Am I the only person who has trouble walking

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onedayoneday
Regular Member


Date Joined Aug 2010
Total Posts : 23
   Posted 8/22/2010 10:23 PM (GMT -7)   
Hi All,
I have been reading over a bunch of the last threads and I see that everyone walks everyday and I don't understand how you do it. I mean I am on my feet a lot of the day dealing with my five kids but to walk is beyond me. I have a treadmill which I bought because i knew i had to walk and after a few days i had such bad pain in my feet i could barely stand up. so it is now a great clothes hanger. As for taking walks outside, everyone but i mean everyone walks faster than me which is depressing, we all walk a little together friday night and i am so far behind i can barely see them i only have one of my sons who tries to make a point to look back and when he sees he has gotten too far ahead he comes back and walks next to me again but most of them don't have the patience. My husband and I had started walking together and we kept it up for a couple of months until he admitted that it really annoyed him to walk so slow that he wanted to walk for excercise and this was just frustrating him so we stopped. ( and i was very hurt) I try so hard with so many things in life to keep up but i always feel like i am trailing behind or holding others back and it is a terrible feeling. I have tried pushing through the pain and it only got worse . When i comes to family trips with hiking i don't go and it feels bad to be left behind but at least i feel like i am not pushing myself beyond my limits because i always pay for it in big pain dollars when i don't listen to the limitation of my body. ( i have a million stories like this but i won't bore you with all of them)
So i return to my original question, am I the only person who can't walk??

I have fibromyalgia, myofascial pain syndrome, IBS, photosensitivity, daily tension headaches, chronic tendinitis especially in my writs and shoulders, back pain for the last 20 years after a slipped disk, dizziness and nausea ( possible an inner ear problem being checked out now), vertigo and everyday something new seems to pop up arggggggggg
Your truly,
OneDay smurf(my kids favorite show)

onedayoneday
Regular Member


Date Joined Aug 2010
Total Posts : 23
   Posted 8/22/2010 10:31 PM (GMT -7)   
HI All,
I forgot to add that i have very painful hips and moving them while walking or anything else any kind of stretching is very painful
One Day

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 8/22/2010 10:40 PM (GMT -7)   
Hi One day,
No, you are not the only one who has trouble walking.  I also have trouble walking and others here do too.  I think a lot of us do not walk very far.  I walk every day, but only 10 minutes at a time.  That usually helps the fibro, walking a little at a time. 
 
I also use a cane or a walking stick.  It helps me go further with less pain.  You can get these great walking sticks at sports stores.  I got mine at REI or somewhere like that.  Oh, and I am pretty slow a lot of the time.  We go on vacation with friends and I lag behind.  Hubby has finally learned not to leave me.  Once everyone went far ahead and I got stuck on the stairs and almost didn't get to the top.  Now they are better.
 
Good luck!
Sue

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/23/2010 1:26 AM (GMT -7)   
Hi Oneday, I'm a walker but I go at a much slower pace than I once walked. Years
ago I jogged and did power walking. Now I walk to just move. Somedays I'm able
to walk almost 3 miles and other days may go only a few blocks. The importance
is getting the exercise. I do have a cane and use it when needed....usually when the
sciatica acts up...then I take it easy and do gentle stretching. Keeping some form
of exercise is very important to help from getting stiff.

Does your doctor reccomend walking as an exercise for you? I have had back
surgery because of disc problems due to degenerative disc disease and was told
by my doctor that walking was good for me so I walk. I understand that it is hard
when you can not keep up with hubby. I usually walk with a friend who has spinal
stenosis. We make great walking partners :)

Wishing you the best! Take one day at a time and do what you can to make yourself
feel good. Give that son who walks with you a big hug from me:)

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

onedayoneday
Regular Member


Date Joined Aug 2010
Total Posts : 23
   Posted 8/23/2010 3:26 AM (GMT -7)   
Robin, I gave him a big hug, actually i give him a lot of hugs he is a great wonderful boy with a beautiful soul. He is becoming a teenager so I pray a lot that he won't change too much. I don't use a walking stick yet I am 37 but i do have a sort of electric wheel chair that i can take apart and take in the car with me if i have to go some somewhere when i know i am going to walk far. maybe a walker is a good idea or a walking stick but can i find something cool looking that doesn't make me feel like my 99 year old grandmother who walks better than me.? ( she is going to be a 100 in september and she is healthier than me)
One Day, One day at a time right?

saintsfan
Regular Member


Date Joined Aug 2010
Total Posts : 171
   Posted 8/23/2010 4:06 AM (GMT -7)   
I have trouble walking also. Do canes really help? I've thought about getting one but don't wanbe made fun of and be called an old woman because of using one.
Dx: Fibro, HTN, Depression, IBS, Lupus like symptoms

