morning, takes me forever to get going in the morning. I'm technically awake, but don't ask me to hurry out of the house!

...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40404
   Posted 8/21/2010 1:48 PM (GMT -6)   
Hi Linniecat,

I am so happy that you joined us. It can be so frustrating when you don't know what is wrong with you. As in no diagnosis. But if you have 80% of the symptoms on fibro101, it sure does sound like you have it. I noticed that you have been posting on the lyme forum. Have you been bitten by a tick? Do you think that you could have Lyme's disease? But as was mentioned above, I think, other illnesses that it could be have cures. Where there isn't one for fibro. But join the crowd. We are all in the same perdictament.

Keep posting and let us know how you are doing.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies
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