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Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 8/21/2010 12:57 PM (GMT -7)   
 
Why Fibromyalgia has a credibilty problem
"When life knocks you on your knees, you're in the perfect position to pray."

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/21/2010 1:16 PM (GMT -7)   
Good article, Libby, and unfortunately sooo true.  Now, I wish those "eye rollers" would get fibro for one month.  Not only would their eyes roll, but they would be hanging out on their cheek bones!
 
Irritated Sherrine!
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/21/2010 3:18 PM (GMT -7)   
Thanks for sharing that link, Libby. It is a good article.

I don't know how to convey this - but I will try. There are people out there who are fakers claiming to have some illness when they don't - for some perceived benefit, or to get out of some obligation. Those people get me so angry. Why? Because they make those of who are authentic, those of us who are trying tooth and nail to find ways to improve out lot, the fakers make us look bad!

I think it is pretty easy to spot those frauds though - they're the ones who wouldn't try to improve themselves if you beat them with a stick.

On the other hand, here we are, with REAL illness hashing out plans every day, comparing notes, and trying like mad to find ways to make it through each day a little better than the day before - -and we get wrongly lumped in with a bunch of fakers.

Those fakers might be the ones who turn doctors into eye rollers.
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 8/21/2010 3:56 PM (GMT -7)   
I second that emotion Sherrine and Chick!
"When life knocks you on your knees, you're in the perfect position to pray."

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 8/21/2010 3:59 PM (GMT -7)   
Great article and so are the links at the bottom
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 

saintsfan
Regular Member


Date Joined Aug 2010
Total Posts : 171
   Posted 8/21/2010 5:33 PM (GMT -7)   
Great article, thanks for sharing it with us.
Dx: Fibro, HTN, Depression, IBS, Lupus like symptoms

"The Lord is close to the broken hearted and He saves those whose spirits have been crushed" Psalm 34:18

LIVNLEARN
Regular Member


Date Joined Aug 2010
Total Posts : 30
   Posted 8/21/2010 5:44 PM (GMT -7)   
Thanks for sharing Libby. Sherrine I couldn't agree more - just a short experience would change anyone's mind about how real Fibro is. I heard a nurse say once that she used to think Fibro wasn't real until she was the one crawling to the shower in the mornings.

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 8/21/2010 5:54 PM (GMT -7)   
Great article. If only we could bottle our pain to dole out to non-believers (only for a day though; I wouldn't wish this long-term on anyone).

Hugs - Austen

Ntish
Regular Member


Date Joined Jul 2010
Total Posts : 36
   Posted 8/22/2010 6:54 AM (GMT -7)   
AustenFan said...
Great article. If only we could bottle our pain to dole out to non-believers (only for a day though; I wouldn't wish this long-term on anyone).

Hugs - Austen
That's one of the problems.  Most people get aches and pains for a day or two, but nothing cronic.  If we wan't non-believers to believe us, they would have to experience this for a longer period of time, just like we do!

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/22/2010 7:14 AM (GMT -7)   
The article reinforces the point that there are many ignorant doctors out there.
Finding a good doctor can and does present a challenge to many of us. Look how
many of us have been demeaned by doctors who haven't got a clue!

Thanks for sharing Libby! Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

livenlaugh
Regular Member


Date Joined Dec 2009
Total Posts : 387
   Posted 8/22/2010 7:47 AM (GMT -7)   
Thanks for sharing.
Lisa

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 8/22/2010 7:50 AM (GMT -7)   
Ntish, you have a good point....... I may rethink my post.

Hugs - Austen

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/22/2010 8:22 AM (GMT -7)   
I'm not sure there are a lot of fakers.  Of course their are some but I think there are a lot of people that are "hypochondriacs" and are seeking attention.  Much of this IS a "mental" problem.  But, it hurts those of us with true pain. Pain doesn't show.
 
Most of us are women, too.  If there was an equal number of men with this illness, more doctors would start believing it, in my opinion.  Women are still looked down as weak in certain circumstances.  That's why we have to stand up for ourselves and be active participants in our health.  Doctors have been wrong many, many times.  So, find a doctor that believes that fibro is an illness and you will get the help you need.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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