"The Lord is close to the broken hearted and He saves those whose spirits have been crushed" Psalm 34:18

onedayoneday
Regular Member


Date Joined Aug 2010
Total Posts : 23
   Posted 8/23/2010 4:14 AM (GMT -7)   
I hear you I also don't like feeling like an old lady when i have not gotten there yet and it doesn't look natural for me to walk with a cane I had to do that when i was 18 and i hurtt my back the first time and the guy that i was dating at the time had a really hard time with it and we almost broke up over it, i was so hurt , well we didn't break up and he is my husband now but along the way there have been things like that and it is hard. the first time i went to the mall with my small scooter type thing, i got a lot of strange looks and some kids made fun of me and it was really hard and at the end i would up in tears so which is better, tears of pain or tears of heartbreak.
OneDay

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/23/2010 7:34 AM (GMT -7)   
Oneday, I dont walk fast and i know what you mean about getting left behind by the others. I never really realized that this could be part of fibro until I started coming in here. I dont think how fast you walk should be important though. Just doing some walking is the important thing. Start off easy and work your way up but dont ever push yourself faster than you are comfortable with.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/23/2010 10:06 AM (GMT -7)   
Start out slowly and have comfortable shoes.  If your feet hurt, find shoes, maybe with orthotics in them, that are comfortable for you.  I wear Birkenstocks but it took me about a month to get used to the foot bed.  Now I love them and have no foot pain when walking.
 
Walk a short distance and then increase the distance a little bit each day.  You aren't using the "walking" muscles that much.  I really couldn't walk far at first but I didn't throw in the towel and decide it hurt too much.  I want to walk.  When you don't do things you eventually lose the ability to do it!  Nope.  Wasn't going to allow that so I worked at it.
 
I am short and can't walk really fast either.  When I'm with friends, I'm always 8-10 feet behind them!  I don't appreciate that but I don't want people working their lives around me, either.  So, I just keep chugging along and enjoying the scenery.  That's why I love walking my dog.  She doesn't have a choice as to how fast we walk.  But, she is always 16 feet ahead of me.  tongue
 
So, build yourself up slowly and you can do it.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

it's a new day
Regular Member


Date Joined Jan 2010
Total Posts : 105
   Posted 8/23/2010 10:49 AM (GMT -7)   

I have a really hard time walking and I try not to let it make me sad, but it does.  I have a hard time walking all the time.  I just don't do it anymore, even for a few blocks.  It hurts and I get extremely fatigued.  I also have a muscle in my lower left leg that just tightens into a knot and will actually bruise if I push it too much.  You are not alone.


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/23/2010 10:55 AM (GMT -7)   
about the canes...yes they really do help. I use mine when the sciatica up. At first
I thought I was going to feel funny using it, but now just think of it as a third leg.
When choosing a cane, I went for style and comfort. It is important to find the right
length. The height of the cane should be at your wrist. My cane looks like a giant
mahogany screw. It has a derby- fritz handle that is really comfortable.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

SillyMe2
Regular Member


Date Joined May 2010
Total Posts : 110
   Posted 8/23/2010 11:54 AM (GMT -7)   
There are times I could have really used a cane. The pain in my elbows tells me there is no way and don't bother. There are times I wish I had a scooter.. but not enough times to purchase one and the way my pain zooms in.. I would never really know when I needed that scooter ahead of time.

I don't have a spinal injury of any kind but my pain comes from my spine and my neck. There are times when I feel like my spine is bone on bone yet it's fine in MRI's and X-rays.

Get some good shoes.. I have had luck with Dr. Scholls. they have enough cushion so that the shoe doesn't kill the bottom of my feet.

My problem will also pertain to balance where I have to catch myself from going too far left or right. Stairs.. take them slow and hold on to something!
DX: Fibro, PA (Psoriatic Arthritis), Psoriasis, Rosacea.
Formerly Savella, Now Lisinopril, Vit D, Prilosec, Ambien, LDN, Tart Cherry, DL-Phen

javamommy77
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 8/23/2010 12:33 PM (GMT -7)   
SO as far as walking goes and those that have problems with it what do you do when it comes time for grocery shopping? I do the shopping once a month and it's usually 2 carts since we have 4 kids. Last month me and my two oldest kids went to get the groceriess and they were a big help but the amount of pain i was in by the time i was home was ridiculous.

i'm so scared about this upcoming month and whether or not I'll need to break down and get one of those scooters to go around the store. I cant push the cart it hurts too much and i hurt about halfway through and am extremly tired afterwards

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 8/23/2010 1:04 PM (GMT -7)   
I know how you feel, Oneday. My whole family goes on skiing and biking vacations and I stay home. My kids are all in their 20s and I've never seen them ski! I just chug around the block or the mall, usually alone. I guess I'm lucky that it doesn't hurt unless I go too far.... then my "butt" muscles start aching pretty bad. Of course, too far is sometimes just halfway around the block!

