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Elemental Fire
New Member


Date Joined Aug 2010
Total Posts : 9
   Posted 8/22/2010 2:13 PM (GMT -7)   
My husband found this forum for me and I've been reading but never posted til now.

Let me start out by saying I've never been diagnosed with anything yet and absolutely cannot afford to even go to the doctor. I'm pretty aware of my body and some would say that I'm paranoid (no really they have) And I just get frustrated and at times think maybe they are right and I then start to doubt myself.

Today, there is no doubt, reading these forums I am in tears, I'm sad, frustrated, and finaly moving past denial. For about a year or so I've noticed changes in my body that are slowly taking over my life. Wide spread pain all over (it has it's favorite spots though) dizzyness, trouble with concentration, changes in vision, tender spots, headaches, mood swings, personality changes, on and on and on.....

I'm somewhat relieved that I am not going crazy because from all you wonderful people I see that I am not alone and am not just a lazy person with a mind playing tricks on her. Although I have to admit that I did believe that for a while, (denial)

I do have another one to add though I've not seen on here yet, has anyone ever had their bones ache? Sometimes its my whole body hurting mostly in the feet and lower legs and most of all the bones in my hands and arms from the elbows down. Today the bone pain is gone but for the 2nd or 3rd day my hands are stiff swollen.

I was rear ended about 3 1/2yrs ago and have had problems with my neck back and shoulders and thought all of this was from that, I see a chiropractor regular ( I save up for it) and it really does help but I've been getting progressively worse as the years go by and been having more and more problems.

Anyway I've have a problem with my train of thought rt now and so I will stop and just leave it at this for now and maybe someone can give me a direction to head. Thank you all for being here, I wish we were all gathered for another reason...

Elemental Fire
New Member


Date Joined Aug 2010
Total Posts : 9
   Posted 8/22/2010 2:20 PM (GMT -7)   
Also, I'm feeling really desperate, I need to keep my job but I work at a VERY busy sandwich shop that is a 1/2 hr windy canyon drive one way from my home and the work seems to be making me worse, I've cut bk but... I just feel like I must be going through a flare up? or am I really getting worse? More and more problems seem to be coming up and sometimes I feel like I'm not sure what I will "find" .

Anyway thank you for any suggestions and your time in helping me out,
Love and respect

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/22/2010 2:36 PM (GMT -7)   
Hi, Fire, and welcome!  I'm so glad your hubby found us and you decided to join our family.  We do have wonderful members that love to help each other and we really do care about each other, too.
 
Yes, some have referred to the fact that they have bone pain.  With fibro,  you can ache all over...like you have the worst possible case of the flu.  Then there are areas that hurt even more.  Usually back, shoulder, and neck areas are affected.  Many do have problems with legs, knees, hips, feet, and hands.  No, it sounds horrible, doesn't it.  But, I have lived a full and enjoyable life with this illness and you can too!
 
Be sure to check out the Fibro 101 thread...the first thread on the forum.  There are links to good info about fibro there and you will learn a lot.  There is a list of symptoms and you just might "see" yourself there.
 
You really should try to see a doctor though.  The symptoms of fibro are very similar to the symptoms of other illnesses that you can get help.  The link What Else Could It Be in Fibro 101 will show you what you need to have ruled out first before a diagnosis of fibro is given. 
 
I saw that you said you couldn't possibly afford to see a doctor right now.  Many are in that same boat.  Try using moist heat to help yourself.  Hot showers are wonderful and so are Bed Buddies.  You can find these at Walgreen's and other places or you can make one by taking a tube sock, filling it 2/3's full of raw long grained rice and tying a knot at the end.  Pop it in the microwave and it gives off moist heat!  This feels wonderful on the shoulders and neck. 
 
With fibro you do need to keep moving.  If you sit or lay too long, you will be stiff as a board and have more pain and fatigue.  There are some gentle stretching exercises in Fibro 101 that really do work.  Also a good gentle exercise is walking and that doesn't cost a thing!  I walk my dog the first thing in the morning.  By the time I get home, I'm not as stiff and I have more energy and feel ready to face the day.  I also swim as an exercise and this would be great if you have access to a pool.
 
Many with fibro are deficient in some vitamins and nutrients that can cause more pain.  They are vitamin D3 and malic acid and magnesium.  I take a malic acid/magnesium supplement and vitamin D3 supplements.  There are links about these and how they work in your body in the Fibro 101 thread.  Malic acid is found in apples!
 
I'm sure others will come on with more good suggestions.  I hope some of this will help you feel better until you can see a doctor.  Let us know how things go.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 8/22/2010 3:41:47 PM (GMT-6)


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/22/2010 3:06 PM (GMT -7)   
Hi Fire, welcome to the forum! Sherrine has given you wonderful advice. I do agree
that you should try to see a doctor.

Pain, Fatigue and the Fog are all part of fibro. I understand the bone crushing pain,
that is how I describe my pain when I'm flaring. I exercise and take long soaks in
a hot tub. Stress and tension add to my pain so I do relaxation therapy during the
day. Deep breathing and meditation help. You can even do this standing in line at
the grocery store. I do make sure that I take at least 20 minutes a day to sit alone
quietly deep breathing and meditating. It has helped me alot.

Post often with questions and concerns, we care! Good luck to you!

