rheumy appointment on Monday

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just_grace
Regular Member


Date Joined Jul 2010
Total Posts : 62
   Posted 8/21/2010 8:55 AM (GMT -7)   
I have an appointment with my rheumy on Monday and for once I'm actually looking forward to it!  Don't get me wrong, I like my rheumy and she's helped alot.  I've always dreaded my appts with  her though because apparently my insurance requires her to do the tender point test EVERY SINGLE TIME i see her to see if there is progress with my treatment or they won't pay for my rx's.  
 
I don't care if she does the torture test again this time as long as she can tell me something, or give me something to help with the increased pain levels I have been experiencing the last couple of months.  She's already told me the last two visits that there is nothing else she can give me with what I'm already on and my sensitivities than what I"m on now.  I just keep holding out hope something new will come along.  I'm hoping this time she will order xrays or an MRI to tell me what's going on with my hips.  I think its a combination of the fibro and my oa.  I'm afraid what she is going to tell me is there is nothing she can do and that my only option is to cut my work hours from ft to pt.  Financially that's just not an option right now. 
 
For the last several months, it hurts to sit.  The last couple of months it's progressed to where it hurts to sit, to walk, to stand, to put weight on either side of my hips..... It's ridiculous. 
 
My original appointment wasn't until October and I called last month and told them there was no way I could wait that long.  I"m on Lyrica, Savella and Nortriptylene.  Tylenol or Advil doesn't faze my pain.  Aleve makes me totally ill.  The Savella made a HUGE difference for me last year when she put me on it.  I felt like I had my life back.  I'm on the max dose she will rx for it and now it's just not enough. 
 
Normally I am able to just push through the pain.  Lately, I just spend the day praying I will make it through and be able to do all required me at work.  The night cleaners at my work who are supposed to do the mopping have been doing a horrible job.  Boss lady said earlier this week that perhaps the servers (I work at a restruarant) will have to start doing the mopping too.  I told them when they re-hired me that and lifting heavy things are two things I absolutely cannot do.  I could have cried when she mentioned it.  Hopefully that won't become her final decision on it. 

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/21/2010 9:20 AM (GMT -7)   
Wow Grace Im sorry you are having such a hard time right now. I cant even imagine how hard it must be for you at work. I dont have any great suggestions for you, I sure wish I did. I will however be praying for you that you get some relief for your pain.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

just_grace
Regular Member


Date Joined Jul 2010
Total Posts : 62
   Posted 8/21/2010 9:29 AM (GMT -7)   
Thanks Shirlely.  Today is my Friday at work, and I'm just hoping it will go quickly.  I haven't even cleaned my house this week other than clearing away the clutter.  Hopefully, I will get it done tomorrow.  I can't stand it like it is, but I have no motivation to do anything about it lol. 
 
I would love a hot tub to sit in right now.
 
I owe, I owe, so off to work I go.......

Missmissy
Regular Member


Date Joined Oct 2006
Total Posts : 237
   Posted 8/21/2010 10:23 AM (GMT -7)   
Hi Grace~I'm so sorry for your pain! I was wondering if anyone (docs) have ever offered the injections into the hips for pain relief. I have suffered so much with hip pain, and I finally broke down and said yes to the injections. They really helped me. It's not a cure, but they do buy some much needed relief from the pain cycle. Just a thought....Have a restful weekend! (((Hugs)))
Crohn's Disease, Fibromyalgia, Psoriatic Arthritis
1600 mg. Asacol 3 times daily for Crohn's
I'm not going to take this lying down.

just_grace
Regular Member


Date Joined Jul 2010
Total Posts : 62
   Posted 8/21/2010 9:46 PM (GMT -7)   
Hi MissMissy.  No, but this is a new issue I've had the last couple of months and getting worse.  At first I just thought it was another fibro pain, so I tried to ignore it.  I'm hoping the doc on Monday will give me an alternative other than simply "this is my life".

SillyMe2
Regular Member


Date Joined May 2010
Total Posts : 110
   Posted 8/21/2010 10:18 PM (GMT -7)   
Uhhh.. they should at least do the x-rays and blood eval.. The insurance requires that they do the Points test every time? Insurance is dictating to doctors how to diagnose their patients? I know they tried to do that about 27 years ago... but didn't think they were still doing it anywhere.
DX: Fibro, PA (Psoriatic Arthritis), Psoriasis, Rosacea.
Formerly Savella, Now Lisinopril, Vit D, Prilosec, Ambien, LDN, Tart Cherry, DL-Phen

just_grace
Regular Member


Date Joined Jul 2010
Total Posts : 62
   Posted 8/22/2010 8:38 AM (GMT -7)   
 
Hi SillyMe.
Yeh, that's one thing my insurance requires that I think is absurd.  When I first started going to this rheumy she did the tender point test.  The next 2 appts, she did it again.  I literally couldn't walk 30 minutes later I was in so much pain.  I called her the next day and asked her wth, was there a reason to this torture?!  She explained my insurance had said she had to do it to "test progress".  I at least managed to convince her not to do All of the tender points to just pick one or two.  Now to just be safe, whenever I have an appt I take the following day off from work ahead of time as well.  Then I at least have another day to recover and be able to function.
 