Debbie
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

grumpydogze76
Regular Member


Date Joined Dec 2009
Total Posts : 44
   Posted 8/23/2010 1:32 PM (GMT -7)   
Hello One Day

My name is John I am a 34 year old man. I cant walk more than a mile and i pay for it by spending the next two or three days looking up at my ceiling.... I know the pain of trying to explain to your faimly that you just cant do certain things......I havent been able to work for the past five years so money is really really tight and that makes things even worse because i cant even take my kids out for an ice cream on a hot summers day......luckily i know eventually the ssa is going to have to approve my ssdi and then i can make up for these last five years of battleing with the ssa and give my children a much deserved reward.....So oneday just keep you chin up and do what you can to keep yourself moving because the worst thing to do is nothing at all...........Just do what you can do and rest. This past weekend after saving for over a year my daughter and I spent a couple days in Boston going to musems and the new england aquarium..... I live in maine and its a five hour drive down there and five hours back so after all the walking and driving i am just done but at least i got to do something with my lil girl for her birthday. First time in years, but it will get better soon I feel i am very close to finnally being approved.

Good Luck And Rest Often

John
Fibromyalgia DX June of 07 December of 08 i got to have a vacation in the hospital with blood clots in my legs and abdomin meds I have tried them all the only thing that even remotely helps me is oxycodone 15 mg and thats all i take i hate meds trying to get disability since June of 05

Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 8/23/2010 5:01 PM (GMT -7)   
Yes it hurts to walk AT FIRST. But if you dont walk the pain will only get worse. You have to start out just a block at a slow pace or 2 min on the treadmill and be careful not to overdo. That is a big no no fro fibro. Then build up. I started at home on the treamill noe I can walk outside. I think the important thing to remember is if you dont keep your muscles and joints in good shape no matter what you have it will make it worsr. Take care.

Psoriasis and PS arthritis, Fibro,IBS,Bursitis,DDD of neck,Hypothyroidism.
Meds: Savella(love it),Flexeril at night,Synthroid(just started),Folic acid, lots and lots of Tylenol(liver enzymes up so trying not to take it), Humira( afraid to start untill I get thyroid leveled) not sure about it).

I thought once I found out what was wrong with me I would feel better. I thought wrong.

onedayoneday
Regular Member


Date Joined Aug 2010
Total Posts : 23
   Posted 8/23/2010 9:04 PM (GMT -7)   
thanks for all your support i have had doctors telling me for years to walk and i have tried the little bit at a time but it doesn't work so much for me but maybe it is time to try again. I move in the house a lot taking care of the kids but i guess it isn't the same as walking down the block. I always hated the doctors for making me feel like i am just not trying hard enough, but somehow hearing it from all of you who knows how difficult it can be and how much pain you can wind up in afterwards makes it easier to try, I had the sweetest doctor who was my gp and always wanted to help me, he said walk a little for 2-3 days and when it is too painful rest a day or two and then start again, I know his heart was in the right place but it just wasn't practical making myself hurt oy! i hurt enough without trying to make it happen. I have to say He passed away about a month ago and i am devistated he was the person i could work through all the med problems, he always had time to listen at any time, how many gp's do you know that give you their cellphone number and tell you to call whenever you need to , Saturday night for example. He was a blessing and i am heartbroken that he was taken, i think he just cared so much for his patients that his heart couldn't take it anymore. he will be sorely missed, and i don't know how i will ever find someone else to fill his shoes.
OneDay

africanfibromyalgialady39
New Member


Date Joined Jan 2014
Total Posts : 1
   Posted 1/4/2014 1:08 PM (GMT -7)   
I am glad i found this post, I have trouble walking I am 39 andd it kills me to walk sometimes. My Ra test has come out negative and the doctors treat me like its all in my head even after Dx1: is Fibromyalgia, Dx2 is Chronic Pain. I feel sad, alone and I need to be stong for my sons. I had to stop working and trying to get ssi has is a pain. a hearing may be be a year away.

I thought about a cane to help me get around the house a bit better to cook for the kids and such, I am depressed, tired and sleepy and nobody understands why?

Namian
Regular Member


Date Joined Jul 2011
Total Posts : 410
   Posted 1/4/2014 7:49 PM (GMT -7)   
Hello African Fibro Lady, Hopefully one of the moderators will pull your post out for an introduction, but until then I want to welcome you to our board. I had horrible difficulties walking when I was first diagnosed. I don't know if you are able to see an acupuncturist but that made a world of difference for me. She was able to loosen the tight muscles in my legs and make me able to walk better and with less pain.

I hope you find some help on this board, it is a great group.

Joy
Joy
Mom to three
Fibromyalgia, Migraines, GERD, gastritis, hearing loss, tinnitus, dairy intolerance, teenagers (I might be kidding about the last one)

"Make no judgments where you have no compassion." Anne McCaffrey

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 1/4/2014 9:47 PM (GMT -7)   
I'm going to lock this thread because it's so old.

Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, degenerative disc disease, discectomy L4-L5 - (w/lots of Sciatic Nerve damage), frozen shoulder, Hashimoto's Thyroiditis, IBS, migraine, dizziness (mostly from visual stimuli), elevated liver enzymes, tachycardia, hearing loss (probably Menieres).
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