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

louise47
Regular Member


Date Joined Feb 2010
Total Posts : 138
   Posted 8/22/2010 3:22 PM (GMT -7)   
One of my first symptoms was pain in my lower leg bones. I used to say my bones hurt all the time. I have been diagnosed with fibro but tested positive for lupus also. All the symptoms are sooo close. I seem to get new ones every month. I hope you find some way to see a doctor. I had no medical for 6 years so I spent the first year of this stuff misserable. You may have rheumatoid arthritis too. My doctor always checks to see if my hands are swollen. Do they turn red? are they warm to touch? There has got to be somewhere you can go. I hate that people can't see a Doctor when they need to. I will be praying that you are able to see a Doctor somehow. God can do anything
Cymbalta,tramadol,tylonol 4, nexium,verapamil,325 mils of asprin,multi vit,duloxetine hcl,vit D,vit b-6, and simvastatin

High blood pressure,high cholesterol, Carpel tunnel synd,acid reflux,insomnia,fibromialgia, High ANA possibliy Lupus ( no diagnoses) Vitamin D defficient, arthritis in most of my joints.

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/22/2010 4:30 PM (GMT -7)   
Welcome, Elemental Fire. I'm glad you decided to talk this over with us. You must have a sweet hubby if he found this for you. :)

When I didn't have any insurance coverage, and I couldn't afford to pay my bill at the doctor's office I found that my local hospital offered a free clinic one night a week, after 5pm. It is run by a Nurse Practitioner. They were pretty darned good. Call your local hospital, ask where the free clinics are in your area - they'll give you phone numbers. Call them. You do need to be seen. I'm sorry. It is a danger to your health to keep enduring this pain without knowing what is really behind it. Maybe there is something that can be done that isn't fibro related which will give you relief. I'm glad you like your chiro - but in this case you really need a medical doctor to screen you for other issues. The free clinic can run tests, do lab work, do x-rays and other things. They can help. Give them a chance, please?
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

Elemental Fire
New Member


Date Joined Aug 2010
Total Posts : 9
   Posted 8/22/2010 5:16 PM (GMT -7)   
Thank you to everyone for your responses! I will call tomarrow about a clinic. I will also look into the supplements I have spent about 2 mos watching and reading this forum and the Fibro 101 page is really great (it's what my hubby found and he made it my home page so it pops up whenever I log onto the net) I will go refer back to it now that I have some suggestions as to where to start (thank you so much). I do notice if I sit or sleep too much I hurt more and am more stiff movement helps for sure but also I'm seeing that too much movement and I'm toast, I guess I need to find the middle somewhere. My neck, back and shoulders were my main problem for the last 3-4yrs. I think I'm going to have to stop making sandwich's for a living though it seems that all this has gotten worse since I started working almost a year ago, I was a stay at home mom til the economy dived.

Also to Louise47 I notice that when I get up to use the bathroom at night, my hands are red mostly at the joints. I never noticed that they felt hot to the touch so I'd say no to that. But like right now they feel stiff and certainly look swollen and totally ache. The red thing at night has been going on for a while but the swollen all day thing is new as of the last 3or 4 days.

As I look back I do see new things occurring regulary such as Costochondritis that started beginning of July of this year. I feel certain that's what it is, I wrote down what I was feeling and found it on the fibro symptoms list. Anyway thank you I feel like a have a direction now!

Thank you all for your support it really gives me sense of hope!!!!!

SillyMe2
Regular Member


Date Joined May 2010
Total Posts : 110
   Posted 8/22/2010 5:43 PM (GMT -7)   
Hello Elemental Fire

Just want to add to the above cause it's all great advice.. I added Tart Cherry Juice which should help with sleep(has natural melatonin) and may also help with Arthritis issues. It has to be Tart Cherry.. :) Make about 4-6oz just before you go to bed.
DX: Fibro, PA (Psoriatic Arthritis), Psoriasis, Rosacea.
Formerly Savella, Now Lisinopril, Vit D, Prilosec, Ambien, LDN, Tart Cherry, DL-Phen

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/22/2010 6:20 PM (GMT -7)   
Hey Sillyme - I do tart cherries every day! Have for years now. I know they're typically for arthritis and reduce inflammation and pain - but somehow they work for me. I don't know if I have inflammation that I didn't know about - but I swear by them. I consider their cost just a necessity the same as a prescription. Glad to hear it helps you, too. My former primary doc told me the juice was a good alternative - he recognized its benefits for patients.
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

SillyMe2
Regular Member


Date Joined May 2010
Total Posts : 110
   Posted 8/22/2010 7:28 PM (GMT -7)   
It's expensive at my Jewel and comes in packets. Something like 22.00 but if you have a Trader Joes its something like 5 dollars a bottle. I think you would be buying just as many bottles as the packets but ill let you know when I get to Trader Joes. Now.. I don't believe the packets are sweetened so I have to add a little sugar.. OMG IT'S TART!!!
DX: Fibro, PA (Psoriatic Arthritis), Psoriasis, Rosacea.
Formerly Savella, Now Lisinopril, Vit D, Prilosec, Ambien, LDN, Tart Cherry, DL-Phen

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/23/2010 6:40 AM (GMT -7)   
Hi fire, sorry Im late welcoming you too our family but I see you have already gotten some great advice and I just wanted to add my welcome and my prayers that you find some help soon.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)
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