If she doesn't request it,  I will request she do the xrays.  I had blood work done at my last appt so I'm not sure she will order more. 

just_grace
Regular Member


Date Joined Jul 2010
Total Posts : 62
   Posted 8/24/2010 8:03 AM (GMT -7)   
Update:
 
Rheumy appointment actually went okay.  She has diagnosed me with Bursitis in my hips.  She also ordered xrays to be done, but I haven't heard back on those yet.  She surprised me and did up my Savella Rx to 100mg twice a day to see if it helps me more with the increased pain.  She simply cautioned me she did not know if my insurance would cover the increased dose.  And she lectured me on finding an excerise program for myself and sticking with it, pain or no pain.  I know she's right it's just been so hard the last couple of months to do anything beyond working my 40 hours.  I bought a beginners yoga dvd yesterday before we came home from the city and plan to begin working on it this week.

sobermommy
Regular Member


Date Joined Aug 2010
Total Posts : 80
   Posted 8/24/2010 8:49 AM (GMT -7)   
I am glad you had a good appointment. I didn't realize until reading posts on here that people could see a rheumotologist for more than just the evaluation. The one i saw wasn't taking new patients with fibro. She told me that I had to follow up with my primary for my medicine and care...she just made the diagnosis.

I admire you...you hurt and are able to work full time...and clean your house!!! Wow...you are amazing. I am home...wishing I could find a job that I felt like I could handle...and don't often get anything more than the basics and a walk in during the day. I feel like I have had a great day if I get laundry, dishes and cook dinner in the same day. I hope your boss doesn't make your job harder for you. Will you let us know how the new dose of Savella works for you? I am just getting ready to increase my dose for the first time and hoping that I will start to see a difference soon. Not looking forward to the side effects with each increase but I gotta try. Good luck to you.
Trying to keep my focus...

Fibro, deg/bulg discs in neck, rotator cuff tear, exteme nerve pain in hands after carpal tunnel on both, multiple foot surgeries with pain still, IBS, tension headaches, (Lap band)

Savella, MS contin, Vicoden, claritin, prilosec, flonase, vitamins, calcium

just_grace
Regular Member


Date Joined Jul 2010
Total Posts : 62
   Posted 8/26/2010 8:42 AM (GMT -7)   
*lol* and I feel like I don't accomplish much to be honest.  My gp referred me to the rheumy and I've just continued to make appts with her.  Never asked otherwise.  I had applied two years ago for other jobs, office jobs.  Really glad now that I didn't get them because there is no way I would have been able to sit for extended periods of time.  Sitting is harder for me than to constantly be on the move. 
 
I'm really praying my boss doesn't make things harder.  I will just flat tell them I can't do the mopping.  Period.  End of discussion.  They know this, we discussed it before I came back to work for them.  If I have to, I'll pay a co-worker myself to do that task for me, but I'm not mopping the floors.
 
I upped the Savella starting Monday.  Just at bedtime to see how it effects me.  So far, so good.  Today I upped it with the morning dose too.  If it doesn't help I am not sure what to do.  It helped before so I'm going to remain positive it will help this time.  When I first started Savella just over a year ago, I felt for months like I had my life back so I'm optimistic with the increase.  I'll let you know however if I find it doesn't help.
 
Doc's nurse called yesterday and told me they got the xrays back.  Not bursitis, but it is the early stages of degenerative joint disease -- or the Osteoarthritus, whichever name is chosen it's the same thing.  My options are to continue to try to deal with the discomfort or to go in and have corizone shots in my hip.  They would only do one shot at a time to see how it effected me.  Won't do it in the office, but I would have to go to the hospital to have it done by a radiology tech.  Can only imagine what that will cost, so for now.... I'll see if I can deal with it on my own.   Work should be lightening up, so I think I will attempt to hold out for the shots until I really need them.

sobermommy
Regular Member


Date Joined Aug 2010
Total Posts : 80
   Posted 9/8/2010 6:20 PM (GMT -7)   
I had an injection for bursitis and mine was done at the pain clinic. It helped for a while but I can tell it is wearing off pretty rapidly. Hopefully it will help if and when you decide to do it.
Trying to keep my focus...

Fibro, deg/bulg discs in neck, rotator cuff tear, exteme nerve pain in hands after carpal tunnel on both, multiple foot surgeries with pain still, IBS, tension headaches, (Lap band)

Savella, MS contin, Vicoden, claritin, prilosec, flonase, vitamins, calcium
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