I had my follow- up with the neurologist yesterday. He didn't say much- basically everything they already told me over the phone. They found no lesions, so sounds like he is ruling out MS, and i tested negative for autoimmune diseases like Lupus and arthritis. He asked if I want a referrel to an ENT for a cyst they found in my sinus cavity but I declined for now. I am more concerned about
the pain and he said the cyst is not a concern.
So he went ahead and referred me to a Rheumy and I am waiting to hear from them to schedule an appointment. I have heard good things about
this guy, so hopefully it will go well! What should I expect at the appointment? Will he do a tender point test that same day if I request it? I really don't see any reason to wait any longer for it.
I was kinda hoping the neurologist would have known how to do the test, but I guess not. It sounds like he doesn't know much about
it. In fact, he told me that chronic myofacial pain syndrome is another name for Fibro.... um, I think not!! i didn't tell him I read articles on the internet, but from what i have read, they are different... myofacial pain is trigger points, and Fibro is tender points. Does anyone have myofacial pain, btw? I am wondering if I will get checked for that too.
Now i am just nervous that they still won't find anything wrong with me and I will feel like I am just going crazy. But it will be good to see if that is what I have or not.
thanks for your patience with me as I sort through things here on this forum!